Posts Tagged ‘cpeh’

Now Reading: Putting (as high) a priority on patient experience as clinical experience (Data embedded)

May 10th, 2010 | Popularity: 5%
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The (Data embedded) part of this post is a new option (at least to me), care of the Community Health Data Initiative, which I wrote about previously.

The statement in this article:

Yet efforts to measure quality have focused predominantly on the clinical aspects of care, rather than on systematically meas- uring and improving patients’ experiences with care. This lapse seems indicative of a broader failure to recognize that these experiential attri- butes can translate directly into improved clini- cal outcomes for patients, often at a lower cost.

Caught my eye because of a wierd fracturing of the data I noticed when I was running it for @ReginaHolliday .

Take a look for yourself (again, thanks to CDHI and data.medicare.gov).

Here are national averages for clinical processes of care in hospitals:

Process of Care Measures – National Averages only

Here are national averages for patient experience with care in hospitals:

Survey of Patients’ Experiences – National – Top Box Scores only

Only top-box matters

Note, I only included the scores that are “top-box”, either 9 or 10 out of a 10 point scale or the answer “ALWAYS” to the experience question. Some people might say that this excludes the “sometimes” or “almost” answers, and I think the answer to this question is definitively answered by the Disney Corporations of the world (and read: If Disney Ran Your Hospital if you want the detail), who only look at the top-box score to judge their success. They think of % customers who rate them a 5 out of 5, and look for 90 % there, because that equals loyalty. Anything less is failure.

Clinical processes of care – 80′s to 90′s

Taking out the scores for fibrinolytic (which is complicated by factors like time/space/clinical condition) – these clinical things, which are “things you do to people” look like they are done most of the time. If these were scores on a medical school exam, they’d be A-, B+ not bad. Our hospitals deliver the medications that treat illness and prevent worsening of it. Note that there’s one patient experience-y measure in here – Home management plan of care for children with asthma – this isn’t a medicine you give to people, it’s a discussion that you have with people. The score there is 54 % on average. Let’s look at paitent experience now.

Patient experience of care 50′s – 70′s

So these are not “things you do to people,” these are things you do to empower people do something they mostly do on their own – heal. The highest score here is 80 % for “doctor always communicated well”. Look at the rest – pain control 68 %, would definitely recommend the hospital 68 %, always quiet at night 56 %. Let’s see,  getting scores like that on a medical school exam might rate in the C – F range.

How do we feel about the difference?

I’ll leave that as an open question for people to answer in the comments. And I’ll also say that I didn’t really connect these dots for myself until I read Christine Bechtel and Debra Ness’ (of The National Partnership for Women and Families) excellent paper (based on information from this campaign: @better_care )AND I saw the numerical data (combined with a strangely photographic memory, I’ll admit). So I’m connecting them for you here.

From my own experience i’ve observed a lot more of “let’s make sure the beta blocker is on board” in hospitals than I have “let’s make sure we always communicate well to our patients and their families.” In terms of igniting innovation, this is good, no, great news, because it means that there are a lot of good ideas that haven’t been tried yet. An no matter what anyone says, not everything has been tried before.

The even better news is that innovating here will do things for American health care beyond anything we’ve dreamed of clinically – it’s a big statement, and I believe it – here’s my presentation on this subject.


When can patients have their data?

December 15th, 2009 | Popularity: 6%
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What a challenging conversation this can be.

Kudos and sincere thanks to the National Partnership for Women and Families and its hosted Consumer Partnership for eHealth for hosting the discussion entitled ““How Access to Information Can Empower Patients and their Caregivers” yesterday. It was the right place, right time, right group of people. I think we nearly split the atom.

e-Patient Dave in his post on e-patients.net did a nice job of summarizing the feeling on the part of the patients in the room, so I’ll just post what was going through my mind here.

After showing the images that I previously posted on this blog (you can see them here), a question was asked about sharing of lab results, imaging results, physician notes, and the like.

As you can see from Dave’s review of things, there appeared to be a difference of opinion about “when.”

The problem I see with the response of “yes, they should have their results; however…” or “yes they should see their data, but…” is that it reminds me of so many conversations I have had that go something like this:

“Ted, minorities (such as yourself) should have equal rights, no question about that. Just not now.”

That’s the reality I have lived, and I think for someone who is struggling to be respected in our health care system, this is how responses like the above can come across, as Dave’s blog post shows. This is why I turned to Dave and Regina and asked them to provide their personal experience, which they did, and very passionately so.

Instead of wondering,”Should the doctor see the results first?” let’s ask a deeper question: “When can patients have their data?” And…in more and more health systems, the answer is “whenever they want it,” with off-the-charts satisfaction on the part of patients and clinicians.

Yesterday really helped me understand that this is not going to be an easy conversation, however, I’m happy to participate in it, and invite the patient to be in the room while it is happening.

Why? Because I may have gone to medical school, but I have not yet had stage 4 metastatic renal carcinoma or cared for someone who has.