“At the end of the interview or observations, thank the participant. Keep the camera rolling—some of the best stories come as the team is walking out the door.”
Being the fan that I am of the patient story and the patient’s voice, I have been drawn to and highly excited by the work of Estee Neuwirth, Ph.D., Jim Bellows, Ph.D., and others at the Kaiser Permanente Care Management Institute in documenting the stories of patients and families using video.
This approach is in some ways different and in some ways similar to some video story work that is available currently on the Kaiser Permanente YouTube Channel. The similarities are the great care taken to respect the patient story and protect their privacy (all of the stories published publicly have thorough consents behind them that are tracked and regularly checked on). The difference is the goal and outcome.
As it says in the kit:
Kaiser Permanente’s Care Management Institute has developed a replicable method for using video ethnography to learn from patient and staff experiences by capturing interviews and observations on videotape, analyzing the footage to identify improvement opportunities, and highlighting them in short videos that reflect the heart of patient experiences. Sharing these videos in dynamic sessions throughout the organization motivates performance im- provement activities and guides them toward areas of greatest opportunity.
In ethnography, it isn’t known what the story will be before it happens, which is what makes it such a great listening tool. The stories themselves can be told in times of great stress. I have seen several of them, and they really are great gifts to patients who want their peers and those who come after them to have the best experiences possible. Several teams are undergoing training in this technique, and its use is expanding. As I like to say, the reality of health care is what is happening where the patient is, and patients are willing to tell us what’s happening – all we have to do is ask.
Ever since learning about this work, I coudn’t wait for there to be shareable resources for other people and organizations interested in learning from their own patients/families/communities. It includes interview guides, planning guides, and tracking tools.
I was delighted both to see Estee this week, and see the publication of this comprehensive toolkit on the Care Management Institute website, for the whole world to access and use. It’s linked above. It will help you listen to the people you serve in a way that will help you and they be great leaders for others.
See what you think, comments welcome, which I’ll pass on to Estee. Her contact information is also in the guide if you would like to connect with her directly.