I am here at the WIxRed Conference in Washington, DC, the annual conference of the Center for Information Therapy and in my comments, decided to include some information about the work I am doing with California Healthcare Foundation to connect Californians to good chronic illness management. I mentioned that this is the first time I have posted a project “in evolution” for the world to assess and give feedback. Crowdsourcing my job – let’s see how it goes, and thanks to CHCF for allowing me to give this a try.
A few pics, first (click on any to see larger size)
One of the important aspects of this work is the employee / patient perspective. We are looking to include a patient / employee advisor in planning the project, and a conversation I had just now confirms how valuable this could be.
I was told that in many workplaces, there are rules about bathroom breaks, ie when they can be taken. Because of this, some patients will skip taking blood pressure medication that may require more trips to the bathroom.
It was so interesting for me to hear about this because at the very same time, I’m reading “Nickel and Dimed: On (Not) Getting By in America” (Barbara Ehrenreich) which brings home the reality of modern workplaces for those making minimum wage (or less). Look for that review in the next few days.
I’d like readers to think about this example, and give me more ideas if you would – what are some ways that a chronic illness impacts your work life, even for illnesses that some people don’t think about? What are the a ha’s that maybe the medical system isn’t aware of? Thanks for your input. The example above is a reminder of the value of patients as partners in planning and implementation.