Tag Archives: patients want their data

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#nhssm : the RCGP’s Patient Online: The Road Map -
Recently the Royal College of GPs (RCGP) launched their Patient Online: The Road Map document which sets out how patients and GPs will be able to interact online over the next few years. I wondered how many patients actually knew that Patient Online existed.

Currently only 1% actually have access to any of the facilities, why? The answer is simple; the functionality has not been enabled by the practice. In fact only 37% of GP practices have actually enabled the functionality. As a patient I find that staggering. 42 million people have taken the time to register to say they wish to use the facility yet the “on” button hasn’t yet been pressed.

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Now Reading: The sustained psychological distress from not sharing information with patients


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Woods SS, Schwartz E, Tuepker A, et al. Patient Experiences With Full Electronic Access to Health Records and Clinical Notes Through the My HealtheVet Personal Health Record Pilot: Qualitative Study. Journal of medical Internet research. 2013;15(3):e65.

The title of this post is a riff of a line written by our ancestors in 1991, that I loved so much (see: Now Reading: “Concern that sharing information with patients may cause sustained psychological distress is probably unfounded” | Ted Eytan, MD). Back then, McLaren, et. al, had decided to stop pleading with the medical [...]

73 Cents, The film starring…Regina Holliday


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On a mission I saw the http://73centsfilm.com/the-film/ for a second time this weekend, at Our City Film Festival, in Washington, DC. Hard to believe that we are almost at 4 years since the mural was started. And still really really hard to believe that Regina (@ReginaHolliday) started painting within a week of her husband’s death. [...]

Now Reading: Do people who use PHRs use health care more?


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Palen TE. Association of Online Patient Access to Clinicians and Medical Records With Use of Clinical Services. JAMA: The Journal of the American Medical Association. 2012;308(19):2012.[Accessed November 21, 2012]. Bates DW, Wells S. Personal health records and health care utilization. JAMA : the journal of the American Medical Association. 2012;308(19):2034–6. Therefore, the findings reported by [...]

Photo Friday: OpenNotes Summit Theatre, Washington, DC, USA


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Brian Quinn, Farzad Mostashari, MD, Michael Meltser, JD, Tom Delbanco, MD, Jan Walker, RN I’ve written a bit about OpenNotes (@myopennotes) already, so I’d like this post to tell a story via photographs. At one point yesterday, another attendee said to me, “Ted, think about this as theatre,” which I did. You had: Health system CEO’s and other [...]

Now Reading: OpenNotes results are HERE – “little impact on doctors, 99% of patients recommended continuation”


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Delbanco T, Walker J, Bell SK, Darer JD, Elmore JG. Inviting Patients to Read Their Doctors’ Notes : A Quasi-experimental Study and a Look Ahead. Annals of Internal Medicine. 2012;157(7) Goldzweig CL. Pushing the Envelope of Electronic Patient Portals to Engage Patients in Their Care. Annals of internal Medicine. 2012;157(7):525–526 Meltsner A. A Patient’s View [...]

OpenNotes results are coming, OpenNotes results are coming!


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Three years ago (!), I wrote this post (Now Reading: “Concern that sharing information with patients may cause sustained psychological distress is probably unfounded” | Ted Eytan, MD) that recapped what is now almost 40 years of reasoning, wishing, and hoping, that patients could have access to their own medical records. Remarkable to think that [...]