“I will not stop until we have the right to see our own information” – Part 2 -2015

"I will not stop until we have the right to see our own information" - Part 2 -2015

This is the scene in which I encountered Regina yesterday.

It contrasts so sharply to the one I saw her in on July 13, 2010, the day Meaningful Use regulations were announced.

Then, Regina stood next to Kathleen Sibelius as she unveiled Meaningful Use to the world.

The difference in images between what I saw yesterday and 2010 is striking – from filling the scene to being just a small part of it.

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#nhssm : the RCGP’s Patient Online: The Road Map

#nhssm : the RCGP’s Patient Online: The Road Map
Recently the Royal College of GPs (RCGP) launched their Patient Online: The Road Map document which sets out how patients and GPs will be able to interact online over the next few years. I wondered how many patients actually knew that Patient Online existed.

Currently only 1% actually have access to any of the facilities, why? The answer is simple; the functionality has not been enabled by the practice. In fact only 37% of GP practices have actually enabled the functionality. As a patient I find that staggering. 42 million people have taken the time to register to say they wish to use the facility yet the “on” button hasn’t yet been pressed.

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Now Reading: The sustained psychological distress from not sharing information with patients

Now Reading: The sustained psychological distress from not sharing information with patients

The title of this post is a riff of a line written by our ancestors in 1991, that I loved so much (see: Now Reading: “Concern that sharing information with patients may cause sustained psychological distress is probably unfounded” | Ted Eytan, MD). Back then, McLaren, et. al, had decided to stop pleading with the medical … Continue reading Now Reading: The sustained psychological distress from not sharing information with patients

73 Cents, The film starring…Regina Holliday

73 Cents, The film starring…Regina Holliday

On a mission I saw the http://73centsfilm.com/the-film/ for a second time this weekend, at Our City Film Festival, in Washington, DC. Hard to believe that we are almost at 4 years since the mural was started. And still really really hard to believe that Regina (@ReginaHolliday) started painting within a week of her husband’s death. … Continue reading 73 Cents, The film starring…Regina Holliday

Now Reading: Do people who use PHRs use health care more?

Now Reading: Do people who use PHRs use health care more?

Palen TE. Association of Online Patient Access to Clinicians and Medical Records With Use of Clinical Services. JAMA: The Journal of the American Medical Association. 2012;308(19):2012.[Accessed November 21, 2012]. Bates DW, Wells S. Personal health records and health care utilization. JAMA : the journal of the American Medical Association. 2012;308(19):2034–6. Therefore, the findings reported by … Continue reading Now Reading: Do people who use PHRs use health care more?

Photo Friday: OpenNotes Summit Theatre, Washington, DC, USA

Photo Friday: OpenNotes Summit Theatre, Washington, DC, USA

Brian Quinn, Farzad Mostashari, MD, Michael Meltser, JD, Tom Delbanco, MD, Jan Walker, RN I’ve written a bit about OpenNotes (@myopennotes) already, so I’d like this post to tell a story via photographs. At one point yesterday, another attendee said to me, “Ted, think about this as theatre,” which I did. You had: Health system CEO’s and other … Continue reading Photo Friday: OpenNotes Summit Theatre, Washington, DC, USA

Now Reading: OpenNotes results are HERE – “little impact on doctors, 99% of patients recommended continuation”

Now Reading: OpenNotes results are HERE - "little impact on doctors, 99% of patients recommended continuation"

Delbanco T, Walker J, Bell SK, Darer JD, Elmore JG. Inviting Patients to Read Their Doctors’ Notes : A Quasi-experimental Study and a Look Ahead. Annals of Internal Medicine. 2012;157(7) Goldzweig CL. Pushing the Envelope of Electronic Patient Portals to Engage Patients in Their Care. Annals of internal Medicine. 2012;157(7):525–526 Meltsner A. A Patient’s View … Continue reading Now Reading: OpenNotes results are HERE – “little impact on doctors, 99% of patients recommended continuation”