I’ve done more than 10,000 surgeries and they had little emotional impact on me because I was shut down. There’s no emotional attachment. I know I did it; I earned a good living; I remember things people wrote and cakes people made for me, but there’s no attachment. It’s only after I transitioned that everything … Continue reading TEDMED Blog : Examined Lives: An MD on living and helping to guide the evolution of transgender health
A lot happened in health last week, in many dimensions. TEDMED (@tedmed) was a part of it for me. I’m not going to try summarize (because I’ll miss A LOT) but I will add my experience (it’s my RSS feed, after all :)). The hive The Hive, brought to you by… For the people and … Continue reading TEDMED
This is a blog post written by my community colleague Jess Jacobs (@Jess_Jacobs).
When I saw her at TEDMED and she told me about the patient experience around the diagnosis of here syncopal spells, I think I suggested she write a blog post. I’m not sure – I think I said that if these non-patient-centered approaches to care happen to everyone and no one says anything about them, they will continue.
So she wrote this blog post telling her story.
She did a beautiful job documenting things through photos ( one of my favorite things ) and in her story shows the difference between “data” and “facts”. “Data” are things like “X% of hospitals are using electronic health records,” or “100% of the time, patients should be able to access their medical records.” “Facts” are what happens at that highest level of the health system, where the patient receives services.
Read Jess’ story to see if you can see the difference between data and facts. We’re bummed because the facts don’t match the data.
Who knows, maybe the system that created this experience will go on stage at TEDMED and tell the audience that if the patient they disappointed is out there that they’re sorry, too.
- Role of the Patient is one of the TEDMED Great Challenges, Join us in posing questions now
- Measuring Patient Experience 2.0 – A conversation with Phil Marshall, MD
- TEDMED Blog : Examined Lives: An MD on living and helping to guide the evolution of transgender health
- TEDMED 2013 Great Challenges: Role of the Patient – Your Turn
Nice thing about Google+ Hangouts on Air is that they automatically post to YouTube…. Here’s the video, it was a lot of fun, and it was only the second or third hangout that I’ve done. I figured out half way through to not speak so loud in to the mic, so apologies if you have … Continue reading TEDMED Great Challenges Role of the Patient – Video of first Google Hangout
It’s time for answers that are not from me I last posted about the TEDMED2013 Great Challenges: Role of the Patient in September (see: Role of the Patient is one of the TEDMED Great Challenges, Join us in posing questions now | Ted Eytan, MD), when I appealed to the community to ask questions. Now is … Continue reading TEDMED 2013 Great Challenges: Role of the Patient – Your Turn
I consider this to be the “decade of the patient,” which to me means patients will be more involved and more central to what we do in health care than ever. This includes not just access to the information in their medical records, but in the design and operation of the health system itself. Until … Continue reading Role of the Patient is one of the TEDMED Great Challenges, Join us in posing questions now
Findings from RWJ Physicians Daily Life Survey Last week was an interesting confluence of learning and experience with iconic organizations in the health care world. During the week I was: Helping to moderate a conversation on the Robert Wood Johnson Foundation Community on “Health Care’s Blind Side“ Watching TEDMED Doing the above at the American … Continue reading Exploring Health Care’s blind side with RWJF, AAMC, and TEDMED – its vision is improving