“What are PHRs Good For?” : Presentation at AHRQ Annual Conference September 14, 2009

Attached below are the slides from the presentation I gave yesterday at the Agency for Healthcare Quality and Research Annual Conference, entitled “PHR’s What Are They Good For?

An important thing I learned about yesterday’s session is that it was the first ever annual conference session in AHRQ’s history that was not moderated by an AHRQ staff member or grantee. This speaks to the openness with which AHRQ is approaching this content.

Slides (click on any to see full size and go backward and forward):

The room was full but not packed; however, some of the most important and influential people in my growth and development as a supporter of patient empowerment were present, including Pat Sodomka, from the Medical College of Georgia, Josh Seidman, from the Center for Information Therapy, and fellow panelists John Moore and James Hereford, from Chilmark Research and Group Health Cooperative, respectively. In addition, new influencers Regina Holliday and Christine Kraft were also present, taking time from their busy schedules to be there for patients everywhere. I was allowed to tell Regina Holliday’s story to this audience, a great honor.

In any event, the packed-ness of a room doesn’t matter to me anymore; the conversation and learning now happens socially after the event. So, any presentation I prepare is designed to start a conversation in the room and far beyond it.

If you’re read my writings, I think PHRs are good for a lot of things, and with great thanks to the following organizations, I was able to present actual data showing how personal health records change care for the better, reactively and proactively:

  • Kaiser Permanente Internet Services Group
  • Kaiser Permanente Internet Services Group – Web Analytics
  • Kaiser Permanente Utility for Care Data Analysis
  • Kaiser Permanente HealthConnect and kp.org SmartBook for Value Realization and Optimization (and related data from the Colorado, Southern California, and Northwest regions)
  • Pew Internet and American Life Project , with on-the-spot-help from the informative Susannah Fox

Also, the videos show in this presentation are available on demand, on the Kaiser Permanente YouTube channel. Feel free to view at your leisure.

To support the request to produce a 508-compliant presentation, I have uploaded one to slideshare (link below). Of course, all comments and questions are welcome.

PHR's : What are they good for (508 COMPLIANT VERSION)


Hi Ted,

Great presentation! I'm wondering if KP has published any of these findings? At the moment, I'm particularly interested in the After Visit Summary (AVS) patient satisfaction information.



Dear Cindy,

The AVS information is not published in the peer reviewed literature, but I did get permission to share it externally. This is the challenge of the peer review process in terms of getting useful information out there. Where relevant, I included the medline reference at the bottom of each piece of data in the presentation,


Ted Eytan, MD