Posts Tagged ‘google’

The Real Truth about Apple and Google and Arrington

August 27th, 2009 | Popularity: 2%
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  • The Real Truth about Apple and Google and Arrington – A fascinating look at the upheaval of the telephone/carrier industry brought about in a roundabout way by Apple and Google. What are the similarities in other industries, from trains, to planes, to music, and ultimately health care?

Remarks from David Kibbe, MD, about CCR | Functional Status, and Google Health

May 7th, 2009 | Popularity: 18%
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I’ve decided to give the continuation of this discussion (started here) it’s own post, to freshen it up a bit.

ePatientDave asked:

Long story short – the CCR schema is not freely available ($100) so pts can’t discuss whether Goog should have implemented other Types for Functional Status. They only did Pregnant and Breastfeeding. Some of us wanna know what they other available values are.

David Kibbe wrote us both in e-mail:

Dear Dave and Ted: It’s great to have these questions asked, and important to respond. The Functional Status data object (section) of the CCR standard may include any condition that the user/implementer thinks is related to functional status. Google Health has given as examples pregnancy and breast feeding, with SNOMED codes, but one might also enter “BKA right leg,” or “severe respiratory impairment due to COPD,” with codes for those.

The reason for this: There is no formal vocabulary within the industry or profession for Functional Status, and so the standard doesn’t refer to one. Perhaps there should be, and I think that as people start to use the CCR standard for health data exchanges, it may be one of the things that the industry needs and then creates. The same can be said for the CCR standard’s data object (section) on Advance Directives. While there are some industry conventions for descriptors here, as “do not rescucitate,” and codes may be found for these, there is no universally agreed up set of codes that could be plugged in here that everyone would accept.

Lots and lots of work to do! We’ve laid the path, but we certainly haven’t put in all the sign posts, paved the road with asphalt, or installed traffic signals!

One other comment: The CCR standard is not a formal data model. It could very well become the basis of one. But people think, sometimes, that this is all perfectly arranged and designed, to the point of being a data model. And that would be correct.

Hope this is helpful.

I think that the Participatory Medicine folks should help the CCR standard community to build a CCR Wiki that would move this all along a bit faster. What do you think?

Kind regards, DCK

And a follow-up from David:

Steven and I have also done a number of CCR Training Workshops for programmers and developers, the so-called “deep dive” into the CCR standard. And I’ve started an entry in Medpedia on the CCR standard. http://wiki.medpedia.com/Continuity_of_Care_Record_(CCR)_Standard

As well as one from Steven Waldren, MD:

There is a fair amount of material on http://www.ccrstandard.com about the CCR. I also did a video tutorial that goes over the schema at a high level. It can be found here: http://www.ccrstandard.com/schemaoverview

Thanks to all for their support of this conversation being transparent.

As an aside in my own work with a colleague, we’ve discovered “At this time, Google Health does not support diet and exercise information, nor images such as x-rays.” (From their Third-Party Services Overview).

Clearly we have some more work to do for these standards and the services to use them to capture information that’s as health related as medications or lab tests (see my series of posts on Safeway’s Food PHR, FoodFlex)

“We Will All be Patients Someday” – Health 2.0 meets Information Therapy, Boston, MA

April 27th, 2009 | Popularity: 27%
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I am back from the spring Health 2.0 Conference in Boston, MA, this time combined with Information Therapy, which in my opinion was both a great thing to do in terms of participants, and in terms of bridging the Health 1.0 and Health 2.0 worlds.

Photos below, click on any to enlarge

Some of my favorite health care leaders were in attendance of course, including Holly Potter, Kate Christensen, MD, Paulanne Balch, MD, Anna-Lisa Silvestre, Diane Gage Lofgren, James Hereford, ePatientDave, Trisha Torrey, Susannah Fox, Gilles Frydman, Dan Hoch, MD, Alan Greene, MD, Danny Sands, MD, Jay Parkinson, MD, Jane Sarashohn-Kahn, Lygeia Riccardi, as well was excellent co-hosts Matthew and Indu from Health 2.0, and Josh Seidman, from The Center for Information Therapy.

(Is this dangerous? Attempting to list all of your favorite people on a blog post? I suppose I could just link to my Twitter friends list – I hope everyone remembers what I said on stage about loving everyone and that you’ll add a comment if I’ve forgotten..)

My bias in coming to Health 2.0 is to look for connections and innovations for the established health care system, and I think the combination here supported that, beginning with a debate entitled, “Ix and Health 2.0 – Synergies and Tensions?” moderated by Jane Sarasohn-Kahn, probably one of the few humans alive who can moderate this many energetic people at once. Regardless of the outcome, though, the mere fact of the conversation is evidence that we all need each other, because when we are patients, we are going to need everything we can get to help us be successful.

The Patient Takes Center Stage, from the balcony

Twitter - SusannahFox- @epatientdave should be on ... (20090427)

The moment of most impact for me was when I was on stage, following a short demonstration of

kp.org (see tomorrow’s post), when the topic of ePatientDave’s work with Google Health and Beth Israel Deaconness (well represented by Roni Zieger, MD, and John Halamka, MD) was mentioned ( start here if you want to get up to speed on this great story ) .

Here’s what happened : When the topic was first brought up, and there were a few audio problems, we heard “Speak up!” coming from the balcony on the right. I turned to fellow panelist and said, “Voice of the patient!” Next, as the discussion was unfolding, with Roni and John describing what they had done in partnership with Dave, I noticed this tweet on the monitor in front of me: “@epatientdave should be on stage too #health2con“.

As Dave got up, in the balcony, to begin talking about his experience, I reflected on the tweet and motioned him to come down, but instead, a really interesting thing happened. Dave stayed up on the balcony, microphone in hand, and spoke to the entire audience below. It was a perfect moment at a perfect time for me (and I think for the rest of the room), when a room of health care leaders looked up to our patients, physically as well as emotionally. I don’t know if there’s a photograph out there of this scene, but it’s gotta be priceless. Even though I could not find one for this post, I like this description of things from Susan Carr.






Electronic health records raise doubt – The Boston Globe

April 13th, 2009 | Popularity: 14%
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Electronic health records raise doubt – The Boston Globe – Our very own e-patient Dave is profiled in the Boston Globe about his experience porting records to Google Health. The experience demonstrates the importance of accuracy as close to the patient-physician interaction as possible.

The story has apparently now been elevated to a full blown crisis by ZDNet.

Letting Google Take Your Pulse – Forbes.com

February 6th, 2009 | Popularity: 10%
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DCist: WMATA On Google Transit: "Not In Our Best Interest"

December 18th, 2008 | Popularity: 19%
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  • DCist: WMATA On Google Transit: “Not In Our Best Interest” – This is an example of the critical mass that can build around consumers wanting access to their data (in this case, the scheduling data of public transit) in different ways, once it is available in other places. Do I have to go to the WMATA Web site to do all of my transit planning, or can I use the built in application on my iPhone also? If other public utilities have already begun collaborating, shouldn’t ours? Aren’t there analogies in health care (I’m thinking “revolution of rising expectations“).

9.1M Users for Google and/or Microsoft Health Platforms « Chilmark Research

November 25th, 2008 | Popularity: 13%
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Free gift with every purchase from Apple, Inc., every search from Google, Inc., and every amazing education from UC Berkeley: Equality

October 26th, 2008 | Popularity: 27%
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I am a customer of the first two organizations and an alumnus of the third. I thank the faculty and especially my fellow students at the University of California for teaching me to appreciate the value of diversity where I work and where I live.

To recap the data that I linked to in this mini-photo essay:

All three organizations agree (here, here, and here) that their positions are based on their interest in supporting diverse communities that can compete locally and globally. The best organizations and communities in the world see diversity as an asset, which is why I work for one, and why I live in one. Respect creates the most powerful stickiness there is.

Here’s the Google Chrome Browser Comic Book: Using cartoons to communicate

September 2nd, 2008 | Popularity: 14%
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The Health 2.0 Blog: Google Health beta — What's really new and different?

June 2nd, 2008 | Popularity: 24%
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Cerner Disses Google Health. Surprised? | e-CareManagement

June 2nd, 2008 | Popularity: 21%
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Bioethics Forum – Google Health: Organizing Your Medical Information

May 26th, 2008 | Popularity: 24%
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  • Bioethics Forum – Google Health: Organizing Your Medical Information – Comment on this blog about a method to display drug/device ads to physicians reviewing a patient's medical record. Is this sort of thing different than a physician reviewing a medical record while writing with a branded pen on branded paper that sits in their office in front of their computer, next to their drug sample cabinet (if they allow these things in their practice). Shouldn’t the conversation be about being an unbranded doctor instead of Google’s implementation?

McCain Makes Health Records Public – Could he do it using CCR?

May 24th, 2008 | Popularity: 24%
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Flip this A3 : Project Plan for Connectivity for California Consumers

May 23rd, 2008 | Popularity: 51%
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This post contains the A3 Document, or the Project Plan, for Connectivity for California Consumers. I have been posting some of the data that supports this plan on this blog (click here to see them all). In addition, I have been working with staff at California Healthcare Foundation and potential stakeholders to improve the plan.

For those of you unfamiliar with the A3 format, it is designed to (a) tell a story and (b) incrementally improved to the point that the actions are clear at the time a project is launched. It may be revised once a day or even more often. The process of discussing the project and making improvements is called “nemawashi.” I am using this blog for extended nemawashi, so please post your comments.

Since an A3 tells a story, starting on the left, going down, and then on the right, I will summarize the story here. Feel free to print out the A3 and follow along (A3 means “11 x 17″ paper. You may have to shrink to fit on letter size).

Issue & Focus

  1. The California Healthcare Foundation is dedicated to the improvement of the lives of Californians managing chronic illnesses.
  2. There are many community stakeholders involved in supporting this goal; their work could be improved by making connections to each other that are meaningful for patients.
  3. This is part of a broader strategic plan to support the objective of involving patients and families in all aspects of their care. This is the identified gap to be closed through this work.
  4. California Healthcare Foundation is seen as catalyst and partner for patient engagement in California

Current Condition

  1. There are well known gaps the care of people with high blood pressure
  2. The impact of these gaps is distributed across stakeholders differently compared to other chronic illnesses, which includes a strong productivity-loss component, due to the high prevalence of the condition in employed populations (see charts).
  3. There are examples of employers and technology companies approaching these gaps in hypertension and other chronic illnesses that can be studied.

Problem Analysis

  1. Lack of access to care accounts for only 10% of poor blood pressure control; there is a physician component in setting goals, and a patient component in operationalizing those goals, that may not be accomplished in physician visits alone.
  2. Patients who are not seen at least every 12 months are at greater risk for non-adherence
  3. The societal costs of inadequate management are spread diffusely; few organizations are able to to see the total harm from this perspective
  4. There are few models outside of integrated care systems of using non-visit-based approaches to managing chronic illness.
  5. We are just entering an era of interoperability, with many solutions not yet integrated into the value chain of patients and payers

Target Condition

This pilot seeks to create a functioning ecosystem that supports chronic disease management across the lifecycle, with the best candidate being hypertension

Action Plan

We began by interviewing example employers, health care providers, and technology providers to understand which approaches and components appeared most promising. At this time, it seems most reasonable to approach this first from the employer perspective.

Next step will be to convene a group of potential partners in June or July, 2008, at California Healthcare Foundation, to discuss how pieces would fit together.

A presentation would be made to the CHCF Board in the fall, with funding and activity to begin in 2009.

Cost / Cost-Benefit / Waste Recognition

There are recognized wastes, which include unnecessary visits for blood pressure monitoring, inadequate medication therapy, and inadequate use of the health system, for patients who have not been seen in the past 12 months.

There are costs including, technology costs (although the goal is not to build anything new), and realignment of incentives to support non-visit-based care.

Followup / Unresolved Issues

Points of concern and planned countermeasures

  1. What is the metric for patient access? (Pacific Business Group on Health is working on an employee engagement survey; metrics for patient access to their health data may need to be developed)
  2. How can this complement the launch of both a P4P measure for blood pressure management, and a HEDIS “Relative Resource Use for Uncomplicated Hypertension” measure for 2008?
  3. Data for presenteeism and productivity loss does not seem intuitive (I have reviewed this in depth and we can bring in clinical champions to verify)
  4. Partners and aligned interests (will do due diligence to support cooperative business models of partners)
  5. How to engage patients in things like biometric monitoring and blood pressure control (will look at plan design options, but most importantly will go to the factory floor, and will bring an employee/patient advisor on to the team)

So that’s the script that goes with the story, more or less. Comment away, and keep in mind that each comment will change the A3 a little every time.

Re: Where is the Best Discussion of Google Health happening?

May 22nd, 2008 | Popularity: 32%
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Colleague in patient empowerment Susannah Fox e-mailed me this question and so we thought we’d start one.

Jay Parkinson, MD, linked to a discussion happening on Digg in his blog. E-patients is also hosting an informed discussion on their blog.

Is it cliche to say that this is evolutionary, not revolutionary? I think it’s of benefit to patients and our profession that a dialogue has started around moving health care data in a standardized way to a place where people can aggregate and do things with it to improve their health. A year or two ago, it was hard to think about a standardized extract of a medical record that you could send from an EHR system except in very specialized situations. Now you can do with several partners, Google being the most recently announced option.

I didn’t even think about writing a special post about it, even though I thought, “Cool, this work will support the ideas I am exploring with the California Healthcare Foundation, that patients can be involved and active in their care, across health environments (health system, work, play).” So rather than writing about it, I just incorporated the possibility into the work we’re already doing, which is great.

I think of privacy as a state of being that allows a person to feel comfortable seeking health care regardless of the issue. This is a good place to be, and when that state of being doesn’t exist, people will seek it out, even if it means not seeking needed care, which could be devastating both to patient and health system. At the same time they seek comfort, they also want to build confidence in their ability to manage their health by having as much information their care as possible. In systems where patients have good access and trust, the care is better, and it feels great (and is great) to provide and receive care in that setting. Both things are important, we should not sacrifice one for the other; every patient deserves to achieve their life goals through optimal health.

A Few Links Regarding the Continuity of Care Record (CCR) Standard

May 22nd, 2008 | Popularity: 80%
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May 15th through May 18th:

Voicethread; Zotero; Nice Summary of Medical Home from Deloitte

April 3rd, 2008 | Popularity: 82%
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April 1st through April 2nd:

Physicans and Blogs; Explaining the RUC; Nice Use of Second Life

March 22nd, 2008 | Popularity: 39%
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March 18th through March 19th:

  • The ‘World Wide Computer’?Another HAL? – Businessweek’s Review of “The Big Switch” – I used it for comparison
  • NPR: Doctor Blogs Raise Concerns About Patient Privacy – I agree with points raised – a patient should never seek care and then discover that they have been written about on a blog. Instead, they should receive a copy of the medical record that has been created about them. At the same time, physician bloggers are doing something very important – they are testing the boundaries of transparency, to support a more accountable health care system. If anyone saw the 60 minutes story about Dennis Quaid and his family, the rationale for this become very clear.
  • What Every Physician Should Know About the RUC – January 2008 – Family Practice Management – The information is useful. As primary care providers I think we need to be careful to include our specialty colleagues in the conversation, not distance themselves from it. As a member of a large multispecialty medical group, I know that there is interest across the physician community in supporting community health and the best experience for patients.
  • MindBlizzard blog: Virtual Healthcare 2: Palomar Pomerado Health – All right – More news about the utility of Second Life – testing a hospital before it launches
  • What is the ROI on employee suggestion systems? – A nice example from the toothpaste industry. But not necessarily one that supports the evidence, that far less toothpaste than people think is needed to protect teeth…..Maybe a customer suggestion system might be in order.

Now Reading: The Big Switch, by Nicholas Carr

March 18th, 2008 | Popularity: 27%
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This book was recommended to me by another Health Information Technology professional, and I really got a lot out of … the first half of it. I was so on the fence about what I thought about it as a whole that I looked up both the review of the book on BusinessWeek.com, and I read Nicholas Carr’s article “IT Doesn’t Matter,” from the Harvard Business Review to check on my thinking.

I’ll start with the first half, which was very engaging and engrossing, comparing the rise of the electrical industry to the commoditization of information technology. I have read about the electrical industry before, but not so well laid out. There are many parallels worthy of drawing, such as the way our culture was deliberately and unintentionally changed as a result of electrification. Fascinating, especially around the way that managing a household changed – the same number of hours doing house work, just higher expectations and more technical skill required. This is where the HBR article also helped a little bit, because the concepts are important for health information technology. In the article, he says

In the earliest phases of its buildout, however, an infrastructural technology can take the form of a proprietary technology. As long as access to the technology is restricted – through physical limitations, intellectual property rights, high costs, or a lack of standards – a company can use it to gain advantages over rivals.

That sort of sums up the state of Health Information Technology, and a nice analysis done of this recently also alluded to the idea that there’s an inertia present among vendors that’s keeping HIT in this phase.

That’s unfortunate.

That HIT though. What about the rest of IT within a health care company – the storage servers, the document creators, e-mail, etc. He says

In the long run, the IT department is unlikely to survive, at least not in its familiar form. It will have little left to do once the bulk of business computing shifts out of private data centers and into “the cloud.”

The HBR article helps here as well, where he says that the IT buildout in most companies is complete, and “Commodities can be essential to business without being essential to strategy.”

The second half of the book is about the “World Wide Computer” and the implications that it has for privacy and the general threatening of industries as we know them today. I think the data about the publishing industry is compelling and of note – 13 percent, or 150,000 jobs lost since 2001. This potentially awaits any industry that is disintermediated.

I thought, though, that this section was written for a different generation of reader, though, one who has not grown up with computers. It’s a nice overview and a lot of the truths make sense, but they didn’t seem like revelations to me in my GenX state. I was really hoping for more detail on how the new IT department would be like and how companies were moving to things like employee asset management and software as a service.

So, maybe worthy of a read, at least the first half, from your local library or book rental service (more on this in a future post).

There are some provocative ideas and I would be interested in learning about companies that are moving to software as services across the enterprise, so reduce the waste of excess storage and maintenance of data centers. If anyone knows of companies doing this, let me know either in the comments or by contacting me directly.

Innovative Reimbursement for EHR-using physicians; 9 Principles of Innovation (Google); Twitter; Services for Farm Workers Online

March 12th, 2008 | Popularity: 28%
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March 7th through March 11th:

Health 2.0: Interesting new EHR Platform, Microsoft and Google, Wrapup

March 5th, 2008 | Popularity: 42%
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Health 2.0 is now over, and it was a great experience. I am not the only person in the room that remarked that they felt less innovative than ever in this room of innovators. The patient experience was front and center. I / we need to see that, often.

The post-lunch surprise was a demo of Microsoft’s HealthVault, accompanied by a post-demo comparison of the HealthVault and Google Health product by Missy Krasner. Overall a great discussion. I’m happy that more, rather than less, is happening here.

From my perspective I thought a big splash was made by the new EHR platform that Jay Parkinson, MD, demonstrated, manufactured by Myca. It has a compelling patient portal aspect as well. Interesting to see what happens when people start from scratch and build things the way they want to use them.

We Want it; We Don’t Want it; and Google

March 4th, 2008 | Popularity: 15%
4 comments

Actually we do want access to our own health information. The title is a reference to three things:

1. Personal Health Records, why PHRs May Threaten Privacy, published by the World Privacy Forum.

I think this is less about not using a Personal Health Record (PHR) and more about understanding HIPAA, and its useful. The paper states clearly that the discussion is a different one for HIPAA-covered entities (such as Kaiser Permanente and Group Health). I would recommend that people review the information or at least the summary document to be familiar with what an organization can or can’t legally do with personal health information. I think that’s the key – even if an organization states it is not going to do something, there may be no legal protection if they change their mind.

So could a personal health record threaten privacy? Sure. Is it a reason not to use one? That’s a personal decision of benefits vs risks. I think it would be a challenging statement to say that these concerns should keep all Americans from having access to their own health information, and certainly the situation is different for HIPAA-covered entities, where there is both access and legal protections. I also think that we should not rely on information technology to create trust for us using software, or the system we have long been waiting for will never arrive.

2. Deloitte’s 2008 Survey of Health Care Consumers, published by the Deloitte Center for Health Solutions

This is a very well done representative survey sample of Americans with regard to health care with a focus on online access an alternative treatments. The conclusion is very clear: consumers want access to information created by themselves with their physicians, hospitals and health plans. And only 6 percent have this access. So, a huge discrepancy between what people want and what they are getting.

I keyed in on some very important statements, that buttress a fact from my travels, that “uninsured does not mean uninformed”:

The attitudes and preferences of the uninsured mirror those of the insured

Interest in online appointment scheduling, e-mail access, and online access to medical records and test results is equally high in the uninsured and insured groups.

There was a similar attempt at creating “personas” of the various consumer groups in this paper, much as we did here, for the stakeholders we are working with. I would say that the technique is less effective in this report because the personas aren’t based on standard terms and are likely to be forgotten. In the health system world, it seems easier to segment by known groups, like Gen X, Gen Y, baby boomer, or by insurance status or by care system.

One other item of note is that 60% of respondents state that they are on medications. That’s an impressive number, especially when I think about the power of the compounds that we prescribe today. Having access to one’s information is more than a convenience. I wrote about a real-life example that I encountered recently, on my blog.

3. Google. See for yourself. I think this ties together a lot of the ideas above. John Halamka makes some comments about HIPAA and the Google product based on his experience being on the Google Health Advisory board. I think patient-centeredness may become mainstream. Comments are welcome of course.

My comments in the Seattle-PI Health Blog; Characterizing Respect for People in a LEAN organization; A Cooking Light Best City (Washington)

February 23rd, 2008 | Popularity: 27%
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February 20th through February 22nd:

Toyota misunderstood by Businessweek; Enterprise 2.0 from Google

February 10th, 2008 | Popularity: 30%
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February 7th through February 9th:

More on Scott Haig, MD; Retail clinics moving ahead in MA; Pharmaceutical Reps regulated in DC

January 11th, 2008 | Popularity: 34%
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Managing my Google identity; Digital Footprints report from Pew Internet & American Life

December 17th, 2007 | Popularity: 15%
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Susannah Fox, one of the most influential researchers in the work I do, sent me the latest report from the Pew Internet & American Life Project, Pew Internet: Digital Footprints, which is very timely for me.

I wrote recently on this blog about the value of Google Juice as opposed to PubMed citations (with the belief that the former is more important than the latter today), which comes with it the need to manage one’s identity online, in a world that is less controlled than PubMed. The report comes out coincidentally at a time when I have been looking at my digital footprint. As my name is on the unique side, it’s more likely that I will be Google-recognizable. This is a double-edged sword – on the positive side, it’s easy to find me and the things I am working on. On the not so positive side, it’s easy to find criticism about me, if it exists. From that perspective, I would propose the words of William Swanson (allegedly), “If you are not criticized, you may not be doing much.”
» Read more: Managing my Google identity; Digital Footprints report from Pew Internet & American Life

Baby Boomers and retirement; Case for Informed Optimism

December 3rd, 2007 | Popularity: 25%
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November 27th through December 2nd:

Payers and Patient-Centered Primary Care; Google; Quality info in MA

October 30th, 2007 | Popularity: 12%
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PCHIT links for October 26th through October 27th: