Participatory Health: Online and Mobile Tools Help Chronically Ill Manage Their Care – CHCF.org – Another thoughtful (and great) piece from Jane Sarasohn-Kahn and the California Healthcare Foundation. Jane does a nice job pointing out that the future of participatory health very much includes doctors, plus a nice section outlining the future role of mHealth.
Posts Tagged ‘chcf’
Participatory Health: Online and Mobile Tools Help Chronically Ill Manage Their Care – CHCF.org
October 26th, 2009 | Popularity: 2% 1 commentTelehealth now: Why (in some cases) it may be healthier for patients to go online intead of to their doctor
October 1st, 2009 | Popularity: 6% 1 commentThis is a longer-ish piece that was commissioned by the California Healthcare Foundation earlier this year. It never made it into publication, so through the magic of Web2.0, I’m publishing it here.
I’ve re-reviewed the data below and feel it is still accurate, with the exception that I have found newer information that indicates that the rate of “masked hypertension” discussed below may be as high as 50%, rather than the 10% quoted.Enjoy and see what you think.
In June, 2008, I was asked by the California Healthcare Foundation to investigate the chronic conditions that might benefit from patient-centered health information technology applications in employed populations.
I assumed that we would likely target the 5% of the population that accounts for 50% of health care costs – the so-called “high concentration (of expenditures)” patients. Conditions accounting for these costs include mood disorders, diabetes, heart disease, asthma, and hypertension. High-concentration patients have several of these at the same time.
After I reviewed the data, spoke with national experts, shadowed physician visits, and spoke to patients, my colleagues at the California Healthcare Foundation and I physically stepped a group of California high-tech, employer, and health care stakeholders through to the conclusion that shocked me. It isn’t the smaller number of patients with multiple chronic conditions where the impact for patient centered health information technology is greatest. It is the enormous number of patients with one chronic condition where the greatest difference can be made. In the case of blood pressure, I believe the data points to the idea that the management of blood pressure in a doctor’s office without the use of telehealth may be unsafe. I learned that with telehealth, we have the opportunity to improve the quality, safety, and cost of a condition that affects one-third of the US population, as well as to rethink a paradigm to really put the patient at the center of care.
The opportunities to improve blood pressure control have been well characterized by the expert community interested in hypertension. In 2008, however, two significant pieces of work emerged to make the case for widespread telehealth implementation.
The first was the joint American Heart Association, American Society of Hypertension, and Preventive Cardiovascular Nurses Association Scientific Statement, “Call to Action on Use and Reimbursement for Home Blood Pressure Monitoring,” which introduced me to the work of Nancy Houston-Miller, RN, BSN, FAHA, a national expert in hypertension management and cardiac rehabilitation. The second was the publication of a multi-million-dollar randomized controlled trial of blood pressure management through a secure web portal at Group Health Cooperative in Washington State. The first piece consolodated the science and major issues around changing the way we manage blood pressure. The second piece provided definitive proof of the value of online interactions with patients in improving chronic condition management. In the study, there was a marked and significant improvement in blood pressure control when patients were coached and supported outside of the doctor’s office their community.
We know that today’s standard of care for managing blood pressure doesn’t set a very high bar for quality. The national rate of control of blood pressure (for most people, below 140 mm Hg systolic, 90 mm Hg diastolic, lower for some people such as those with diabetes) is 37%. In 2004, it was determined that the percent of patients leaving their doctor’s office with their blood pressure under control was 45%, or less than the odds of flipping a coin. Most patients with high blood pressure in the US are insured and have access to care – less than 10 % of uncontrolled hypertension is due to lack of health care use, so this is not a problem of lack of coverage. In fact, hypertension is the #1 reason for a visit to the doctor in the United States.
Within the in-person doctor visit, the numbers become even more concerning – about 20% of the time, a patient is diagnosed with high blood pressure in the office when they are really not hypertensive. This is known as “white-coat hypertension” and results in these patients being placed on medications, sometimes for life, unnecessarily.
About 10% of the time, a patient is not diagnosed with hypertension in the office when they do have high blood pressure. This is known as “masked hypertension.” According to Huston-Miller, this number may be even higher. Just as some people are thought to remember to floss their teeth a week before their dental appointment, the same happens with people and blood pressure medicine before the doctor visit. It’s therefore possible that many more patients are really not under control, with potentially devastating results.
An important issue I discovered is with the paradigm of today’s blood pressure management – the “data” needed to make decisions is localized to the doctor rather than the patient. Doctors say things like, “Come back in 2 weeks and I will check your blood pressure,” which gives the impression that the doctor’s role is to tell you, the patient, what is happening with your body. If this is how we frame the condition, is it any wonder that some patients think about medication as the kind of thing to take to make their doctor happy rather than themselves? When I put the data about errors in diagnosis, errors in treatment, and the fact that high blood pressure may account for 27% of cardiovascular disease events in women and 37% in men, I began to think that blood pressure management localized to the doctor’s office may not only be inadequate, it may be harmful.
Unfortunately, the cost for this level of quality is high – $51 billion per year in direct health care costs, and dwarfed by the indirect cost – around $300 billion per year. Why $300 billion? Studies have shown that for an individual person, the loss of productivity is not as great due to hypertension compared to other conditions. However, the number of people affected – over 65 million – takes a huge overall toll on employers, families, and patients themselves. The indirect cost is borne by all of society rather than the health care system, which may explain why health-system supported telehealth applications tend to focus on high direct-cost conditions, such as congestive heart failure.
Interestingly, the Center for Medicare and Medicaid Services and most major health plans understand the cost of misdiagnosis. They pay for a type of home-based diagnosis called because they have determined that enough patients can avoid unnecessary treatment this way. There’s even a CPT code (93784) that covers the following:
“Ambulatory blood pressure monitoring, utilizing a system such as magnetic tape and/or computer disk, for 24 hours or longer; including recording, scanning analysis, interpretation and report.”
This CPT code is rarely billed for, because the technology involved in “Ambulatory Monitoring” isn’t practical – it involves wearing an inflatable cuff on your arm for 24 hours straight.
A comparable CPT code for modern home-based monitors that are as accurate at predicting heart damage from high blood pressure with just two measurements a day could dramatically change this current state. Consumer purchased blood pressure cuffs are now able to store readings digitally and transmit them electronically for review against targets set by physicians.
Electronic transmission is important – 20% of readings written down by patients can be significanlty inaccurate. The detailed algorithm for diagnosing and treating is beyond the scope of this piece; however, one exists and few patients and physicians know about it, most likely because our system continues to emphasize the physician-visit so strongly.
The final hurdle I have considered is the one around patient engagement. This is the statment made to me so many times in the past year: “But Ted, patients really aren’t interested in monitoring their blood pressure/taking responsibility for their health.” Again, a review of the literature explodes this myth. Studies show patients actually perceive home measurement of blood pressure as the most preferred method compared to checks by their doctor, their nurse, or by themselves in the doctor’s office. Patients also have greater interest in their conditions that we give them credit for:
“It is very clear from the interview data that patients have their own ideas, and spend a lot more time thinking about their BP than is apparent in the average 10-min consultation in general practice.” (From: http://www.nature.com/jhh/journal/v17/n7/abs/1001582a.html – Rickerby, J, and J Woodward. “Patients’ experiences and opinions of home blood pressure measurement.” J Hum Hypertens 17, no. 7 (0): 495-503. )
The story of the opportunity our nation has through the use of telehealth is illustrated well in the example of blood pressure management. With a comprehensive approach to use telehealth, the use of the physician-office blood pressure check should significantly decrease, and the use of the home-based blood pressure check should significantly increase. Less patients would require medication. A change in paradigm will occur, from one of the patient asking their doctor for their blood pressure reading to one of the doctor asking the patient. In this way the talent and interest of patients and their families in managing their own health can be leveraged. With conversion of an existing CPT code that reimburses for legacy technology to one that reimburses for modern techology, physicians can be reimbursed for the congitive services they provide in coaching and guiding patients to better health.
The most important potential outcome we can achieve is the one all patients and their physicians want most – to be diagnosed correctly, managed accurately, and to leave every interaction with the health system more healthy than when they arrived.
Photo Friday: Not a Workstation, a Walkstation
May 8th, 2009 | Popularity: 20% 1 commentThis week’s photograph was taken by Kristen Juel using her mobile device (hence the blurriness – original photo posted at Twitpic here) of myself and Margaret Laws, Director of Innovations for the Underserved Program for The California Healthcare Foundation, during one of the open space networking sessions at the Innovation Learning Network in person meeting in Grand Rapids, Michigan.
The topic of this session of open space networking was, of course, the walking meeting, which is a simple innovation that can transform everything from business conversations to clinical care (imagine a medical center equipped with a sound insulated walking track in its perimeter, to allow clinicians and patients to walk and talk about their daily lives).
These workstations, called Fitwork, are manufactured by Steelcase and allow users to walk at up to 2 miles per hour, while working on their computers or talking on the phone.
There are so few reasons not to have walking meetings, why not try one this week? I’ve compiled some of the evidence behind their benefits along with a handy guide to getting started.
Now Reading: Take Two Aspirin And Tweet Me In The Morning: How Twitter, Facebook, And Other Social Media Are Reshaping Health Care. Health Affairs. 2009 Mar 1
March 13th, 2009 | Popularity: 50% 15 commentsNote: the article no longer requires a subscription for access (3/14/09)
The much anticipated health information technology issue of Health Affairs, and in it is an article written by Carleen Hawn about Social Media in Health Care. The links above to to the Health Affairs site, but it appears a subscription will be required to view it, so hopefully readers have access to an institutional or other subscription to read it.
The genesis of this article was a discussion that was started in July, 2008, at the American Board of Internal Medicine’s forum on Patient Centered Care, where i presented about some of these concepts. This was followed up with discussions with myself and other leaders in the field, such as Jay Parkinson, MD, from HelloHealth, Bob Coffield, a well known legal expert in the area of social media, as well as real patients.
I actually attended the briefing announcing the release of this issue in Washington, DC, and was pleasantly surprised to see that the article is billed on the front cover of a very full catalog of scholarly works. Who would have thought 4 years ago that an article about social networking/media would be front cover material for the Health Affairs issue on Health Information Technology. This says a lot about the impact that social media, or perceived impact, in this area of health care! At the same time, I think Matthew Holt correctly points out that there’s a part two (and three and four) to be written covering what’s below the tip of the iceberg.
In addition to the information mentioned in the article, Carleen Hawn also consulted with some of my favorite innovators in health care, including Scott Shreeve, MD, and the team at the Kaiser Permanente Sidney Garfield Center for Health Care Innovation.
In addition to these contributions, I would also mention the contribution of the California Healthcare Foundation, whose leaders, including Veenu Aulakh, MPH, Sophia Chang, MD, MPH and Sam Karp, stimulated the development of the crowdsourced definition of Health2.0 mentioned the article with a simple question to me: “Ted, what is Health2.0?” (my answer was, “I don’t know, let’s ask the crowd.”)
And, I would also like to mention that innovation like this comes from health care organizations and systems that are able to say,”Not everything has been tried before,” and in my case this is/was Group Health Cooperative, who have learned from our early blogging experience and now bring their physicians and staff online for the world to learn about what they are doing to reinvent primary care. I’ve been engaged in maybe a few conversations over the past few years about why health care organizations should be transparent and it’s helpful for everyone to have an example of why this works well for everyone.
Thanks again to Carleen Hawn, The Health Affairs Team, and The American Board of Internal Medicine Foundation for taking the time to explore this topic for America’s patients (that’s all of us).
21st Century Blood Pressure Diagnosis and Treatment: Workflow, in Cartoon, Part III
March 10th, 2009 | Popularity: 29% 0 comments | Leave a reply(click on the image to enlarge)
This is part III in the series on managing blood pressure in the 21st Century. This panel focused on treatment. As with diagnosis, once a person is identified with high blood pressure, the actual “check” of whether the medicine is working should happen at home, not at the doctor’s office.
Again, there’s a CPT code out there that could be modified to support a physician office in monitoring the success of the medication and making the cognitive assessment as to whether it is working or not.
Given recent comments about safety-net populations, it’s useful to think “home monitoring” rather than “web + laptop” – this could happen via cell phone, via Twitter (my prototype is coming here soon, I promise), or any other accessible technology. The idea is simple – don’t require the patient to travel to the doctor’s office in person to be given a reading that is both expensive to obtain and challenged for accuracy, and empowerment to the patient….
Keep the comments coming!
Oh, and also, comments on this tool for communicating about workflow – should cartoons like this be used more often? Would you use them in any of your management/leadership work?
» The 2009 DiabetesMine™ Design Challenge – DiabetesMine: the all things diabetes blog
March 6th, 2009 | Popularity: 15% 0 comments | Leave a reply- » The 2009 DiabetesMine™ Design Challenge – DiabetesMine: the all things diabetes blog – Innovative crowdsourced design contest for innovations in diabetes care. Sponsored by California Healthcare Foundation.
21st Century Blood Pressure Diagnosis and Treatment: Workflow, in Cartoon, Part II
March 6th, 2009 | Popularity: 36% 6 comments(click to enlarge)
This is the next panel in the series on 21st Century Blood Pressure management. This covers workflow, from the patient perspective, regarding diagnosis. Given that 20% of the time, a patient is inappropriately diagnosed as having high blood pressure in the office, and at least 10% of the time, inappropriately diagnosed as not having high blood pressure, the best way to confirm is via home measurement.
Because there is already a CPT code that covers an older type of blood pressure management outside the office, it’s possible (and reasonable) to reimburse a practitioner’s office for the time spent training a patient, and the cognitive work to make the determination. This is especially important considering that the determination means a lifelong diagnosis and treatment path.
As always comments welcomed. I especially welcome comments regarding how this might be applied in safety-net populations, based on the excellent discussion started on the last post.
21st Century Blood Pressure Diagnosis and Treatment: Workflow, in Cartoon
March 3rd, 2009 | Popularity: 32% 6 comments
(click to enlarge)
I am going to share some work on this blog that I completed for the California Healthcare Foundation around new models of treatment for chronic illness, in this case high blood pressure, over the next few days.
As I have detailed here previously, there’s a great opportunity with this condition to change the locus of care closer to the patient, with greater accuracy and efficiency for patients, families, their employers, and communities.
Because this way of doing things (patient in control) seemed to be such a change from standard care, I decided to portray the workflow in cartoon format, to show what this might look like in practice.
This is the first set of panels, and shows the different ways that a patient’s suspected high blood pressure might come to the attention of themselves and their doctor. The series will hopefully show how a new model might change things around quite a bit….
Feel free to let me know what you think of the workflow, and of the approach to communicating what is really a big change in the way we manage a condition that is in the United States the #1 reason for a visit to the doctor.
Photo Friday: California Healthcare Foundation including the Patient Perspective
February 13th, 2009 | Popularity: 22% 0 comments | Leave a replyThis week’s photograph was taken at California Healthcare Foundation offices in Oakland, California, where patient advisor Bryan Bush is part of an advisory group was assembled to discuss the “Clinic of the Future” Initiative, described as
The goal of this initiative is to stimulate large scale, substantial, sustainable and scalable improvement for patients and providers in the way safety net clinics provide high quality care to the underserved.
Bryan is a patient of Sebastopol Family Health Center, which I have profiled (and cheerleaded here) previously, and as I have observed in other environments, helped center the conversation. Bryan told the group that in his former primary care environment that “It’s hard when you start to care (about your health) to not be able to see your doctor.” He also told the group that Sebastopol’s patient portal will be one of the sites he bookmarks (“it will be one of my favorites”) when it goes live – “It will be lifesaving.”
That’s Mary Szecsey to Bryan’s left, and Jason Cunningham, MD, to Bryan’s right. Together they are innovating in Bryan’s patient experience by providing him with the primary care he needs when he needs it, and by bringing him into the conversation about how their primary care is designed for patients and families.
iHealthbeat, now on iPhone
December 12th, 2008 | Popularity: 11% 0 comments | Leave a replySam Karp, Vice President of programs at the California Healthcare Foundation, wrote me yesterday to let me know that iHealthBeat is now available as a downloadable application for the iPhone, and of course I downloaded it immediately.
This is a quick and easy way to follow a required news source for anyone interested in health information technology. Plus, the entire archive is searchable, for those times that you ask if organization X is engaged in technology innovation, or what the latest data about adoption and use is. I might also add that the user interface reflects some of the elegance that Sam carries in his work. Give it a try and see what you think. It’s great to see our nation’s most innovative philanthropies embracing the technology tools that people use.
Presentation: Web 2.0 for Planning, Change Management, and Communication
November 20th, 2008 | Popularity: 23% 5 commentsThe following presentation is an update to one I gave at the California Healthcare Foundation in 2007, and includes updated data and experience since then. I gave the presentation to staff at The Advisory Board, who produce the very useful iHealthBeat publication. iHealthBeat has just begun accepting user generated content to spur discussion. Please head over and write a few comments on the perspective pieces if you can.
Key changes since 2007:
- Biog writing is slowing
- Blog reading is increasing and plateauing across all age groups
- General participation is increasing
- Note the slight dip in news reading for Generation Y relative to blog reading
I like the Forrester Social Technographics approach, which place blog writing at the highest tier of participation. It seems that the Web2.0 ecosystem will come to resemble the human one – a small percentage of people will lead, a larger percentage will participate and follow, and a small percentage will not participate.
Thanks a ton, again, to The Pew Internet and American Life Project for making their data so freely available. I was able to find the magic Excel file with data meticulously categorized and trended on this page on the Pew Internet site. It’s a huge help. Here’s the full presentation. Click on any slide to see fuller size:
Right Here Right Now: Ten Telehealth Pioneers Make It Work – CHCF.org
November 13th, 2008 | Popularity: 12% 0 comments | Leave a reply- Right Here Right Now: Ten Telehealth Pioneers Make It Work – CHCF.org – Another great report from Jane Sarasohn-Kahn about something that didn't interest me a lot before I started working with the California Healthcare Foundation. That's changed, based on the data.
“I’m Glad You Were Here….” at the Commonwealth Club
October 22nd, 2008 | Popularity: 26% 0 comments | Leave a replyOn the day before the Health2.0 Conference began, I was delighted to sit on a panel about “Health 2.0″ with experts Jane Sarasohn-Kahn, who operates the Health Populi blog, and Amy Tenderich, who operates Diabetes Mine , a resource for patients, both thought leaders in Health 2.0. The panel was moderated by Sarah Varney, who is well known on her work for the California Report.
The quote in the title of the post was the comment that I made to Amy afterward, at which point she made the exact same comment back to me. I knew a little about The Commonwealth Club from their About page..
The Commonwealth Club of California is the nation’s oldest and largest public affairs forum, bringing together its more than 18,000 members for over 400 annual events on topics ranging across politics, culture, society and the economy.
Founded in 1903, The Commonwealth Club has played host to a diverse and distinctive array of speakers, from Teddy Roosevelt in 1911 to Erin Brockovich in 2001. Along the way, Martin Luther King, Ronald Reagan, Bill Clinton and Bill Gates have all given landmark speeches at The Club.
..and as I walked to the studio, I actually said to myself, “Jane and Amy will be there with me, they will make sure this goes smoothly – they’re the experts.” This is because of the scope of the audience (unknown, in person and on the radio) and the questions, based on Sarah’s experience and audience interests, could be anything. As I am still gaining comfort with the size of Kaiser Permanente’s reach in this area (this will be an ongoing theme for quite awhile), both aspects of the situation made me less uncomfortable because of Amy and Jane’s presence. And sure enough, their experience and knowledge in the industry and among patients is significant.
I was surprised to hear Amy and Jane echo the same sentiments to me that I had in my mind. My conclusion – we need each other, and isn’t that a metaphor for health care.
Thanks again to the sponsors of this event, the California Healthcare Foundation for bringing us together to learn this, live, in front of Californians.
The show is scheduled to be broadcast on KLIV on November 6. I’ll post a link when it’s available.
Now Reading: Patients’ attitudes to the summary care record and HealthSpace: qualitative study
October 2nd, 2008 | Popularity: 30% 5 commentsThis is another article passed to me by Sophia Chang, MD, as it relates to another area of our work together, promoting patient online access in safety net health care organizations.
The work is a qualitative study of attitudes of a group of patients representative of low health literacy, “potentially stigmatising conditions,” or difficulties in accessing health care regarding the National Health Service’ Shared Care Record (SCR), which appears similar to our Continuity of Care Record. It currently has medications, allergies, and adverse reactions, and is scheduled to include a minimum data set. Also discussed with the participants was the HealthSpace, which is a “personal health organizer available via the Internet,” so my guess is, similar to what we call a personal health record.
Despite the fact that 95% of the population in the sample area received a letter informing them about the SCR and HealthSpace, there is very little recall of SCR, HealthSpace, or even the letter itself (14 %). Some of the useful points for us to think about for a safety-net population:
- People without “potentially stigmatising conditions” including their official advocates (required to be included in the study) were unfavorably disposed to the SCR. However, people who actually had these conditions felt the benefit outweighed the risk. The authors highlighted this discrepancy even more by citing advocates as “people who claimed to speak for vulnerable groups.” It is in interesting what we find when we talk to the patients themselves.
- Speaking of patient involvement, it is not clear from the article how and if patients were involved in developing the materials mailed to community residents. Clearly this is a very complex program and from the comments it appears that explaining the SCR and HealthSpace is akin to explaining how the health care system works in general. It’s a great magnifier of problems elsewhere perhaps.
- “Empowerment” versus “Engagement” – comments suggest that those who are actually less engaged have more favorable opinions of SCR and unfavorable opinions of HealthSpace, indicating that they see the SCR as an advantage in reducing personal responsibility. The authors say this should be discussed further, and cite the work of Judith Hibbard and findings that “empowerment” may require cognitive skills that “not all citizens possess.”I suppose what I make of this is the idea that by itself, these technologies don’t create engaged behavior in patients that we expect. At the same time, I’ve discussed the idea that they do create different behavior in the clinicians who are accountable them.
So how would I apply the information here in the promotion of patient online access in the safety net? I might think about involving patients in the design of systems up front, to make sure that the features are compelling to them. I would convene focus groups (maybe with the support of an interested funder) to look at everything including marketing materials and approach to make sure that efforts aren’t wasted.
This article is a helpful reminder that even with the best intentions, those who design programs don’t live the lives of those who should benefit from them, and as I tweeted recently, people with chronic illnesses think about them for longer than the time they visit a medical center or log into a web site.
e-patients: Safety Net Populations
September 19th, 2008 | Popularity: 30% 1 commente-patients: Safety Net Populations
The nice thing about the blogosphere is that when you get behind in your blogging, someone else will help you out. Thanks to Susannah Fox for writing about her experience with us in Oakland, California, around the sharing of Pew Research Data with safety net health care organizations.
The comments on the post are especially heartening, in that they support that involving the audience in the presentation of information is meaningful. In this case, they presented just as much information back, which is as it should be.
If I can have one claim to fame in the convening world, besides audience involvement, it is that internet access, checking e-mail, using the Web is allowed at the discretion of attendees. At the last two meetings where I suggested this, people seemed a little caught off guard that this is okay. I want to change that. Just as in the Results-Only Work Environment, in the Results-Only Meeting Environment, respect for people deciding what is most important to them creates the pressure I like, that I/we need to be more interesting than an e-mail inbox.
Chronic Disease Care Conference – Better Ideas in Action
September 17th, 2008 | Popularity: 13% 0 comments | Leave a reply- Chronic Disease Care Conference – Better Ideas in Action – California Healthcare Foundation's main conferences of the year, in San Francisco. Impressive lineup
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Project HealthDesign Expo Washington, DC – It’s not the record, it’s what you do with it
September 17th, 2008 | Popularity: 31% 1 comment
I am at the Project HealthDesign Expo here in my hometown, along with many many other leaders in the personal health records world, including several members of the CCHIT Personal Health Records Workgroup.
Risa Lavizzo-Mourey, MD, is completing her opening remarks, and in them, she referred to the work of Douglas Engelbart. I have also been fascinated by his work and some time ago took the trouble to find videos of his demonstrations of the computer mouse and document editing on a computer in 1968. Pretty amazing.
Pictures below, click on any to see larger. I have been impressed by the amount of patient input provided in all of the work – a lot of things along the way demonstrate that these are different tools than we’ve seen previously to allow patients to be empowered in health and health care.
Patient Online Access in the Safety Net: Adam Szerencsy, MD and Neil Calman, MD’s slides
August 30th, 2008 | Popularity: 40% 0 comments | Leave a replyThese are Adam Szerencsy, MD and Neil Calman’s slides from the recent discussion in Oakland, “Patient Online Access in the Safety Net,” hosted by the California Healthcare Foundation.
Adam and Neil are from the Institute for Family Health, and as you can tell, have learned a lot in providing online access to their patients in New York City.
This presentation had special meaning for me for several reasons. The first is that Neil’s organization was the first to host me outside of my integrated health system environment, to learn about applying PHRs to the care of all patients. The second is that I got to watch Adam lead the rollout of IFH’s patient portal from the initial thinking through to watching him prepare his patients for its eventual rollout, when I got to watch him practice in Bronx, New York. You can read the story (and see the pictures at this link) about what that day was like. I still remember it as strong affirmation that there are really exceptional physician leaders among us, who with the right tools can be freed to do great things for their patients and their communities.
Patient Online Access in the Safety Net: Hilary Worthen, MD’s Slides
August 24th, 2008 | Popularity: 27% 0 comments | Leave a reply“If you don’t like the news, go out and make some of your own” – this was the theme of the presentations given by safety net organizations who are innovating by providing patient online access to their personal health information. It’s now possible to talk to safety net providers who have the technology and the skill to provide this type of access for their communities. This is great news.
Hilary Worthen, MD, visited us in person in Oakland, when we had this discussion , to describe Harvard-Affiliated Cambridge Health Alliance’s patient portal. CHA is using the MyChart patient access system, produced by Epic Systems, Inc. Here are his slides. Comments welcome.
Patient Online Access in the Safety Net: Ted’s Slides
August 21st, 2008 | Popularity: 26% 0 comments | Leave a replyI am attaching the opening remarks that I made, alongside Veenu Aulakh, at the Patient Online Access in the Safety Net discussion, hosted by the California Healthcare Foundation. It describes the “why?” in the context of my journey of discovery. Click on any image to see full size, and comments are welcome.
Update: Incidentally, depending on the reviewer, I am either congratulated or questioned about my presentation style. I just ran across this very nice slideshare : Death by Powerpoint . See if the slides below are more similar to that ideal (I hope they are)
Patient Online Access in the Safety Net
August 19th, 2008 | Popularity: 46% 2 commentsI admit, that maybe, once or twice in my past, I may have used convening and convener in less than flattering terms, much like I used to use “process” in unflattering terms. I learned through LEAN, though, that process isn’t bad, bad process is bad. And so I have learned the same thing about convening, now that I have done it a couple times this summer, with the California Healthcare Foundation.
The most recent time was yesterday, when Veenu Aulakh, MPH, and I brought together Safety Net health care organizations, and national experts in patient online access and social impact of the Internet to talk about (you can guess…) “Patient Online Access in the Safety Net.”
These being the first convenings I have co-led, rather than participated in, I have learned a ton, and have gotten a good understanding of doing this for a purpose, which both situations have had. In the event we hosted yesterday, in Oakland, I put together an A3 document before we invited anyone, which included the background, the goals, and most importantly, the “why?” we were doing this in the first place. It was really helpful to have created agreement around the “why?” – I referred to this many times in the planning.
At the event itself, I got a new perspective that I had not had as a participant previously. It was one of listener/observer – even when I was doing the talking, I was interested to see reactions and learn what people and organizations are capable of. It made me think that when I have been a participant in convenings in the past, this is what my hosts were doing – learning what myself or my organization was capable of doing to solve a problem, as much as they might have tapped me as an expert. Interesting to have this happening in my brain.
Sharing information happened, too, courtesy of some of the most innovative organizations in the U.S., including Cambridge Health Alliance, University of California, San Francisco’s Positive Health Program , New York’s Primary Care Information Project, Institute for Family Health, and Kaiser Permanente.
In addition to all of this, there were a few nice moments of recognition for people’s work, such as when Jim Kahn, MD, thanked Kate Christensen, MD, and her team at Kaiser Permanente for their support and assistance in the launch of the myHERO patient portal for HIV patients cared for at San Francisco General Hospital.
…and a little something for me, a follow-up conversation with Hilary Worthen, MD, from Cambridge Health Alliance, about his study and pathway to discover and implement LEAN in primary care at CHA. He told me that for him, this is a transition from thinking about exam rooms and staff to “work that you need to get done, defined by doctor and patient.” I love hearing about how people apply their creativity and copy the thinking of LEAN to do exceptional things for their patients.
This being the second time I have done this, I don’t know if it was perfect. We tried a lot of things I’ve not done in meetings before, and I am still working to integrate social media before, during, and after. I am definitely sold on my philosophy of supporting any and all technology use (“if you need or want to use your device, use it”) - I have not, in my conveningness, come around to the “turn your devices off” philosophy, as I have written about previously.
Oh, and I learned that a 60″ table seats 8 people.
Here are a few images from yesterday. I’ll follow up with my slides in a separate post. Click on any to see larger size.
Stepping Through a Patient’s Experience with Hypertension: Adjusting Therapy
August 8th, 2008 | Popularity: 25% 0 comments | Leave a replyThis is third of a multi-part series on a patient’s experience managing a chronic condition, in this case hypertension. A diagnosis has been made, and our patient is following up to see if the therapy is working or if adjustments need to be made.
Click on the image to see it larger size
Patient Story (Frydman)
I was supposed to go back but I didn’t do it. During a business trip I did try checking my BP with a home tool a few times and every time the BP was well within the norms, helping me be even more in denial. But then the next time I went to my friend’s office the data still showed clear HBP. Go figure!
(On the use of home monitors)It was first a few times on a specific day. Then a couple of times the next day. I then thought I would buy an OMRON blood pressure monitor. But I conveniently forgot about it when I returned to my home. No he (my doctor) didn’t say a thing about it. His behavior made me believe that he was not supportive of the home monitoring.
Clinical and Public Health pearls (Houston-Miller)
- Many patients already self-monitor (55 %, do it, 64 % own a monitor) – many have not been trained how to monitor correctly, and may over monitor; the most accurate way to monitor is twice per day, once in the morning, once in the evening, for 7 days. Patients should not monitor during the day and should not monitor while at work. These measures have not been shown to correlate with future organ damage as well as the morning and evening measures.
- The estimates of “masked hypertension,” or high blood pressure that appears normal in the doctor’s office are probably much greater than the 10 % reported; many patients restart medications in advance of coming to see their physicians (“similar to flossing your teeth a week before the dentist appointment”).
Comment
Where is the data? As in previous encounters, the data is again localized away from the patient and with the provider and ancillary services. Patients are asked to come back (physically) to the physician office to have their blood pressure rechecked and evaluated. The result is that the patient must ask for their blood pressure data from their provider, not the other way around.
What’s missing? If patients do not return in person (where their provider can bill for an office visit), there is no workflow in place in the majority of healthcare to assess blood pressure control, so these patients often go undertreated or untreated. Although 47 % of physicians recommend home-monitoring, many do not know recommendations for appropriate monitoring, including calibration of monitors, monitoring technique, and counseling on the value of home monitoring.
There is also a missed opportunity to leverage social networking, for connections to patients who may have recently been diagnoses and are integrating monitoring and treatment into their daily lives, similar to what occurs at the PatientsLIkeMe Community. Current data shows that there is a significant risk of being untreated or undertreated (4 – 11 times) among patients who have not seen a doctor in the past year. It’s as possible that these data are confounded by the fact that for most patients, management of the condition is stipulated by the care system to be an office-based activity.
Next post, a slight switching of gears to the annual health plan/employer interaction. Comments welcomed, of course
Getting What We Pay For: Innovations Lacking in Provider Payment Reform for Chronic Disease Care
July 18th, 2008 | Popularity: 14% 0 comments | Leave a reply- Getting What We Pay For: Innovations Lacking in Provider Payment Reform for Chronic Disease Care – From the Center for Studying Health System Change. Asking the obvious question (in a useful way) about how payment per service is helpful to patients with chronic illness
Presentation: “5 1/2 Reasons Why Patients and Families Should Be Involved, and 2 1/2 Things You Can Do To Help”
June 26th, 2008 | Popularity: 44% 3 commentsI am posting this presentation that I created, commissioned by the California Healthcare Foundation, and supported by the Center for Information Therapy and indirectly, Group Health Cooperative.
It is the presentation that created the need for me to define Health 2.0. It is also the last presentation I will give as as a Group Health employee, and the only time I will be able to give it, due to my my career change.
It’s in slide show format, so feel free to click on any of the images and page through. I had a lot of fun putting it together because it allowed me to reflect on what I learned and how much I have changed in my thinking in just the past year. May the same trend continue.
I would like to extend special thanks to Crosskeys Media, producers of the excellent show “Remaking of American Medicine,” for allowing me to use portions of the content in the interest of supporting patient centered care. I encourage anyone interested in this topic to view or purchase the show. There is an educational license available that allows for use in teaching (as a whole piece, not intended for editing by users). It’s worth it.
Feedback and comments welcomed.
Project Health Design : Bringing Patients Along with Teams to Washington, DC
June 20th, 2008 | Popularity: 18% 0 comments | Leave a replyAs chief blogger for Project Health Design and colleague Lygeia Riccardi notes in her post, Project Health Design Blog: The PHR as a mirror of daily life, project teams for this initiative to inform the next generation of personal health records was in Washington, DC, this week to work with policy makers and collaborate across teams, and I was invited along with Lygeia to meet the teams on one of their first nights here, at a reception.
I was epecially happy to catch up with colleague James Ralston, MD, MPH, from Group Health Cooperative’s Center for Health Studies, who is leading one of the teams, and of course, one of my first questions to him was, “how have you involved patients in this work?” His answer was a great one: “Well, Ted, I’ve brought a patient with me.”
As you can see from Lygeia’s post, there was a patient (participant was the term she used) from another team as well. Both are supported by the Robert Wood Johnson Foundation in attending and improving the efforts of these teams. Kudos.
Patient Centered health care meets enormous resistance | ZDNet Healthcare | ZDNet.com
June 16th, 2008 | Popularity: 11% 3 comments- Patient Centered health care meets enormous resistance | ZDNet Healthcare | ZDNet.com – Commentary on the report that Josh Seidman and I co-Authored. I was a little shocked by the glass-half-empty title, but I might be tempted to agree with the last sentence. There are huge opportunities to make this happen, and we now know what they are. So let’s do it.
Helping Patients Plug In: Lessons in the Adoption of Online Consumer Tools – CHCF.org
June 13th, 2008 | Popularity: 27% 1 commentPublished! The report I co-authored with Josh Seidman, Ph.D. from the Center for Information Therapy is now online. It describes our experiences out “in the rest of health care” understanding the environment that supports patient centered health information technology. My conclusion: we can make it happen.
Helping Patients Plug In: Lessons in the Adoption of Online Consumer Tools – CHCF.org
Spending some time with iMetrikus in California
May 28th, 2008 | Popularity: 25% 0 comments | Leave a replyWhen in California last week, I went to visit Larry Leisure, President, North America, and Deryk Van Brunt, DrPH, Senior VP of Business Development for iMetrikus.
images: click on any to see larger size
iMetrikus is part of the Continua Alliance, and has expertise in collecting and processing patient derived biometric data using FDA-cleared gateways, and in presenting the data to support clinical workflow. Here are a few images of the devices. The MetrikLink device connects many different devices via a phone line or PC, but it is not required if the device has standard connectors. There is also a mobile platform, especially interesting for patients who may rely on a cell phone for Internet connectivity.
Just Looking: Consumer Use of the Internet to Manage Care – CHCF.org
May 27th, 2008 | Popularity: 13% 0 comments | Leave a replyJust Looking: Consumer Use of the Internet to Manage Care – CHCF.org – Report from California Healthcare Foundation on consumer use of the internet. Note use by the uninsured, which tracks other data, showing that this population is online in respectable numbers. In addition, 54 % of those with high school education or less use the Internet to find information about specific medical conditions/prescription drugs. I think a nice proxy for Internet use is the use of online banking, since there’s a component of “convenience” and “confidence” in using these services. A recent analysis of online banking use shows similar results. As the CHCF report says:
These segments of the public likely have the greatest need for information that can help them manage their health, particularly in the case of the uninsured, who many not have regular access to health care.
In my work studying LEAN, I used to put “I see many correlations to clinical practice” on every blog post about another industry’s success in being customer centric in ways that we could learn from, kind of skipped-CD like. For this issue, I’d like to say, “the data demonstrates that every patient in every care system deserves to have this access.” To not provide patient access in HIT installations that serve these populations is the same as reducing access of 40 % of those patients to useful information for them (and their families) to be involved in their care.
The RUC Speaks of Medical Home;Gathering Data on Hypertension;HealthPlan-Hospital Conflict in Arizona
May 13th, 2008 | Popularity: 55% 0 comments | Leave a replyMay 6th through May 7th:
- The Happy Hospitalist: This Deserves The Middle Finger – I guess it is controversial (the RUC report on Medical Home Reimbursement)
- AMA (RBRVS) RUC Medicare Medical Home Demonstration project recommendations – RUC and Medical Home. Might this be controversial?
- reportonbusiness.com: Asking ‘why’ again and again is harder than you think, but it works – Good description of the 5 Why's Exercise
- What is Hypertension? – WrongDiagnosis.com – Factoids about Hypertension, useful in planning a community intervension
- Cigna clients seek answers after expiration –
- Cigna ends pact with hospitals, leaves thousands in the lurch – This local story has not made the national news. I wonder why?
Giving a great presentation from Al Gore; Genie Industries LEAN approach; Wisdom of Patients Paper
May 7th, 2008 | Popularity: 55% 0 comments | Leave a replyThe Genie Industries video is especially compelling because everything they discuss is applicable in health care. What if we substituted “patient care” for making scissor lifts – we would see huge strides in improvement. Also, just upgraded the software that powers this blog. Viva open source.
- Genie Industries, Spotlight – A nice video of Genie Industry's work promoting LEAN and the customer focus in its manufacturing efforts
- Popularity Context Plugin Fix for Wordpress 2.5 –
- The Wisdom of Patients: Health Care Meets Online Social Media – CHCF.org –
- From Al Gore?s Chief Speechwriter: Simple Tips for a Damn Good Presentation (Plus: Breakdancing) – Great advice on giving presentations. The one I like best – it’s not about you, it’s about the audience.











