Posts Tagged ‘California’

Photo Friday: Return Expectations to the Upright Position

December 18th, 2009 | Popularity: 6%
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Return Expectations to the Upright Position

Speaking of giving patients access to their medical records, this week’s photograph is both a little grainy, and not taken in Washington, DC. This one comes from an iPhone and San Francisco, California, and is of an advertisement for Virgin America airlines, on Market Street.

I sort of follow (and fly) Virgin America because they have done a great job of meeting the expectations of customers in ways that other airlines have seemed unable/resistant to. Any customer would have expected or desired a power outlet at every seat 5 or 10 years ago.

As usual, there are a lot of analogies to health care. Patients and their families are a force of nature. They have high expectations of us, just as we do of them. Let’s make sure we meet theirs, because we can.

Workers At California Auto Plant Left In Limbo : NPR

September 28th, 2009 | Popularity: 5%
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Workers At California Auto Plant Left In Limbo : NPR – I am saddened to hear this news. While analyst say it makes economic sense, the presence of the NUMMI plant and its innovative work processes helped me and others from other industries. I am glad I got to meet you, NUMMI.

“Do you Ride?” – Learning about leadership from Harley Davidson in Oakland, California

July 30th, 2009 | Popularity: 11%
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Harley Davidson dealership Oakland CA

Harley Davidson dealership, Oakland, California

I am back in Oakland, California, at the Sidney Garfield Center Health Care Innovation Center, this time supporting the Permanente Medical Group’s course “Medicine and Management,” which brings physician leaders from across the nation to learn about leadership in all of its facets. This includes providing great care experiences for members, recruiting and mentoring other physicians, and today’s installation of the course, techniques used in innovation.

In this morning’s session, there was a surprise trip to the Bob Dron Harley Davidson dealership in Oakland, California to learn about leadership in a context other than health care. By the way, I misspoke in my twitter feed that we were going to the Harley-Davidson factory – this is where we went, and it was no less impressive. One thing I really enjoy is learning about different ways of doing things from outside of health care.

The question in the title of the post was something we were asked by several of our tour guides – they would ask, “Does anyone here ride?” as a way to identify enthusiasts up front. Despite the fact that most patients wouldn’t call themselves enthusiasts of health care, there are (as with everything I see), parallels to health care. Although not enthusiastic about health care, I’d say most patients are enthusiastic about a great patient-physician relationship.

I was impressed by the level of interest in collaborating to create a good customer experience in all facets of the relationship – from the decision to purchase, to buying add-ons, to service. Because service is such an important part of the relationship, the service area is as clean and welcoming as the sales floor is (and service involves sales, too).

This part of the day was an introduction to observation, in the process of innovation. We were coached in asking useful, open-ended questions, and then went back to the Garfield Center to convert the observations into storytelling. We also did exercises in brainstorming (see photograph below) to acquire as many ideas as possible and sort through them.

Brainstorming Exercise - Medicine and Management Course
Panoramic view of Permanente physicians learning design thinking


Tomorrow, the group will continue to learn about the skills of innovation, or design thinking, led by the Innovation Consultancy group at Kaiser Permanente. The skills being taught to this group of physician leaders are the same ones used to develop the breakthrough MedRite program, which has changed the way people think about (and do) medication administration in hospitals so that it is safer. If you look at the tools used in MedRite, they are not new computers – using design thinking, the tools are simple, effective, and can be spread easily.

I am, of course, a big fan of continuous learning, and think it’s differentiating for medical groups to teach the skills of innovation. Through the work of the innovation consultancy, and more broadly, the Innovation Learning Network, Kaiser Permanente participates in sharing knowledge across organizations, just like our members expect.

More photographs, click on any to see larger size


The doctor is in and logged on – Los Angeles Times

July 21st, 2009 | Popularity: 7%
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Photo Friday: Check the Accuracy of Your Message – Have it Drawn For You

June 19th, 2009 | Popularity: 11%
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KP Panel IFTF Health Horizons

IFTF Health Horizons

While speaking at the Institute for the Future’s Health Horizons’ Spring 2009 Conference (LiveTweets here and more organized here) about Combinatorial Innovation, with William Ruh, Vice President, Cisco Systems, Larry Tessler, from 23andMe, and Mike Liebhold, Senior Researcher from IFTF, I had a great opportunity to have my words documented graphically, by a very talented visual recording artist.

You could look at the product and get a sense of what I was speaking about on behalf of Kaiser Permanente – member/patient as the hub of health care, engaged doctors with their patients, moving ahead together in the interest of those they serve.

Seeing the documentation is also a great check on accuracy – and in fact, it showed an error in my discussion – the “$5 billion Project” attributed to Kaiser Permanente HealthConnect is actually $4.2 billion, which is a big difference in discussing the investment of a non-profit health system in leading edge technology.

I think (and thought) this was a great opportunity. How can a person tell what the audience feels after they tell a story about something like patient empowerment using technology? Extrapolating to the patient-physician encounter, how does a patient know if their physician understood the significance of their story? Seeing the documentation is very powerful, and a visual check on creating the right impression of the work is very innovative, in my opinion.

Thanks a ton to Institute for the Future for hosting a great discussion, and for allowing me to touch base again wtih two of my favorite leaders in the universe, Karl Hoover and Diana Elser, both from Group Health Cooperative, and as of the date of this discussion, now on Twitter (Follow them here: @kmhoover @dlelser and please encourage them to share their experience in this medium…) Welcome aboard!

Photo Friday: California Healthcare Foundation including the Patient Perspective

February 13th, 2009 | Popularity: 22%
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Bryan Bush, Patient Advisor

This week’s photograph was taken at California Healthcare Foundation offices in Oakland, California, where patient advisor Bryan Bush is part of an advisory group was assembled to discuss the “Clinic of the Future” Initiative, described as

The goal of this initiative is to stimulate large scale, substantial, sustainable and scalable improvement for patients and providers in the way safety net clinics provide high quality care to the underserved.

Bryan is a patient of Sebastopol Family Health Center, which I have profiled (and cheerleaded here) previously, and as I have observed in other environments, helped center the conversation. Bryan told the group that in his former primary care environment that “It’s hard when you start to care (about your health) to not be able to see your doctor.” He also told the group that Sebastopol’s patient portal will be one of the sites he bookmarks (“it will be one of my favorites”) when it goes live – “It will be lifesaving.”

That’s Mary Szecsey to Bryan’s left, and Jason Cunningham, MD, to Bryan’s right. Together they are innovating in Bryan’s patient experience by providing him with the primary care he needs when he needs it, and by bringing him into the conversation about how their primary care is designed for patients and families.

Jason Cunningham, MD

“What on earth is the rationale there?” : Prohibition on sharing test results with patients online in California

January 21st, 2009 | Popularity: 37%
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The question asked in the title of this post is one I have as well, so I’ve decided to ask it in this post.

It was posed by e-Patient Dave in a comment on this post illustrating the challenge of test result sharing with patients today.

He’s referring to California Health and Safety Code Section 123148 , which makes it illegal to share certain kinds of test results with patients online. It also says:

In the event that a health care professional arranges for the provision of test results by Internet posting or other electronic manner, the results shall be delivered to a patient in a reasonable time period, but only after the results have been reviewed by the health care professional.

Knowing what we know about health care, reasonable time period and “only after the results have been reviewed” may be in conflict.

I understand this law was passed in 2002, so in 2009, I’d like to ask patients and those who care for them what they know of the rationale here? If you do not live in California, is there any such legislation in your state? If this law no longer existed, can people envision what the harms (and benefits) would be?

30Rock: How Test Results Can Go Wrong

January 10th, 2009 | Popularity: 32%
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See how many different aspects of this experience could be improved (security, privacy, confidence, accuracy) if the patient had online access to their results, linked to explanatory health information and interaction with their care team at their convenience.

While the situation is obviously a parody, it seems to have enough elements of truth in it that I wonder if the writer experienced receiving test results recently. Without overanalyzing, I would say that the piece does a great job of showing the impact of disempowerment. Thanks to the 30 Rock team for the great example.

In California, a patient wouldn’t have a choice except to receive the results via telephone or in person, because it’s been illegal since 2002 to share pathology results with patients over the Internet, even if the patient and/or the doctor wish them to be communicated that way.

California Health And Safety Code Section 123148 – Limits on sharing test result information with patients online

December 14th, 2008 | Popularity: 22%
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Demonstrating “today” at The Sidney R. Garfield Health Care Innovation Center

December 2nd, 2008 | Popularity: 33%
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I am here in Oakland, California, and having completed my first presentation about Kaiser Permanente’s work in health care information technology, I have now done my first live demonstration of Kaiser Permanente’s work, at the Sidney R. Garfield Health Care Innovation Center, in Oakland, California.

Just as with the presentation, I was a little nervous about the demonstration. Unlike the previous health information technology environment I was a part of, this one is between 10 and 100 times as vast, and I wanted to respect the work of the experts who were involved in making it happen.

And, the experts have done great work – I looked at a specific aspect of Kaiser Permanente’s care, highlighted in this television advertisement, that has resulted in a 30% lower death rate from cardiovascular disease among Kaiser Permanente members relative to other Californians. Kaiser Permanente, by the way, has funded expansion of this program to patients outside of Kaiser Permanente through its Community Benefit work.

The demonstration was attended by other Kaiser Permanente experts and members of the national media, to see “today” and “tomorrow.” And there’s lots of tomorrow happening here, because the reality is that there are still very few organizations that are at this maturity level of electronic health record use.

I’m including some photographs below, and I am supported in sharing them here, just as the innovation will be shared. There’s a fully simulated hospital ward, ambulatory medical center, and even a patient’s home (because that’s where the hub of good health should be). A lot of what is being developed here will find its way to patient care inside of, and outside of Kaiser Permanente. A lot of it already has. From reading Sidney Garfield’s writings, this is by design. Enjoy and feel free to let me/us know what you think.

Photo Friday: The magic of listening: “We know, but we try our hardest to make it work”

November 14th, 2008 | Popularity: 11%
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We Know, But We Try Our Hardest

This week’s photograph was taken in a well known coffee store, where customer evaluations were posted in a conspicuous place. What would it be like for a medical office to do the same?

“Our patients don’t expect us to be perfect, they expect us to recognize our mistakes quickly.” (that’s not on the sign, it’s my quote)

Photo Friday: Patient Involvement Makes People Smile

November 7th, 2008 | Popularity: 36%
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Patient Panel - California Chronic Care Conference - 3

I had a few great photographs to choose from for this week’s Photo Friday, they were of colleagues and friends from this week’s California Chronic Care Conference. Those are posted below. I chose this one to be “the” photograph though – the one of the conference attendees.

Why? Because when I downloaded this one it was different than a typical picture of people at a conference. Look at their faces – they are smiling. They are smiling because they are attending a panel of patients talking about their experiences in and out of health care managing their conditions. The panel was moderated by Alan Glaseroff, MD, and it demonstrated how much energy people get from knowing how their work impacts others. It’s a Toyota Motor principle that I mention often (do I need to stop?) – “Seeing the impact of what you do.”

Thanks to the California Healthcare Foundation for hosting the conference with this idea in mind, and for doing things differently, including no powerpoint slides. Some of the other photographs from this week are below. Enjoy.

Left to right: ePatients and Doctors: Ted, Susannah (Fox), Dave, Sal Volpe, MD; Patient Panel, California Chronic Care Conference; Jay Parkinson, MD, and Susannah Fox.

Free gift with every purchase from Apple, Inc., every search from Google, Inc., and every amazing education from UC Berkeley: Equality

October 26th, 2008 | Popularity: 27%
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I am a customer of the first two organizations and an alumnus of the third. I thank the faculty and especially my fellow students at the University of California for teaching me to appreciate the value of diversity where I work and where I live.

To recap the data that I linked to in this mini-photo essay:

All three organizations agree (here, here, and here) that their positions are based on their interest in supporting diverse communities that can compete locally and globally. The best organizations and communities in the world see diversity as an asset, which is why I work for one, and why I live in one. Respect creates the most powerful stickiness there is.

Photo Friday: Matthew, Indu, and Health 2.0 Wrapup

October 24th, 2008 | Popularity: 26%
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Matthew and Indu

I’ve selected a photograph of Matthew Holt (in the wig and skirt) and Indu Subaiya, MD, performing the lifecycle of a patient in a Heatlh 2.0 world, and the Health 2.0 conference this week, in San Francisco.

As you can see from the remaining photos below, Indu and Matthew had fun with this, and the approach was very effective as people removed themselves from themselves and focused on what these technologies will mean for people throughout life. Here are my remaining photos, click on any to see larger size, and my recap below:

The conference overall was really great and came together very nicely, as a sort of journey, from “what’s being worked on” to “what do we need to do as a society to move into the future.”

In the photos above, you can see Indu and Matthew doing a role play with the various technology companies at Health 2.0, covering everything from genetic science to virtual doctor visits (that’s Roy Schoenberg, MD, from American Well with Matthew on stage).

Josh Lemieux from the Markle Foundation led a panel on privacy issues followed by several technology demonstrations around supporting secure/private access to health information.

I met Joan Osborn and Sheila Subaiya, MD (pictured along with Brian Loew, CEO of Inspire.com) over an ice cream sandwich that I now regret not tasting.

I connected with three pioneers in health information technology to talk about the importance of place and telepresence (complimentary, not in opposition): Trenor Williams, MD, Danny Sands, MD, from Cisco, and Paulanne Balch, MD, from the Colorado Permanente Medical Group.

I got to watch as two pioneers connected, Adam Bosworth from Keas, and Paulanne Balch, MD.

I attended the closing, led by remarks from Alan Greene, MD, David Lansky, PhD, Robert Kolodner, MD , David Kibbe, MD , moderated by Brian Klepper.

A really great thing happened for me when I got to meet the faces and minds behind the Twitterstreams I have been following for the past several months. We’ve become a community; meeting in real life adds that extra layer of respect (Is it GenX of me to get this benefit or do GenY’s get this too?). I think a few really great people also became Twitterized this week…Jane, Patti, Paulanne, Ravi, welcome.

Finally, a curious and exciting thing happened at the very end, with the self-assortment of individuals from the Bos-Wash Megaregion to talk about how we would contribute to the Health 2.0 movement. We think we can and will, as DC realizes its present and future as the epicenter of health care transformation.

Come join us and thanks to Matthew, Indu, the Health 2.0 team, and all of the volunteers and organizations (including flagship sponsor Kaiser Permanente) for making us less afraid of the future.

Health 2.0 – 4 letters and some Photos Too

October 23rd, 2008 | Popularity: 30%
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Here are my photos, with a tiny bit of emphasis on the DC contingent (click any to see larger)

It’s hard to keep up with the energy here. In March, 2008, the motto (thanks to Susannah Fox), was “7 words.” This time, we seem to have become more efficient, and the motto is “4 letters,” and the driving 4 are “H-T-M-L” coined by Anna-Lisa Silvestre, VP of Online Services for Kaiser Permanente.

Why? Because during the consumer engagement demonstrations, Anna-Lisa’s team prepared the user experience based on static HTML to demonstrate the look and feel, rather than a dynamic demonstration. The others did not fare as well. But that’s okay with me – doing live demonstrations are never easy, and I trust that the organizations involved are going to do great work. I’ve had worse happen on stage – it happens. Perfection is not expected, just the ability to fix mistakes quickly.

I was asked yesterday about the energy level, and my answer is based on comparison to meetings which are of people working to help other people (clinicians, doctors, nurses). This gathering is of people who are working to help people just like them, and who are empowered enough to know what is needed. It’s very stimulating for me, and it should be stimulating for our health system. There is so much more we can do for patients that we aren’t doing, yet.

One more 4 letter word – Jane Sarasohn-Kahn (quoted in the New York Times today) mentioned to me that on our panel yesterday that the doctor, the patient, and the health economist did not disagree when it came to talking about Health 2.0, when it might be expected that we should. I have been saying that the killer app of Health 2.0 is “listening to people” but I like that Jane said:

In Health 2.0, “Love is the Killer App.”

Now Reading: The Geography of Personality (A Tale of Two Washingtons – Who’s Your State?)

October 9th, 2008 | Popularity: 32%
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If you’re following this blog it’s pretty clear that I have been examining the impact of location for awhile now, partially for personal reasons, (“Why did you move to Washington, DC, Ted?”) and partially for professional reasons – geographic diversity may emerge to be as important as any other diversity awareness we rely on to keep our nation healthy, physically and emotionally.

This is why I was excited to read the attached article, which is the description of a model for personality characteristics, geographic expression, coupled with an extensive survey of our population and correlation to health and social characteristics. In a nutshell – what’s the personality of each State and how does it manifest?

If you want to get right to the conclusions, the Wall Street Journal has prepared an interactive map of the differences, and you can test yourself on the Big Five Inventory of personality here. In the event you’ve done the Myers-Briggs before, I encourage you to read this article about that tool by Malcolm Gladwell, which casts a fairly large amount of doubt on the usefulness of the Myers-Briggs tool.

A short primer on the dimensions of the BFI:

The central aspect of E (Extraversion) that emerged from the results seemed to emphasize social orientation; that is, state-level E seems to reflect the extent to which people in a region socialize with others. The state-level correlates of A (Agreeableness) allude to friendliness, trust, and helpfulness, which is very similar to conceptualizations of social capital. The defining features of C (Conscientiousness) that emerged seem to denote restraint, order, and dutifulness; that is, individuals in high-C states seem to place more value on rules and obedience than do people in low-C states. State-level N (Neuroticism) reflects social, psychological, and physical well-being. Indeed, the patterns of correlations converged, suggesting that individuals in high-N states are socially isolated and generally unhealthy. State-level O (Openness) seems to capture the degree of creativity, unconventionality, and tolerance in a region.

The kinds of differences described in the article hit me in the face all the time – when I step off a plane in California I can feel the difference – the inventory points to an open, tolerant, place but one that is less social. The contrast between the two Washingtons is especially impressive – Washington State, among the least extroverted (#48 out of 51), District of Columbia, among the most (#3), and also the highest in the nation on the Openness scale (we’re #1. Not so much of a surprise after visiting Tech Cocktail DC 3 recently and interacting with the people here for the past year).

The Ted Angle

When I did my BFI, I scored a perfect 5 the Extraversion scale, middle on Neuroticism, high on Openness, high on Conscientiousness and high on Agreeableness. I think the feeling is best encapsulated by something a physician colleague said to me the other day about where he lives. He said, “I like where I live a lot. Now, if I could move to Manhattan, I’d do it in a heart beat.”

This review for me is about the place that gives a person the most energy to achieve their life goals rather than whether the place we are in is enjoyable or not, as encapsulated by that comment.

Interestingly enough, when I ran one of my blog posts through another BFI engine that looks at writing, the results were similar, off the charts Extraversion, but less Agreeableness and off the charts Openness to experience.

The next time someone asks me why I moved to Washington, DC, my answer will be, “Have you seen my BFI scores?”

The Everyone Else Angle

After reviewing this piece and several other pieces on this topic, (additional link cloud here and here) some interesting questions are raised -

  1. What’s the personality inventory of someone interested in patient empowerment/engagement/transforming the health care system. Are we alike?
  2. What’s the personality inventory of the geography that are the epicenters of this transformation? Where does DC Stand?

Take a look, post your BFI and State correlation in the comments if you’d like. What does this mean for supporting a nation’s health?


Building a Consumer Focused PHR Conference, Sonoma California October 14-15

October 9th, 2008 | Popularity: 19%
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e-patients: Safety Net Populations

September 19th, 2008 | Popularity: 30%
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e-patients: Safety Net Populations

The nice thing about the blogosphere is that when you get behind in your blogging, someone else will help you out. Thanks to Susannah Fox for writing about her experience with us in Oakland, California, around the sharing of Pew Research Data with safety net health care organizations.

The comments on the post are especially heartening, in that they support that involving the audience in the presentation of information is meaningful. In this case, they presented just as much information back, which is as it should be.

If I can have one claim to fame in the convening world, besides audience involvement, it is that internet access, checking e-mail, using the Web is allowed at the discretion of attendees. At the last two meetings where I suggested this, people seemed a little caught off guard that this is okay. I want to change that. Just as in the Results-Only Work Environment, in the Results-Only Meeting Environment, respect for people deciding what is most important to them creates the pressure I like, that I/we need to be more interesting than an e-mail inbox.

Patient Online Access in the Safety Net: Ted’s Slides

August 21st, 2008 | Popularity: 26%
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I am attaching the opening remarks that I made, alongside Veenu Aulakh, at the Patient Online Access in the Safety Net discussion, hosted by the California Healthcare Foundation. It describes the “why?” in the context of my journey of discovery. Click on any image to see full size, and comments are welcome.

Update: Incidentally, depending on the reviewer, I am either congratulated or questioned about my presentation style. I just ran across this very nice slideshare : Death by Powerpoint . See if the slides below are more similar to that ideal (I hope they are)

Sheraton Palace Picketing — Palace Hotel and Hall of Justice

August 20th, 2008 | Popularity: 25%
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  • Sheraton Palace Picketing — Palace Hotel and Hall of Justice – As I sit here working to design a pilot for connecting Californians with chronic illness to their personal health information. It's incredible to walk these halls and think about what happened here 44 years ago. Now, we're doing the same work, in the digital sphere. Every patient deserves to have online access to their care system, insured or not.

Patient Online Access in the Safety Net

August 19th, 2008 | Popularity: 46%
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I admit, that maybe, once or twice in my past, I may have used convening and convener in less than flattering terms, much like I used to use “process” in unflattering terms. I learned through LEAN, though, that process isn’t bad, bad process is bad. And so I have learned the same thing about convening, now that I have done it a couple times this summer, with the California Healthcare Foundation.

The most recent time was yesterday, when Veenu Aulakh, MPH, and I brought together Safety Net health care organizations, and national experts in patient online access and social impact of the Internet to talk about (you can guess…) “Patient Online Access in the Safety Net.”

These being the first convenings I have co-led, rather than participated in, I have learned a ton, and have gotten a good understanding of doing this for a purpose, which both situations have had. In the event we hosted yesterday, in Oakland, I put together an A3 document before we invited anyone, which included the background, the goals, and most importantly, the “why?” we were doing this in the first place. It was really helpful to have created agreement around the “why?” – I referred to this many times in the planning.

At the event itself, I got a new perspective that I had not had as a participant previously. It was one of listener/observer – even when I was doing the talking, I was interested to see reactions and learn what people and organizations are capable of. It made me think that when I have been a participant in convenings in the past, this is what my hosts were doing – learning what myself or my organization was capable of doing to solve a problem, as much as they might have tapped me as an expert. Interesting to have this happening in my brain.

Sharing information happened, too, courtesy of some of the most innovative organizations in the U.S., including Cambridge Health Alliance, University of California, San Francisco’s Positive Health Program , New York’s Primary Care Information Project, Institute for Family Health, and Kaiser Permanente.

In addition to all of this, there were a few nice moments of recognition for people’s work, such as when Jim Kahn, MD, thanked Kate Christensen, MD, and her team at Kaiser Permanente for their support and assistance in the launch of the myHERO patient portal for HIV patients cared for at San Francisco General Hospital.

…and a little something for me, a follow-up conversation with Hilary Worthen, MD, from Cambridge Health Alliance, about his study and pathway to discover and implement LEAN in primary care at CHA. He told me that for him, this is a transition from thinking about exam rooms and staff to “work that you need to get done, defined by doctor and patient.” I love hearing about how people apply their creativity and copy the thinking of LEAN to do exceptional things for their patients.

This being the second time I have done this, I don’t know if it was perfect. We tried a lot of things I’ve not done in meetings before, and I am still working to integrate social media before, during, and after. I am definitely sold on my philosophy of supporting any and all technology use (“if you need or want to use your device, use it”) - I have not, in my conveningness, come around to the “turn your devices off” philosophy, as I have written about previously.

Oh, and I learned that a 60″ table seats 8 people.

Here are a few images from yesterday. I’ll follow up with my slides in a separate post. Click on any to see larger size.

Stepping Through a Patient’s Experience with Hypertension: Making the Diagnosis

August 6th, 2008 | Popularity: 42%
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This is second of a multi-part series on a patient’s experience managing a chronic condition, in this case hypertension. We’re now past the discovery that something may be wrong, and at follow up with a personal physician. Recall that 1/3 of patients do not make it this far.

Click on the image to see it larger size

dx-htn-eytan

Patient Story (Frydman)

I was convinced that the HBP was just a temporary event due to stress and that by the time I had it checked by my friend the problem was gone. The measurements showed that I was completely mistaken. For the first time I was faced with the possibility that I was not really in control with a health problem. Even after a couple of measurements and a strong admonition from my friend to take every day the medicines he prescribed, I was still inclined to deny the reality of the problem. I remember telling myself: ” even if the problem is there to stay I can still afford to wait another 6 months before I become a compliant patient.” And I kept being this stupid and stubborn patient for another 1 1/2 year.

He said: “this is very dangerous. We do not want you to experience a catastrophic event. Therefore you must be treated”

For some reason, that is NOT the message that makes me understand that I really must be treated. There is clearly a missing piece in the way the doc is interacting with me, his friend. By spending maybe 3 to 5 minutes explaining the rational behind the proposed treatment he would have transformed the interaction from – he is forcing me to change – to – I understand why I must change

I was supposed to go back but I didn’t do it. During a business trip I did try checking my BP with a home tool a few times and every time the BP was well within the norms, helping me be even more in denial. But then the next time I went to my friend’s office the data still showed clear HBP. Go figure!

Clinical and Public Health pearls (Houston-Miller)

  • Hypertension is the #1 reason for physician office visits in the United States (9.7% of all visits)
  • 20 % of patients diagnosed with high blood pressure do not actually have it; it is falsely elevated in the doctor’s office (called “white coat hypertension”). This results in unnecessary (and costly) treatment.
  • 10 % of patients measured with normal blood pressure in the doctor’s office actually have high blood pressure (called “masked hypertension”)
  • In recognition of the above, many health plans and Medicare reimburse for “Ambulatory Blood Pressure Monitoring” (CPT Code: 93784), which is a 24-hour, round-the-clock, blood pressure measurement. This type of measurement is typically a research tool and not used in clinical practice. There is no reimbursement for home monitoring currently.
  • The average of 2 home blood pressure readings is more predictive of mortality than screening blood pressures taken by nurses and technicians
  • 32 – 53 % of patients stop their medications by the end of the first year
  • A patient like this is considered “high risk” because he is male and likely to have another condition (such as high cholesterol)

Comment

Where is the data? The diagram and patient’s experience illustrate the fact that the information related to the diagnosis and treatment is typically localized to the provider, and not the patient. When a diagnosis is made, lab studies and medicines are ordered, and the patient’s health plan will receive a claim for the office visit. The patient is typically instructed to come back to the doctor’s office for reassessment, rather than doing self-assessments, and the patient is usually not given a treatment plan, or access to blood pressure and other data generated in the visit.

What’s missing? As in the previous vignette, the patient is without information regarding the significance of the condition, or resources to learn more / compare with other patients’ experiences. In my own searching, I have found limited social networking resources online for blood pressure management, relative to other conditions such as diabetes. This is beginning to change, though, as more organizations, such as the American Heart Association, become active in promoting self-management and personal health records.

Tomorrow, ongoing management and maintenance of blood pressure control. Comments welcomed, of course.


Stepping Through a Patient’s Experience with Hypertension: Initial Discovery

August 5th, 2008 | Popularity: 36%
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This is first of a multi-part series on a patient’s experience managing a chronic condition, in this case hypertension.

Click on the image to see it larger size

initial-htn-eytan

We’ll start with the patient story, told by Gilles Frydman, followed by clinical and public health commentary by Nancy Houston-Miller, RN, BSN, FSHA. At the bottom of this post, I have added information about our patient and clinical expert.

Patient story (Frydman)

I have always had at least a yearly checkup. 3 years ago, while spending a few weeks in the Texas portion of the Chihuaha desert, I noticed that I experienced growing moments of dizziness whenever I would stand up, tie my shoes or leave my bed. During my stay in Texas, a family member had a bicycle accident and ended up in the hospital, located 30 miles away because everybody feared a serious concussion or even worse. While waiting for results from the ER I asked to have my blood pressure checked. A nurse did check it and told me the equipment was probably deffective or something else went wrong and wanted to check it again. The second check showed an extremely HBP (200/130). I was instantly seen by a cardiologist and prescribed a drug to lower the HBP, with a warning that I was at high risk to suffer a catastrophic event if I didn’t bring the HBP under control. And then I was sent home, without any additional Information RX. (A medication was prescribed and Frydman was asked to begin taking it)

Clinical and Public Health pearls (Houston-Miller)

  • Blood pressure of 200/130 typically requires immediate assessment and treatment, with expedient (within 1 week) follow-up
  • 29 % of the U.S. population has hypertension, 76 % are aware of it
  • 1/3 of those found to have high blood blood pressure do not follow up
  • 10.6 % of Californians are diagnosed with high blood pressure
  • 12.4 % of an employee (working) population are typically diagnosed with high blood pressure

Comment

Although our patient was uncertain about whether a medical record was created in the Emergency Room, it is possible and likely that one was created, which contained the blood pressure readings and medication administration or prescription records. Because the patient was not given this information on discharge, the data involved in this episode remained with the provider who originally assessed the blood pressure. Patients may learn that they have high blood pressure in a variety of environments – a health fair, a doctor’s office, an employer-based screening program. In these cases, patients are typically asked to visit with their health care provider for diagnosis and treatment. Recommendations for interval monitoring are typically not made in these cases (today).

» Read more: Stepping Through a Patient’s Experience with Hypertension: Initial Discovery

Stepping Through a Patient’s Experience with Hypertension: Should It Continue This Way? (Intro)

August 4th, 2008 | Popularity: 29%
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We recently facilitated an exercise involving a patient, a clinical expert, and interested stakeholders at the California Healthcare Foundation, to look at the way a chronic condition (in this case, high blood pressure) is managed.

Over the next several days on this blog, I will step through our patient’s real story, along with clinical and public health commentary.

I created this cartoon from the exercise, suitable for downloading and discussion (
PDF version can be downloaded using this link
or click on the image directly to see a larger version):


lifecycle-htn-eytan

The cartoon is based on this output of our exercise which began with our patient’s story, clinical commentary, and the creative use of paper:

Patient Experience walkthrough - 1

Feel free to answer the question in the title of the post at any point.

I will explain the meaning of the symbols and the meaning as we go along.

By the way, the exercise resulted in this future state, which I’ll go over on the last day:


Patient Experience walkthrough - 2

Tomorrow: Step 1 – Initial Discovery

Moving Closer to Patient Centered Care in Yountville, California

July 30th, 2008 | Popularity: 46%
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Yountville

I think word has gotten out that I am something of an urban dweller; Susan Edgman-Levitan was nice enough to ask me, “Ted, are you hanging in there?” as we spent several days in Yountville, California at the American Board of Internal Medicine Foundation forum on Achieving Patient-Centered care.

I ended up doing just fine – it’s about the content, not the place, and a scenic jog through the vineyards of Yountville can’t be argued with.

And the content was right up my alley, with thanks to the ABIM Foundation for hosting this discussion. The discussions at the Forum are being compiled by the ABIM Foundation, so I will let them report on that rather than me, but I can share my perceptions of the event here.

First of all, patients and families were involved throughout, as faculty and equal participants. This continues an important precedent in helping health care leaders achieve comfort with this idea.

One of the most powerful moments was Margaret Murphy sharing the story of her son Kevin’s death (You can read more about it here) within the Irish health system. I really appreciated Mrs. Murphy’s use of images in her storytelling – in the future, a presentation without at least 50 % images and a video or two is going to be minimum bar to go in front of an audience. There was discussion about Kevin’s death being the result of diagnostic error. I think that’s true, and I also think that if the family had access to all of his medical information from the beginning, it might have changed the diagnostic approach or caught the fatal series of errors before they happened.

For my part, I presented the following slides in the 10 minutes I had alotted, around the topic of the use of health information technology to put patients, families, and communities in the center of care.

Enjoy (I hope) and thanks to the ABIM Foundation for hosting this discussion and follow-up.

Click on any image to see them larger

Video: “Goin’ Live” – West County Health Centers, Sonoma, California

July 25th, 2008 | Popularity: 41%
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Jonah Froelich, MPH, California Healthcare Foundation’s resident expert on health information technology sent this along to me and I wanted to post it. It shows the spirit of health professionals who are changing the way they practice because they want to perform better for their patients. Scenes like this are happening all over the United States. Thanks and congratulations to West County Health Centers and (again) to the Redwood Community Health Coalition for sharing their enthusiasm with patients everywhere.

Now Reading: Who’s Your City?: How the Creative Economy Is Making Where to Live the Most Important Decision of Your Life, by Richard Florida

July 24th, 2008 | Popularity: 36%
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The world is not flat; place matters.

I couldn’t agree more with the latest work by Richard Florida. This book looks at the importance of place not only in the global economy but in a person’s life. I personally had a good idea that this made a huge difference some time ago, despite living and working in a world where colleagues work for organizations for which home base is irrelevant.

On this, my 300-day DCVersary, I can confirm that my experience bears this out. Moving from one of the smaller “mega-regions” (Cascadia, Portland, Seattle, Vancouver, 9 million people, $260 billion light-based regional product) to the second largest one in the world (Bos-Wash, Boston-Washington, DC, 54 million people, $2.2 trillion LRP) has undeniably made a significant difference in everything I do, even in a technology-related occupation. As Florida describes, people cluster:

(There is) the tendency of creative people to seek out and thrive in like-minded groups, and (there is the) self-perpetuating economic edge that comes from doing so.

Florida does a good job of reviewing the evidence that place matters, and the idea that its impact on personal and professional happiness has been underemphasized. He combines original research as well as data currently available to create a compelling picture of both the importance of place and the factors about it that matter. One of the interesting explorations in the book is about the personality of cities – extroverted people and agreeable people tend to be localized east of the Mississippi, where “open to experience” people tend to be localized to the coasts, with dominance in California and Bos-Wash (okay, maybe the extroversion doesn’t stretch as far east as DC, and maybe the “open to experience” doesn’t stretch as far South, but I’m pretending they do – you always see the best in something you like).

Throughout, It’s nice to imagine where you might “fit” but also how your own experience stacks up, because an important criteria of a place its aesthetic.

I have been using a curious measure for the past few years to judge aesthetic, the “touch-down” measure. It is, “In what city do you say to yourself, ‘I’m home,’ when the plane touches down on the runway.” I think you can’t fake that. Alternately, it’s the city that when the plane touches down, you say to yourself, “I can’t believe I don’t live here.”

I give strong kudos to Florida for acknowledging the role of diversity and tolerance in a place, not just for minorities, but for all people. He says:

It’s not about tolerance for tolerance’s sake. As my previous research has shown, places that are intolerant simply do not grow. And, as the Place and Happiness Survey confirms, people in intolerant places are less happy and less fulfilled than those in tolerant an open-minded ones.

This finding is similar to research that shows the same thing about organizations. As a patient said to me a very long time ago, “We don’t tolerate diversity (within the organization I work for). We LIVE diversity.” That describes a place that has a better chance of thriving, and one that most people (including me) want to be involved with.

A book by an author that writes a blog is a better read

It is worth mentioning that as I read the book, the positive impact of Florida having experience writing a blog came across, because (a) he brought his personal experiences and those of his colleagues into the story and (b) he crowd sourced several of his ideas, bringing in commentary from blog entries. This made for a much more engaging read, and I can’t help thinking that without this experience, the work might feel less connected to the experience of real people. I think this is an interesting way that blogging is changing traditional publishing because those who blog are forced to become more personal in their communication to be successful. I like it. A lot.

And the winner is…

I have experience living in three mega-regions described in the book: Bos-Wash, Nor-Cal, Cascadia and it was interesting for me to compare the decisions I’ve made with the characteristics of each. All of them offer so much. My recent experience with Bos-Wash has been, well, fantastic, both in terms of livability, ability to be extroverted, and exposure to diverse populations and cultures. Nor-Cal scores high in my book as well as it shares many of the livability and diversity attributes, as well as strong dominance in technology and innovation. Cascadia was definitely enjoyable for the time I spent there.

Who’s Your City? Feel free to post your experiences…

Presentation: “5 1/2 Reasons Why Patients and Families Should Be Involved, and 2 1/2 Things You Can Do To Help”

June 26th, 2008 | Popularity: 44%
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I am posting this presentation that I created, commissioned by the California Healthcare Foundation, and supported by the Center for Information Therapy and indirectly, Group Health Cooperative.

It is the presentation that created the need for me to define Health 2.0. It is also the last presentation I will give as as a Group Health employee, and the only time I will be able to give it, due to my my career change.

It’s in slide show format, so feel free to click on any of the images and page through. I had a lot of fun putting it together because it allowed me to reflect on what I learned and how much I have changed in my thinking in just the past year. May the same trend continue.

I would like to extend special thanks to Crosskeys Media, producers of the excellent show “Remaking of American Medicine,” for allowing me to use portions of the content in the interest of supporting patient centered care. I encourage anyone interested in this topic to view or purchase the show. There is an educational license available that allows for use in teaching (as a whole piece, not intended for editing by users). It’s worth it.

Feedback and comments welcomed.

Spending some time with iMetrikus in California

May 28th, 2008 | Popularity: 25%
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When in California last week, I went to visit Larry Leisure, President, North America, and Deryk Van Brunt, DrPH, Senior VP of Business Development for iMetrikus.

images: click on any to see larger size

iMetrikus is part of the Continua Alliance, and has expertise in collecting and processing patient derived biometric data using FDA-cleared gateways, and in presenting the data to support clinical workflow. Here are a few images of the devices. The MetrikLink device connects many different devices via a phone line or PC, but it is not required if the device has standard connectors. There is also a mobile platform, especially interesting for patients who may rely on a cell phone for Internet connectivity.

Photo Friday: Legion of Honor, San Francisco

May 23rd, 2008 | Popularity: 21%
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Legion of Honor

View from Legion of Honor, San Francisco

View from Legion of Honor, San Francisco

This weeks’s photographs come from San Francisco’s Legion of Honor, which is currently hosting and exhibition of Annie Leibovitz’s photographs. I came here because this was the suggested venue for a walking meeting with Sophia Chang, MD, MPH, one of my advisors at California Healthcare Foundation.

Besides the beautiful scenery, there was significant relevance to health care in the exhibit itself, which included photographs of Ms. Leibovitz’ father and her partner Susan Sontag’s last days. These included a haunting image of her parent’s living room, almost completely taken over by a hospital bed, and photographs that relayed the different ways they died, from the intensity of Susan’s fight to that of her father, who died at home, in the arms of his wife.

Flip this A3 : Project Plan for Connectivity for California Consumers

May 23rd, 2008 | Popularity: 51%
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This post contains the A3 Document, or the Project Plan, for Connectivity for California Consumers. I have been posting some of the data that supports this plan on this blog (click here to see them all). In addition, I have been working with staff at California Healthcare Foundation and potential stakeholders to improve the plan.

For those of you unfamiliar with the A3 format, it is designed to (a) tell a story and (b) incrementally improved to the point that the actions are clear at the time a project is launched. It may be revised once a day or even more often. The process of discussing the project and making improvements is called “nemawashi.” I am using this blog for extended nemawashi, so please post your comments.

Since an A3 tells a story, starting on the left, going down, and then on the right, I will summarize the story here. Feel free to print out the A3 and follow along (A3 means “11 x 17″ paper. You may have to shrink to fit on letter size).

Issue & Focus

  1. The California Healthcare Foundation is dedicated to the improvement of the lives of Californians managing chronic illnesses.
  2. There are many community stakeholders involved in supporting this goal; their work could be improved by making connections to each other that are meaningful for patients.
  3. This is part of a broader strategic plan to support the objective of involving patients and families in all aspects of their care. This is the identified gap to be closed through this work.
  4. California Healthcare Foundation is seen as catalyst and partner for patient engagement in California

Current Condition

  1. There are well known gaps the care of people with high blood pressure
  2. The impact of these gaps is distributed across stakeholders differently compared to other chronic illnesses, which includes a strong productivity-loss component, due to the high prevalence of the condition in employed populations (see charts).
  3. There are examples of employers and technology companies approaching these gaps in hypertension and other chronic illnesses that can be studied.

Problem Analysis

  1. Lack of access to care accounts for only 10% of poor blood pressure control; there is a physician component in setting goals, and a patient component in operationalizing those goals, that may not be accomplished in physician visits alone.
  2. Patients who are not seen at least every 12 months are at greater risk for non-adherence
  3. The societal costs of inadequate management are spread diffusely; few organizations are able to to see the total harm from this perspective
  4. There are few models outside of integrated care systems of using non-visit-based approaches to managing chronic illness.
  5. We are just entering an era of interoperability, with many solutions not yet integrated into the value chain of patients and payers

Target Condition

This pilot seeks to create a functioning ecosystem that supports chronic disease management across the lifecycle, with the best candidate being hypertension

Action Plan

We began by interviewing example employers, health care providers, and technology providers to understand which approaches and components appeared most promising. At this time, it seems most reasonable to approach this first from the employer perspective.

Next step will be to convene a group of potential partners in June or July, 2008, at California Healthcare Foundation, to discuss how pieces would fit together.

A presentation would be made to the CHCF Board in the fall, with funding and activity to begin in 2009.

Cost / Cost-Benefit / Waste Recognition

There are recognized wastes, which include unnecessary visits for blood pressure monitoring, inadequate medication therapy, and inadequate use of the health system, for patients who have not been seen in the past 12 months.

There are costs including, technology costs (although the goal is not to build anything new), and realignment of incentives to support non-visit-based care.

Followup / Unresolved Issues

Points of concern and planned countermeasures

  1. What is the metric for patient access? (Pacific Business Group on Health is working on an employee engagement survey; metrics for patient access to their health data may need to be developed)
  2. How can this complement the launch of both a P4P measure for blood pressure management, and a HEDIS “Relative Resource Use for Uncomplicated Hypertension” measure for 2008?
  3. Data for presenteeism and productivity loss does not seem intuitive (I have reviewed this in depth and we can bring in clinical champions to verify)
  4. Partners and aligned interests (will do due diligence to support cooperative business models of partners)
  5. How to engage patients in things like biometric monitoring and blood pressure control (will look at plan design options, but most importantly will go to the factory floor, and will bring an employee/patient advisor on to the team)

So that’s the script that goes with the story, more or less. Comment away, and keep in mind that each comment will change the A3 a little every time.

Hypertension, Health 2.0, and Indirect Costs, Now it’s Getting Interesting

May 20th, 2008 | Popularity: 41%
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In my fielding of this data to various people, this part of the analysis has been by far the most controversial. Let’s first start with indirect costs added on top of direct costs, from the societal perspective, just for California. By indirect costs, we mean lost time from work (absence and short term disability), presenteeism (impairment while at work, to avoid being absent), and caregiving (21 million working men and women are caregivers in the US)


direct and indirect costs societal perspective

The indirect cost data is only for employed persons reporting the condition, which means it is a subset of the population (doesn’t include indirect costs for the non-employed, doesn’t include costs for the undiagnosed). The graph above is therefore a little bit off, because the medical cost is for all people, productivity costs just for employment related losses.

Now, a different look at the data, which averages costs across the entire employee population, from the employer perspective.


hypertension total costs

This is different because it takes into account prevalence, and spreads that cost over all employees, whether they report the condition or not. My explanation for the different way this data looks is that the medical cost per person for hypertensive employees is far less than for heart disease, but there are many more hypertensive patients in a population. In the employee samples used to derive this data, there’s a factor of 2 difference compared to heart disease (12.4 % vs 6.4 %).

The sources for this data are the same as previous charts (formatted for Zotero, below).

I have already been asked, “Ted, how can high blood pressure cause presenteeism at all?” and I welcome the skepticism. I reviewed the study below, which defined the term for our profession, and it includes a combination of employee studies, some done quite well, that ask about employee impairment and absences due to multiple conditions. This includes things like side effects of medications (which are a cornerstone of hypertension therapy). Questions, based on the study, were things like whether an employee performance was reduced by ‘losing concentration, repeating a job, working more slowly than usual, feeling fatigued, or generally “doing nothing”‘. The authors specifically chose tools that measured multiple conditions at once, so that comparisons could be made.

One novel study worth mentioning specifically is one by Bank One, that used administrative and computerized productivity records of its employees to explicitly measure productivity losses, in addition to using a health risk appraisal and claims data to come up with estimates. For hypertension, the estimate was 0.4 % in this one, which was right in the middle.

Based on my reading of the paper, I am accepting the methodology as supportive. As a student of LEAN, though, I know that the facts are best obtained on the factory floor, so my next interest is in working with an employer, and ultimately and employee, who experiences these conditions first hand. And I do mean on the factory floor, rather than the health system.

After creating this post, I realized that my A3 (coming next) has one inaccuracy. Fixing that, posting it soon.

1. An Unhealthy America: The Economic Burden of Chronic Disease: California. Take a look at the methodology here.

2. Goetzel, Ron Z, Stacey R Long, Ronald J Ozminkowski, Kevin Hawkins, Shaohung Wang, and Wendy Lynch. “Health, absence, disability, and presenteeism cost estimates of certain physical and mental health conditions affecting U.S. employers.” Journal of occupational and environmental medicine / American College of Occupational and Environmental Medicine 46, no. 4 (April 2004): 398-412.

Comment away, this can only improve with input.

More on Hypertenstion and Health 2.0 : Costs

May 19th, 2008 | Popularity: 20%
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Hypertension Costs
Continuing on the case for connecting Californians, here is a look at the direct costs of hypertension (high blood pressure). There are several sources for cost data, the sources I used here typically rely on the Medical Expenditure Panel Survey (MEPS). The references are below.

The first chart shows things from a societal perspective, for California residents, the cost per person reporting the condition. It does not include costs for people who do not report the condition.

The second chart shows things from an employer’s perspective, and is calculated differently – it is the total cost of the condition spread across the entire employee base, per year. On this one, you’ll note that the prevalence of hypertension makes it formidable from an employer’s perspective relative to the other chronic conditions.

There’s a whole lot more to be said about this, but I’ll keep it brief and open things up for comments.

Additional cost estimate (not charted): $US 1,131 direct medical expenditures, prescriptions &gt 50 % of expenditures

Next, a profile of indirect costs.

Sources (Zotero format):

First Chart

1. An Unhealthy America: The Economic Burden of Chronic Disease: California. Take a look at the methodology here.

Second Chart

2. Goetzel, Ron Z, Stacey R Long, Ronald J Ozminkowski, Kevin Hawkins, Shaohung Wang, and Wendy Lynch. “Health, absence, disability, and presenteeism cost estimates of certain physical and mental health conditions affecting U.S. employers.” Journal of occupational and environmental medicine / American College of Occupational and Environmental Medicine 46, no. 4 (April 2004): 398-412.

Additional Estimate

3. Balu, Sanjeev, and Joseph Thomas. “Incremental expenditure of treating hypertension in the United States.” American journal of hypertension : journal of the American Society of Hypertension 19, no. 8 (August 2006): 810-6.

The Case for Hypertension and Health 2.0: California

May 15th, 2008 | Popularity: 33%
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This is simply a redrawing of yesterday’s graphic, based on California population data. This site has an excellent overview of the impact to California. It understates prevalence because it speaks of patients who have had hypertension diagnosed and does not include undiagnosed Californians.

I found a more recent article and updated proportions accordingly ( see, I did find something wrong with the previous diagram )

Click on the images to enlarge

I added a new source, #3 below, since yesterday. This paper has newer control data with a more optimistic point of view:

The prevalence of hypertension has not increased significantly since 1999. At the same time, there has been increasing control rate of hypertension, especially in Mexican American men, elderly, and obese people – Ong, et. al (see below)

(formatted for Zotero):

1. Fang J, Alderman MH, Keenan NL, Ayala C, Croft JB. Hypertension Control at Physicians’ Offices in the United States. Am J Hypertens. 2008;21(2):136-142. Available at: http://dx.doi.org/10.1038/ajh.2007.35 [Accessed May 8, 2008].

2. Rosamond W, Flegal K, Furie K, et al. Heart Disease and Stroke Statistics–2008 Update: A Report From the American Heart Association Statistics Committee and Stroke Statistics Subcommittee. Circulation. 2008;117(4):e25-146. Available at: http://circ.ahajournals.org [Accessed May 7, 2008].

3. Ong KL, Cheung BM, Man YB, Lau CP, Lam KS. Prevalence, Awareness, Treatment, and Control of Hypertension Among United States Adults 1999-2004. Hypertension. 2007;49(1):69-75. Available at: http://hyper.ahajournals.org/cgi/content/abstract/49/1/69 [Accessed May 15, 2008].

Tomorrow, a look at costs, direct and indirect, for the nation and California.

What’s Wrong With this Diagram? The Case for Hypertension and Health 2.0

May 14th, 2008 | Popularity: 31%
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In April of this year, I swtiched gears slightly, from spending time to discover the determinants of patient access / connectivity to their care system through personal health records, to examining the possibilities of creating connectivity with the California Healthcare Foundation.

We’ve been talking to several people and the Foundation is allowing me to present our ideas in sequence, here, for critique, improvement, and interest among potential partners. The goal is to launch a project that will connect multiple stakeholders in the health ecosystem, to improve chronic care management, in California. Timeline and details are going to be posted over time.

Let’s start with the case for hypertension as a chronic illness worthy of examination, though. Take a look at this graphic. What does it say to you about the state of high blood pressure care in the United States? What are the opportunities using HIT and Health 2.0? Are there corrections to be made?

Welcome to my PDCA cycle. Sources are underneath – feel free to ask questions about any of this data. I’ll begin posting regularly under this category.

Update: After finding an error in the image, I decided to leave it in, with this note that it’s incorrect, and a corrected version is in this post. PDCA is about iteration.

Quote: “…undiagnosed hypertension and treated but uncontrolled hypertension occur largely under the watchful eye of the healthcare system.” – Hyman and Pavlik

Sources (formatted for Zotero):

1. Fang J, Alderman MH, Keenan NL, Ayala C, Croft JB. Hypertension Control at Physicians’ Offices in the United States. Am J Hypertens. 2008;21(2):136-142. Available at: http://dx.doi.org/10.1038/ajh.2007.35 [Accessed May 8, 2008].

2. Rosamond W, Flegal K, Furie K, et al. Heart Disease and Stroke Statistics–2008 Update: A Report From the American Heart Association Statistics Committee and Stroke Statistics Subcommittee. Circulation. 2008;117(4):e25-146. Available at: http://circ.ahajournals.org [Accessed May 7, 2008].

Tomorrow: Impact to Californians

Photo Friday: Oakland Bay Bridge

May 9th, 2008 | Popularity: 12%
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This photograph was taken from the headquarters of the Pacific Business Group on Health, when we were meeting with David Lansky, Ph.D. the President and CEO, and Ted von Glahn, MS, to talk about consumer engagement in health care. The second photograph is the wall of fame of PBGH membership and associate membership.

David has been a great proponent of patient and family involvement ever since I have known him and is bringing this approach to his work at PBGH, and both gentlemen have a lot of experience interacting with employers interested in an improved health care system. David contributed a very useful perspective in this California Healthcare Foundation Report on the Future of Personal Health Records last year.

San Francisco

Wall of Fame - PBGH

A Conversation with James Kahn, MD: HERO for the Positive Health Program at UCSF

May 6th, 2008 | Popularity: 27%
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After visiting Sebastopol with Veenu, we were able to visit with other leaders in patient centered care, including James Kahn, MD, from the Positive Health Program at University of California, San Francisco.

I was first exposed to Jim’s work when I shadowed at Lifelong Medical Care in Berkeley, which uses the electronic health record, HERO (Health Care Evaluation Record Organizer (HERO)), developed by the team at UCSF. When I was at Lifelong Medical Care, I appreciated the fact that practitioners caring for HIV patients looked forward to using the electronic health record system to manage these patients’ care. This occurred early on in my shadowing work, and gave me the sense that more physicians in more practice settings are interested in HIT than has been commonly believed.

On this day, at a very hip (yet affordable and with a health care surcharge for employees, we do work in the non-profit world after all) San Francisco eatery, Jim showed us the myHERO portal, which facilitates the care of patients with HIV as part of the Positive Health Program’s work. Veenu and I have been interested in patient connectivity outside of commercially insured groups, and this is the welcome reality that myHERO brings to health care.

Here are some images of our lunchtime tour (Note, as with any demo of systems like this, we only looked at mocked up patients, never at any actual patient information):

myHERO is connected to the electronic health record that the PHP team uses, and it is being set up to support secure portability of information to the places where patients need it. Jim has been leading this effort as both as a clinician and an Informaticist. myHERO brings the concept of a multilingual personal health record forward (it has a spanish version), and Information therapy, through linkages to MEDLINEplus.

It was/is overall terrific to see inroads being made into patient access to health information technology in diverse populations. Jim and UCSF will be able to add information to the best ways to engage patients with chronic illnesses from a variety of backgrounds, an area of health informatics where there is very little data.

As fellow patient-centered care providers, we also had an engaged conversation about how much to share and when, and about the challenge of whether to build something yourself or buy something when it comes to technology. These are great topics to talk about (“the how”), but the core is really “the what,” which is less about the technology and more about the intent to involve patients and their families, which is what we saw, a perfect companion experience to our time in Sebastopol. MyHERO is yet another burst of innovation from the Golden State.

The Patient is Still the Focus: 21st Century Family Medicine in Sebastopol, California

May 3rd, 2008 | Popularity: 40%
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Earlier in my journey, when I visited technologically enabled practices in New York and Washington, DC, I wondered aloud to my project officer, Veenu Aulakh, MPH, from the California Healthcare Foundation, if California would also show itself to be a leader in 21st century medicine enabled by technology. There’s no question that systems like Sutter Health, Kaiser Permanente, and Sharp are national leaders – we were looking for leaders in smaller practices, where 90 % of Americans receive their health care.

Then we discovered Sebastopol Community Health Center, part of the Redwood Community Health Coalition.

I got to visit with Jason Cunningham, DO, the Medical Director and full spectrum family medicine specialist, in March, 2008, but I did not get to shadow him providing care. I wanted to come back, and so I did, this time with Veenu. Coming with Veenu also satisfied my desire to do some shadowing with our funders, because they can see things from a unique perspective. I was able to do the same with our New York funders, when Rachel Block shadowed with us in March. Veenu has an industrial engineering background, so she is not a stranger to shadowing or process improvement.

Jason and the staff gave us a warm welcome, and again it was like walking into the 21st Century (instead of the 19th). Not a single paper chart in sight. There was now an automated vitals machine. Care team coordinators (the role assigned to medical assistants in this model) were now using tablet computers to room patients. Jason and the team were further developing their electronic health record, manufactured by eClinicalWorks, to support a medical home practice.

First photographs – click on any to see larger size

To show the possibilities of collaboration in this new world, Jason informed us that he’s going to install the special build of the product known as “Take Care New York,” or TCNY, tuned for population management and with the experience of the entire Primary Care Information Project in New York city. In other words, California patients are going to benefit from an EHR that includes the experience of New York patients, seamlessly.

Proving the viability of a medical home, even in (especially in) the safety net

As space age as this practice looks, it is not funded predominantly through commercial insurance. Sebastopol Community Health Center is a Federally Qualified Health Center, with a funding stream tied strongly to in person visits. Despite this potential limitation, this health center is working to support visit-based AND non-visit based population care in a financially viable way. They are doing this by maintaining visit density, keeping overhead low, and providing team care coordinators with non-direct-patient care time to co-manage panels, assisted by an introspective EHR. Jason showed us how he can query his panel quickly to build exception reports and understand their health, right within the electronic health record. No separate registry is being used here, which means no interfacing and no double-entry of data.

The shadowing experience

We started the day with the team huddle, which was as futuristic as one would hope – each practitioner with a portable version of the electronic health record, reviewing the patients of the day and preparing for each individualized care experience. By now, Jason has discovered the best approach to using an electronic device in the exam room. Even though this site is described as an “alpha alpha” site, the technology seemed to melt into the background of the green rolling hills during the visit. This could be because the team are using low footprint tablet PCs in exam rooms. It’s also because the devices are used strategically for new vs. follow-up visits. The device is always positioned in patient view, with provider facing the patient.

I could also tell that in true continuous improvement fashion, little things have been changed and improved in the system over time. A new field here, a new way of communicating between the team about something here, an idea to use an exam room one way or another with the computers.

In between patients, I had a great conversation with Jenny, the Center’s Family Nurse Practitioner. She asked for my advice on how to document parts of the patient experience in the health record, and my best answer was to think about where the patient would expect it to be, every time, and put it there. We both agreed, I think, that one of the best things we can do as care providers is to treat a patients’ story with respect by recording it accurately, and making sure it is safely kept where it can be used to support ongoing care by anyone on the team, with all of the appropriate security controls, of course.

Teaching, for a lifetime

Because this medical center is prototyping the future workflow of the rest of the Coalition medical centers, there is always teaching going on of other providers. On this particular day, Harriett, the Care Team Coordinator (a Medical Assistant) was training a fellow Care Team Coordinator on the use of the system.

At one point during the day, Harriett came in for a short break during a very busy morning. I mentioned to her that I noticed that she has a very supportive teaching style. When there was a question, she would make sure that her student learned by doing – she was very good at not taking over the use of the computer, essentially empowering others to learn. A commitment to being an experimental medical center means a commitment to always teaching. I asked about this – how would it feel to be teaching every day for the next few years as the system rolled out, I asked? Her answer was, “This is for a lifetime.”

Fortunately for the Medical Center and her patients, Harriet has been accepted into the Physician Assistant program at University of California, Davis, and Jason has agreed to be her preceptor during her practical work.

I’m Still a Fan

Jason and his colleagues are pouring themselves into to this work, for the benefit of their patients and their community. As I said in March, I am hugely impressed with the initiative to provide the right care first and foremost, with an eye to finances, not the other way around.

» Read more: The Patient is Still the Focus: 21st Century Family Medicine in Sebastopol, California

Photo Friday: A Real Health Care Tax on Your Sandwich; My New Hometown Airline

May 2nd, 2008 | Popularity: 24%
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Slow Club San Francisco

Slow Club San Francisco

At the restaurant Slow Club in San Francisco, we were greeted with this notice when our bill arrived. I think this is a novel and interesting way to bring price transparency to health care. It’s especially interesting that in San Francisco, there’s probably more price transparency coming from this restaurant than from the industry itself (see the middle link from this post about that). I suggest that they go one step farther and publish the health care cost component of every menu item. This just may help spur more consumer interest in the accountable, affordable, evidence-based care system.

VirginAmerica Planes SFO

The other photograph is of a few jets from the airline people are tired of hearing me talk about, VirginAmerica.

Photo: Bear Added Riches in Trust for Mankind

April 12th, 2008 | Popularity: 48%
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I walked past this sign, welcoming people to Pomona College, in Claremont, California. As our profession thinks about broadening consumer health informatics to help more people (from diverse backgrounds and parts of our society), we should remember to share the added riches of our learning, experience, and ideas for improving health care in trust for mankind. More innovation happens when more is shared, not less. This includes what we did well with, and what mistakes we made.

Pomona College Pomona College Pomona College

“I’m not a doctor; I’m not a nurse; but I can tell what’s needed”

April 11th, 2008 | Popularity: 21%
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The quote in the title is from Susan Daniels, PhD, who I was fortunate to serve on a panel at the Consumer Health Informatics Symposium, on the topic of Consumer Health Informatics for Diverse Populations. Susan has extensive experience working with disabled individuals, and spoke eloquently about the needs of the disabled population, beyond managing health, to managing disability determinations, which are critical. I like the statement because it speaks the importance of patient, family, and community involvement in health care and health services.

The image displayed here is from another impressive demonstration, by David Williams from patientslikeme.com. I really liked the feature where patients can document the doses of drugs they are actually taking for various conditions.

There currently isn’t an area dealing with cardiovascular disease, but I would be really interested in an area focusing here, especially when it comes to anti-hypertensives. What if we could have a real sense, across a population, of how well certain drugs work and how long they take to take effect? It is one of those things in primary care where it’s a little unclear exactly when a blood pressure drug will have an impact for a specific patient.

Now Reading: Addressing The Lack Of Diversity In The Health Professions (Health Affairs)

March 28th, 2008 | Popularity: 31%
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413 Grumbach K, Mendoza R. Disparities In Human Resources: Addressing The Lack Of Diversity In The Health Professions. Health Aff. 2008;27(2):413-422. [Accessed March 27, 2008].

This is a nice analysis of solutions from the Family and Community Medicine Team at University of California, San Francisco, to support diversity in the health professions, which unfortunately have not yet reached levels comparable to the general population, especially in allopathic medicine.

There are two concepts that reinforce that this is not just an issue for health care, it is an issue for society, and the people and businesses that depend on a strong health care system:

The business case highlights the customer service and competitive advantages to the health industry of having a workforce that is culturally and linguistically attuned to the increasing diversity of the nation’s health care consumers.

and

A wide group of organizations—including the AAMC and other health professions educational organizations, higher education institutions, consumer groups, and Fortune 500 companies—contributed amicus briefs and other documents in support of the University of Michigan in Grutter v. Bolinger, signifying a more concerted effort to identify and organize stakeholders interested in supporting diversity efforts.

Many physicians, myself included, work in the most downstream parts of this ecosystem, and it’s therefore helpful to consider that there are places we can be to create a more effective care system for everyone. From my travels to date, it’s clear to me that these are worthy investments of my physician colleagues’ expertise. None of us enjoy waking up to a world where the quality of health care is dependent on things other than the fact that you are a human being.

A mini-tour of MiVia

March 13th, 2008 | Popularity: 28%
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Yesterday, I wrote a post about my visit to Sonoma, California, and the health care that MiVia is enabling. Heidi Stovall then gave me a tour of the application, and allowed me to take screen shots of it to post here. All of the information in the screen shots are not from real patients, so there is no personal health information being displayed.

Let’s take these one by one. And here are the images that go with the tour. Click on any to see full size.

  1. This is the patient login, and includes their identification screen. Notice the LAC. That’s a “Limited Access Code” and allows a selected person access to the information, for example a care provider in an emergency.
  2. A chart note. This allows a provider to document right into the patient’s personal health record. An interesting paradigm – the customer of this system is the patient, not the provider (sort of how I think these systems should be designed). Important to remember that these patients typically do not have medical records in other EHRs.
  3. The printable ID card. I mentioned yesterday that this is not an actual ID, but to the users, it signifies “belonging” to something. At the same time, it can be given to a provider to signify that “there is a place you can go to learn about my medical and dental history.” It’s worth noting that my health plan offers this, but via a telephone service, not through the Web (I can access my own information, but I do not have an access code I can give to someone to do it for me).
  4. A medical summary report. A easy place to find out about a person’s medical and dental conditions.
  5. Sharing preferences. The patient can automatically add their record to the roster of a participating provider. If they do not add this, the provider can also add the patient by getting access code information. Again, the heritage of a patient-centered application is apparent. I think this looks very simple and understandable.
  6. Pain and symptom diary. What’s significant here is that the patient-centered nature of this record means that patients can document in it as much as providers can. It’s a basic interface to be sure, but physicians know that a cornerstone of pain management is for patients to document what they are feeling.
  7. Dental Records. Again, a basic interface, but it’s a bit of a breakthrough in my experience to combine oral health and general health in one place. From the patient perspective this makes total sense. From the physician perspective, we are used to segregating “medical” and “dental.” Why? Tradition? Because we went to different professional schools? I think the patient’s way is the best way.
  8. CCR Export. I think this is one of the most promising features. It’s clear that this is a group of patients that are unlikely to be served by a health system with a tethered PHR, and one of our findings is that a tethered PHR is not the only way to serve patients. What if this subset of the community could upload their record to a tethered system, for example, if they receive care in a tertiary care hospital, or if they obtain a specialty consult in a system that has an EHR? In this case, they will still use MiVia as their portal. The idea is that the specialty care provider could either document here (copy their note), or send a CCR export to MiVia.

Here are some thoughts:
» Read more: A mini-tour of MiVia

Innovative Reimbursement for EHR-using physicians; 9 Principles of Innovation (Google); Twitter; Services for Farm Workers Online

March 12th, 2008 | Popularity: 28%
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March 7th through March 11th:

“Because Everyone Wants to Belong” – MiVia, a community’s personal health record system

March 12th, 2008 | Popularity: 19%
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Imagine that you were working internationally and had a serious stomach ache and needed to see a doctor. When you went into the medical clinic, the doctor asked you what medicines you were taking and what the status of your medical conditions were. What if you didn’t know or couldn’t tell them because you were in so much pain or you had seen a doctor but they didn’t give you a copy of your medical record. What if you lived in that same community for 5 years, but weren’t sure if you needed any medicine or treatment to prevent illness, and no one was keeping track. What if it felt like you didn’t belong….

While in California, I was honored to be invited to visit with the principals of MiVia, based in Sonoma, California. Here’s a short history of the system

 

MiVIA™ (My Way) was designed as a collaborative effort of Vineyard Worker Services, St. Joseph Health System- Sonoma County and Community Health Resource & Development Center in 2002. Since then, these community based organizations have worked closely to help improve the quality of life and health conditions of farm workers living and working in the Sonoma Valley and beyond.

Today I will post about my experience with the health care associated with MiVia. Tomorrow, I’ll post a virtual tour of the system.

I arrived at the MiVia headquarters in Sonoma, a humbly-appointed, former OB-Gyn practice, where I was greeted by Cynthia Solomon and Heidi Stovall. Heidi offered me the choice of an overview of the work before heading over to the mobile health units. Of course I chose to go to where the work happens, and Heidi told me the story along the way. During our ride, I learned that MiVia was born out of a personal family need for members with significant health conditions to have their medical information available at all times. Then, in looking at the community, for them to have this access as well. What Cynthia and Heidi did was take their experience managing private medical practices, and apply it to community clinic settings, and ultimately in the care of this population (farm workers without ready access to care), and I am so glad I got to see it from this perspective.

We arrived at La Luz Community Center, where the St. Joseph’s Mobile Medical Clinic was parked, and I was introduced to Jessica Alcantar, one of the “Promotores de Salud,” and Jackie Williams, the Supervisor of the Clinic. Jessica showed me how she brought families into the care system by signing them up for MiVia first. The Promotores program is an innovation of this health system, and is essential to the use of the personal health record system. It allows anyone to have access to MiVia, and the team also does educational sessions about the use of the Internet for this population. Jessica told me that as an exercise, she taught the use of Google Earth to show people how they could find their nearest library. I asked about the value of the Internet in this population, and Jessica said, “They know the advantage of being able to connect with people back home.” A great demonstration of the shattering of conventional wisdom that the Internet is only useful for some and not all.

MiVia was developed in collaboration with the people it serves, and one of the unanticipated “wins” of the system was the MiVia ID card (see pictures). These can be printed on demand off of the Web, and are also issued to members as laminated card. For the people being served, this is often the only identification they have, their only tangible “belonging” to this community. The card is not just identification…more on that tomorrow.

In La Luz, a healthy cooking class was taking place as patients were being seen in the mobile clinic.

Here are my pictures from the visit, click on any to see full size, and then the “continue” link below to read on….

» Read more: “Because Everyone Wants to Belong” – MiVia, a community’s personal health record system

A Medical Home enabled by technology in Sonoma, California

March 11th, 2008 | Popularity: 35%
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While in the Bay Area, I had the opportunity to visit with Jason Cunningham, DO, at the Sebastopol Community Health Center in Sonoma, California. The Sebastopol Community Health Center is part of the Redwood Community Health Coalition, which is embarking on an ambitious electronic health record project, using the eClinicalWorks application.

Jason is a Board Certified Family Medicine specialist practicing a full spectrum of the specialty, including OB, pediatrics, and inpatient care. Unfortunately, I came to see the Center after he had finished seeing patients for the day, so I was unable to shadow. However, Jason embraced the idea of a walking meeting, so I could say I shadowed in the community as opposed to the medical office as we put steps on the pedometer.

Jason’s health center is designed to pilot an advanced medical home model, facilitated with a complete electronic health record. There are less patients receiving care at this brand new center while different approaches to care are tested in the practice. Specifically, there is more involvement of support staff in panel management, and a focus on excellent primary care provision, with a goal of creating a sustainable approach across the community. What I was really impressed by is the fact that this work is being done with the current reimbursement system as it is; in other words, the team is working to demonstrate better outcomes and affordable care through a focus on comprehensive primary care, within a safety-net, federally qualified health center system that emphasizes in-person visits. They are not waiting for a change in reimbursement approach to do this work.

In terms of the layout of the medical center itself, you can see from the images below that there is a focus on bringing the patient into the care experience. The patient sits across from the physician, and the computer, a tablet PC, is arranged so that both physician and patient have access to the information being used. Jason is also using after visit summaries with his patients, as shown in the image (test data shown), so that they leave with a written description of the visit and next steps. I of course think this is a key part of patient centered health information technology.

The surrounding community is both beautiful and also working diligently to provide access to regular, quality, primary care across the population.

Images, click on any to see full size

» Read more: A Medical Home enabled by technology in Sonoma, California

Steve Jobs and Leadership Philosophy; Health Plans and AMA less EHR supportive?; Two Health2.0 Services

March 10th, 2008 | Popularity: 63%
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March 4th through March 6th:

Sharp HealthCare – Getting Ready for the Future in San Diego

March 10th, 2008 | Popularity: 10%
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Our week in California was a very productive one, in addition to our time at the Health2.0 Conference, because we visited several innovative practices in San Diego and the Bay Area.

One of those is Sharp HealthCare, which bills itself with the following (impressive) credentials:

Sharp HealthCare is San Diego’s health care leader with seven hospitals, three affiliated medical groups and a health plan. We are a 2007 Malcolm Baldrige National Quality Award recipient thanks to our doctors, nurses and 14,000 employees. Sharp is a not-for-profit and relies on philanthropy.

We spent our time with the Rees-Stealy Medical Group, at their downtown campus.

Sharp is a local and national leader in quality and a star in achieving goals as part of pay for performance programs.

First, the pictures, click on any to see full size:

» Read more: Sharp HealthCare – Getting Ready for the Future in San Diego

Photo Friday: Good Morning Eureka Valley, San Francisco

March 7th, 2008 | Popularity: 17%
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I am in California this week, and spending some time in the bay area following my visit to San Diego for Health 2.0. This photo celebrates another community that celebrates diversity, my favorite kind. You can see Sutro Tower in the background. Enjoy.

Eureka Valley

“What about one to many or many to many?” at Health 2.0

March 4th, 2008 | Popularity: 10%
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Josh and I are in San Diego this week for the Health 2.0 Conference, and to interact with innovative California health care organizations. I think we are two of the few people in the U.S. that did not attend HIMSS last week. However, we are two of the few people in the U.S. who are attending Health 2.0.

The quote in the title was from my table at the “Unconference” which was facilitated by Enoch Choi, MD, from the Palo Alto Medical Foundation. It refers to the difference between web services offered by physician groups and what could be offered.

In the kinds of conferences I go to, attended mostly by medical professionals (and in many parts of my medical group itself), I typically feel like “year ahead of my time guy.” (This post from my blog, using a cute Apple commercial, I think illustrates the dilemma well). In this group, though, I feel like “year behind everyone else guy (person)” and that’s pressure that I like. The current state of the art of patient access to their care team(s) is one to one, and in the next step should be many to many. I gave the example of a patient electing to have a surgical procedure. What might be one of the first questions they would ask. How about, “Can I talk to other patients who have had this procedure? And who have had it performed by you?”

We had a discussion about creating change and where that might happen – from within the (medical) profession or outside of it. Keith Schorsch, the CEO of Seattle-based Trusera offered the idea of the “enlightened” provider. I asked if there was a registry where we could all sign up. I was kidding though, because in my (our) travels so far, I find that all physicians/providers are enlightened, when we support them in being so. And that comes from thinking about the patient at the center.

The Kaiser Permanente Effect

Something I noticed that I need to watch out for, more carefully than I did on day 1, is the impact of being in a room of innovators as a representative of a large medical group / health plan. I say “Kaiser Permanente” effect even though I am not a Kaiser Permanante employee, but the thought/idea that permeates an audience sometimes when I/we represent ourselves and our work is the one that goes something like, “Only Kaiser Permanente/Group Health can do that kind of innovation.” That statement can be taken two ways – it can mean, “We aren’t going to do anything innovative because we aren’t structured like that.” I think in this audience, my concern is that it can be taken as, “We don’t have the ability to overcome inertia outside of a Kaiser Permanente/Group Health system.”

I think the statement in general is incorrect, and that’s good news. As I sometimes say, I am going to spend the day watching myself and listening 51 % of the time. There are a lot of smart people here working very hard to stimulate improvement in the health care system we all use; they are thinking of innovation 24/7 and I want to help make their ideas count. And pick up some new ones along the way.

Speaking of Innovation

One of the reasons we are here is to visit and shadow providers at Sharp Health Care. As you can tell from the image above, they are a leader in health care and interested in providing patient-centered health information technology. Josh and I presented our work to the group and it was well received. We’ll be shadowing in one of their medical facilities in the next two days.

PCHIT Personas: Vulnerable Population

February 27th, 2008 | Popularity: 43%
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In many, if not all, of the sites we visited, the question of disparate access to PCHIT was raised. The same question has been raised with regard to EHR’s as well. In its report, the Expert Consensus Panel (see Electronic Health Records Still Not Routine Part of Medial Practice, Robert Wood Johnson Foundation, 3:27):

(The Expert Consensus Panel) has identified racial and ethnic minority patients and low-income or publicly insured patients as the two highest priority patient populations

The PCHIT Initiative broadens this view of vulnerable populations to include those with documented disparities including but not limited to individuals who are lesbian, gay, bisexual, and transgender. An additional vulnerable population of interest are returning soldiers (see: Longitudinal Assessment of Mental Health Problems Among Active and Reserve Component Soldiers Returning From the Iraq War).

Available data about Internet access contradicts conventional wisdom

Charts: Click on any to see full size (Sources: Benchmarking Digital Inclusion, ITIF, and Estabrook L, Witt E, Rainie L. Information Searches that solve problems. Washington, DC: Pew Internet & American Life Project; 2007)

In a review of the literature related to Internet use among vulnerable populations, we discovered that commonly held beliefs about use and access are not true. Even at the lowest educational and income levels, Internet use approaches 60 %, where it was only 10-30 % in 2001.

The following studies shed additional light on this issue:

A more sensitive indicator of patient access to electronic health records is likely to be online banking (see this post on that topic), because online banking requires confidence and convenience as well as access to be successful.

Income And Online Banking 2007.003Online banking use and income level, from Online Shopping, Pew Internet & American Life Project, 2008

East Boston NHC, Administrative Building

East Boston Community

Patient-centered HIT applications do not necessarily require use of a computer on the consumer’s end. For example, a mobile phone may be the most effective vehicle for certain populations, whether the information coming to them is in the form of an automated phone call (which can be delivered in multiple languages), a text message (such as for medication reminders), or a more sophisticated combination of audio, graphics and video. A variety of strategies are profiled in a recent report published by the Georgetown Health Policy Institute’s Center for Children and Families (see Health Information Technology: Innovative Applications for Medicaid).

Outside of patient access to computers or the Internet, there are opportunities

Some analysts shortchange vulnerable populations by suggesting that language barriers, the digital divide, or health literacy pose insurmountable obstacles to effective PHR adoption. Perhaps no population faces a greater panoply of barriers–including Spanish as primary language, health literacy, access to computers and the Internet, geographic challenges, and a lack of care continuity–than migrant farm workers. The tool, MiVia, has demonstrated that PHRs can be effective tools when appropriate accommodations are made, such as using community health workers to help facilitate PHR adoption.

As we consider patient-centered health information technology, the definition should be broadened beyond personal health records, to any technology that provides the benefits and impacts of patient access. These impacts accrue whenever the health system is accountable to those it serves, by providing them the information they generate about them, whether in paper, computer or smart card form.

Unresolved issues

  • It is unclear how pervasive the conventional wisdom of the “digital divide” is, and if there are related factors that would bias toward inaction even if the data were better understood for populations studied (ethnicity, income, education)
  • For populations that are less well studied (e.g. lesbian, gay, bisexual, transgender, returning soldiers), the impact of provision of access to PCHIT in safety net environments is also unknown. With limited funding available to study sexual minority populations, for example, disparities may only be exacerbated in an environment of HIT without PCHIT.

Countermeasures

In 2008, we are emphasizing safety net providers and vulnerable populations in PCHIT work. We are providing the technical assistance of a knowledgeable medical informaticist and patient empowerment advocate to demonstrate the impact of PCHIT in a vulnerable population. We would also like to spend some effort in packaging this data and presenting it in leadership forums. Ted Eytan did this recently for the District of Columbia Primary Care Association, where it was well received (see Presentation to DCPCA, December 18, 2007), as well as on a recent event at Urban Health Plan, in Bronx, New York (see: “We did it! Thanks Affinity Health Plan and Urban Health Plan!“)

Unite HERE!

Ways to Engage

In addition to working with health care and IT leadership on promoting PCHIT as part of HIT, it would be valuable to engage with patients themselves. In 2008, we are hoping to shadow a patient who is part of a vulnerable population as they manage chronic disease. This will most likely happen on our trip to Sonoma, California, in March, 2008.

PCHIT Personas: Integrated Delivery System

February 18th, 2008 | Popularity: 27%
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Kaiser Permanente Oakland

Sites Visited

Benchmarks in incentive alignment and scale

Kaiser Permanente, and organizations like it, are in many ways a benchmark for patient centered health information technology. They have the highest EHR and PHR penetration in health care. Kaiser Permanente currently has 1.7 million of its members using its PHR, and relaunched in November, 2007 as “My Health Manager.” Group Health Cooperative of Washington State is currently at 46 % of enrolled adults with verified access to the MyGroupHealth web site.

MyGroupHealth Adoption Curve

MyGroupHealth (ghc.org) adoption curve, 2002-present

The alignment of incentives is reflected in the slope of adoption by patients. The adoption curve for Group Health patients is significantly steeper than comparable organizations (see: Halamka JD, Mandl KD, Tang PC. Early Experiences with Personal Health Records. J Am Med Inform Assoc 2008;15:1-7.)

The work of these organizations is critical in demonstrating that patient centered health information technology can be a reality for all of health care. As we observed, they are post-implementation and involved in relaunch and refinements of their PHRs to support both patient workflow, and the workflow of staff who serve patients in medical centers.

If there are challenges in these organizations, it is that their work requires scalability beyond the typical physician practice, so there is always a risk that innovative ideas may be harder to implement. They are able to work around some of these limitations by supporting regions with higher levels of innovation (for example, the Colorado Region of Kaiser Permanente is a pioneer in teen-physician electronic messaging, see iHealthBeat: Kaiser Colorado Lets Teenagers E-Mail Doctors, Check EHRs).

In my visits to these organizations as a Permanente physician myself, followed by visits to other organizations described here, I noted an gap in knowledge about the potential of PHRs – an understanding of the benefits of PHRs of involving patients and their families in their care has been built up through experience among Permanente physicians that does not yet exist in other parts of health care. In addition, there is no official policy for knowledge transfer that I noticed. Group Health Cooperative generally shares knowledge in the interest of promoting patient empowerment. Kaiser Permanente is embarking on a significant initiative to share its experiences as well. In a session hosted at the California Healthcare Foundation, Holly Potter, Director of National Communications for Kaiser Permanente HealthConnect indicated to the group that, “We don’t have that option anymore” (see: Presentation: Blogs in Health Care) when it comes to delaying or restricting communication about its efforts to the community.

Unresolved issues

  • Person to person knowledge transfer (attitudes, technical, workflow) to non-integrated care systems
  • Risk of reduced innovation due to high expectations for consistent service across large populations

Countermeasures

ONC and Kaiser Permanente staff on Process Walk

Doug VanZoeren, MD, Mark Snyder, MD, and Ted Eytan, MD, bring leaders from the Office of the National Coordinator to Kaiser Permanente West End Medical Center, Washington, DC

This initiative represents a portion of the effort that Kaiser Permanente and Group Health Cooperative are making to provide knowledge to the entire industry. Other efforts include participation in national standards bodies, commissioning high quality research studies, and providing access to its operations (see: Office of the National Coordinator Visits Kaiser Permanente West End Medical Center). One of the most important efforts I have been engaging in throughout is to bring technical and execution expertise to organizations who are implementing PHRs. This will continue throughout the initiative.

It might be useful in the future for these organizations to put together a publicly available “toolkit” for PHR implementation, which would include everything from tested organizational policies, communication collateral, and staff and patient adoption techniques. Currently, this information is being transferred one to one by individuals within the organization. Perhaps a repository of experiential knowledge of basic items such authentication procedures could be made available for other organizations.

Group Health Cooperative has previously released its “Clinical Information System Rollout Toolkit” to the health care community for unrestricted use. We did not create a companion “PHR Toolkit,” however as a part of this work, I recently put together a basic PHR Toolkit that was forwarded to the Institute for Family Health, to assist in their implementation efforts.

Ways to Engage

Victor Silvester, MD

Victor Silvestre, MD, Kaiser Permanente Oakland Medical Center

Kaiser Permanente is engaged at many levels to promote PHRs, including in the establishment of standards and sharing information, including on this blog.

Several staff members in these organizations are active in public conversations, such as on standards bodies, and are an excellent way to support involvement and knowledge transfer. In addition, given current initiatives to demonstrate the value of their care models, both organizations’ Communications departments will be useful in arranging for access to practices and Permanente physicians who can demonstrate the value of PHR-enabled practices.

PCHIT Personas: Mutispecialty Group Practice

February 15th, 2008 | Popularity: 23%
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Sites Visited

Thad Schilling, MD, and Caroline

Challenges with Patient Adoption

This seemed to be the hallmark of the multispecialty groups we visited, all with different organizational structures. Harvard Vanguard is a private multispecialty group, has an existing patient portal, MyHealth Online, as does Partners Health Care, in Patient Gateway. John Muir Physicians have chosen the RelayHealth platform, but have not yet implemented it across all care sites.

In observations at the practice level, we noticed an enthusiasm for PHRs in both HVMA and Partners, and both organizations are putting some effort toward promoting adoption. For example, brochures at nurses stations.

At the same time, the messages at times seemed ambiguous at the level of the patient. For examples, physicians in practices served by Patient Gateway are communicating with patients outside of the Patient Gateway environment, using electronic mail. Partners has a Physician Leader accountable for Patient Gateway’s success. Harvard Vanguard Medical Associates does not. There was not a consistent approach among physicians at sites we visited (both Boston organizations) with regard to explaining the benefits of these tools to patients. We also noticed signs like the one pictured here, which describe a workflow that makes less sense in the presence of a personal health record system.

Attention - Now using PHR!

Independent acts of adoption were visible, however, at several sites, such as Masschussetts General Beacon Hill Primary Care, where Administrative Manager Richard Perrotti has worked with medical staff to integrate Patient Gateway into the care experience. In addition, practices that we observed were interested in ideas to promote adoption from others engaged in PHR use in practice, which leads us to believe that there is receptivity to a consistent message about benefits.

Data in a recently published article demonstrates flat adoption curves (see: Halamka JD, Mandl KD, Tang PC. Early Experiences with Personal Health Records. J Am Med Inform Assoc 2008;15:1-7) for other institutions local to HVMA and Partners, most notably Beth Israel Deaconess Medical Center. This is despite the fact that these organizations do not charge additional fees for use of these services.

Internal, External, Technical Factors?

When on site in Boston, organizations we spoke with acknowledged that hurdles to promoting adoption originated in internal prioritization of multiple initiatives, as opposed to external factors. This may be prevent the application of resources to developing a coordinated approach to adoption.

» Read more: PCHIT Personas: Mutispecialty Group Practice

PCHIT Personas: Small Practice

February 14th, 2008 | Popularity: 26%
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Sites Visited

Innovative, and Pressured

Blackhawk Medical Center - New and Old together

Blackhawk Medical Center:
New displacing Old

Small practices compose the bulk of physician organizations – 93 percent of US practices have less than 6 physicians, 96 percent have less than 10 physicians*. Percent penetration of “full” electronic health records in this population is still less than 10 percent, with up to 24 percent with some form of EHR (see Electronic Health Records Still Not Routine Part of Medial Practice, Robert Wood Johnson Foundation). This makes for a large potential market for vendors on the one hand, and a more costly sales proposition on the other hand. To quote the AC Group (White Paper on 2006 EHR/EMR Marketplace):

it appears that the adoption rate is increasing by only 32% per year. Therefore, if the current trend continues, the total adoption rate will only be around 52% by 2010. So what will it take to increase EHR adoption? The industry must create financial incentives for physician adoption. Without financial incentives, the US EHR market will never exceed 50%.

We witnessed this challenge at Blackhawk Medical Center, part of the John Muir Physician Network. The practice has purchased an EHR with its own funds, with plans to tie to the larger organization’s patient portal.

Implementing an EHR within a small practice places pressure on the practice itself to show return on investment in the long term, and in the short term, to justify the upheaval caused by this transformation. When we went to shadow Dr. Schierman in his office, he apologized for the appearance of medical charts on his desk, which he was methodically reviewing in preparation for scanning. This is balanced by the external pressure of competing group model practices in the area who generally have higher HIT adoption rates and richer support (financial, technical, legal). A survey performed by the California Medical Association in 2005 and reported by the California Healthcare Foundation found that the greatest barrier to EHR use among physicians was the expense to purchase them (see Electronic Health Records Still Not Routine Part of Medial Practice, Robert Wood Johnson Foundation, and “Snapshot: The State of Health Information Technology in California, 2008 – CHCF.org”).

At the same time, projects like the Center for Practice Innovation of the American College of Physicians, are bringing forward practitioners who illustrate an advantage of these practices (see Small Practices leading the way: ACP’s Center for Practice Innovation).

Because the locus of control is within the practice in terms of workflow and information technology, there is a greater capability to experiment. In addition, there is greater capability to experiment with lighter-weight systems, including systems that are subscription-based, to examine changes in care independent of the technology. At the CPI’s November meeting, I saw several presentations given by small practices about their use of subscription based messaging and patient-entered-data systems.

One interesting development I noticed was the Ideal Micropractice, where physicians have minimal to no support staff, and with it a much greater capability to experiment with patient-centered health care and technology in support of a different cost-model for medical care.

All of this said, we did not find deep understanding of the value of personal health records in these environments. I (Ted) found that there was ready uptake of the concepts when they were introduced in these groups. However, there was a noted tendency before the conversation started to have a bias toward inaction. At the Center for Practice Improvement’s November meeting bore this out. Prior to several presentations touching on patient-physician messaging, a question was asked of the audience about patient-physician e-mail, with an ambivalent response. Following the presentations however, several individuals appeared much more enthusiastic about this work.

Awareness-building is occurring on a national basis as well. In a 2007 article in Family Practice Management, “Are your Patients Ready for Electronic Communication?,” the authors come to a surprising conclusion about their practice:

Overall, we were pleased to learn that 88 percent of our patients are able to access the Internet or e-mail either at home, through a public facility, or through family or friends. We had anticipated a much lower number. We were also impressed that 78 percent of patients with Internet access (either at home or elsewhere) expressed interest in using some form of electronic communication either to contact our office or to receive health-related information from our office.

I experienced a similar finding within the practice at Blackhawk Medical Center, when Dr. Michael Schierman took the time to ask each of his patients that day how they would feel about patient-physician messaging. The answers to the question, once asked, and the response, were similar to what was written about in the article above.

Unresolved Issues

  • Funding sources for small practices to adopt health information technology are less clear relative to safety net providers or larger practices
  • Conventional wisdom about the value of patient access to their health information online may lend to inaction
  • External environment/incentives send an ambiguous message regarding adoption of patient accesss in electronic health record implementation

Countermeasures

Final resting spot for charts

Charts, scanned, secured, and ready for permanent storage

We plan to continue following the John Muir experience, given the presence of a strategy to integrate a patient portal and an electronic health record, and the innovative nature of this practice to begin with. This may provide support for the idea of PHRs in other practices. We would also like to connect with payers who support small practices to examine the relative priority given to supporting technology and patient-centered care in payment policies.

Ways to Engage

  • Connection with innovators in the field
  • Connection with specialty societies and practice innovation centers
  • Connection at the payer level

*A note about practice size

In reviewing data for this persona, we came across several different measures for practice size, including “Percent physicians practicing in a practice of a certain size” and “Percent of practices of a certain size.” In our travels, we have also witnessed the communication of this data differently. For the purposes of this special report, we prefer to report by “Percent practices of a certain size” since this represents the experience that a patient will see when they receive care, and since a practice is most likely the unit of adoption of HIT.

To see a list of links that display this data different ways, go to PCHIT Personas: Practice Size

Medical Home in NY to include PHRs; PHRs in California – Not Yet?

January 30th, 2008 | Popularity: 21%
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PCHIT links for January 14th through January 29th:

Return to regular publishing; Nice Commentary from the Technology Sector

January 28th, 2008 | Popularity: 12%
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I am back from my Internet holiday (highly recommended!), which means a return to regular publishing on this blog. We are planning our next trip to New York City, publishing of our PCHIT Personas Special Report, and a final trip to California, stay tuned, and please add to the discussion. Comments are now turned back on for your interaction pleasure.

In the meantime, I ran across this commentary from Joerg Schwarz, the Director of Healthcare & Life Sciences at Sun Microsystems, about the value of the PHR in health care. My presentation at the Northern Calfornia HIMSS in December was useful in that I learned about the role of technology companies, both as experts in supporting a great customer experience online, and as purchasers, in promoting personal health records. Endorsements like Joerg’s below make a difference in fostering adoption across the industry.

Norcal HIMSS chapter – PHR Workshop : Joerg Schwarz on Health Care

White Paper – Patient-Centered Applications, Forrester on Health Plans and PHRs

December 28th, 2007 | Popularity: 33%
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PCHIT links for December 26th through December 27th:

Disparities in clinical care – avoiding them in HIT; California CHC implementing an EHR

December 24th, 2007 | Popularity: 26%
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PCHIT links for December 19th through December 21st:

Northern California HIMSS talks PHRs

December 13th, 2007 | Popularity: 7%
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At the conclusion of my visit to California, I was invited to participate in the Northern California Chapter of the Healthcare Information Management Systems Society December event, which focused on Personal Health Records. Talk about great timing. The presentations will be posted to the Northern California HIMSS web site, so rather than post mine here, I’ll encourage readers to find it there when it’s posted in the near future.

The event was held at the historic Sun Microsystems Auditorium, on the Sun Microsystems campus in Santa Clara, California, the heart of Silicon Valley. I haven’t spent much time in Silicon Valley, so for me it’s sort of a mythical place. It was a great experience.

This was a different audience for me, someone who is more accustomed to a health care provider audience, as opposed to an audience made up of technology professionals. What did I learn? I learned that there is a lot more expertise out there working to make PHRs a reality. I spoke with Martin Fisher, Chief Information Officer, from the MedicAlert Foundation about the different approaches that the health care industry and technology industry are taking to make PHRs a reality for consumers, which includes the idea that the technology sector has very good experience being customer centric across industries. The MedicAlert PHR itself is interesting – it’s a PHR that is needed on demand, must be as accurate as the most recent touch with a person’s health or health care, and has less of a dependency on historical information based on the reason for its use.

I also learned about the work that large health plans like Anthem are doing to combine the data they have in claims databases with clinical data, most notably in Ohio at the Kettering Health Network. For my part, I talked about the work Group Health Cooperative and Kaiser Permanente has done to wire the “last mile” between patients and care teams by integrating the PHR with the electronic health record. It was great to see the audience engaged and interested in furthering PHR development health care. It’s getting some real attention, and we will do well to listen and collaborate with technology experts, by demonstrating the impact on patients for everything that we/they do.

The session was coordinated by Jan Oldenburg, who is on the leadership team for Kaiser Permanente’s kp.org. Jan is actively participating in supporting public forums like this, as well as investing time in defining the best PHRs through participation in policy and standards bodies. I’m mentioning this because I think it’s a promising development that organizations who implement this work on behalf of their patients are going beyond their membership to share what they know with the community, and from my perspective, I think they have to – the only way to experience the power of a personal health record is to use one yourself.

Finally, I believe several HIMSS chapters are hosting forums on patient centered health information technology across the nation, including Washington, DC’s chapter, on January 17, 2008. These sessions are open to the public and a good way to meet other professionals working in the field.

La Clinica de La Raza, EHRs and PHRs

December 11th, 2007 | Popularity: 10%
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This post is a continuation of my experience at La Clinica de La Raza in Oakland, California. As I mentioned previously, it was a great experience and I was welcomed by the staff and providers who serve this community.

I mentioned that most of the clinical work performed here uses a paper medical record. There is laboratory testing and medication look-up, as well as scheduling features. I asked both Steve Schiff, FNP, and Bina Patel, MD, their thoughts about going electronic, and even communicating with patients online. Because providers share a communal work space, I received additional perspectives. Patri Zayas, MD, the Medical Director, also stopped in to say hello and answer questions about the Medical Center.

Bina told me that when she looked to move to California, she interviewed at 7 safety-net medical organizations, and none of them had or were planning to get electronic health records. She hoped to use an EHR in her new clinical environment. I asked her about e-mailing with her patients. She said that she does some of this now, and would look forward to doing it more comprehensively. She trained in a location with an electronic health record and is very comfortable with the electronic tools she has access to here.

I also talked to Steve and his colleagues, and learned that many patients in this community don’t have good reading skills, and often, the individuals in the home that can read are children, and not at a level that is sufficient for translating health information. A real dilemma. It is not one PHR fits all. Many providers here do not have experience with electronic health records, except perhaps at patients at other systems, such as Kaiser Permanente. As I spoke with Patri, I understood that the clinicians here have a good sense of what the right clinical goals are for their patients, but it may be hard to conceptualize how to get there with an electronic health record right now. I felt the same way when we started our journey 5 years ago.

I was very kindly invited to the all staff meeting held on that day by Suzy Mejivar, the Manager of the Clinic, which was a celebration of a lot of hard work by the staff. La Clinica had passed a level of volume of encounters that had never been achieved before (and I recalled a comment made at another safety-net medcial centers that encounter numbers are essential in this environment to survival). Suzy individually thanked each staff group for all of their teamwork. She said, “Love each other, respect each other, and work together.” She even complimented one of her case managers when she said that she knew they were doing a good job because she was at her aunt’s house when her aunt received a call from La Clinica. This is a measure of the integration in the community that this organization has. Suzy did ask me to introduce myself to the group, which I did, and when I said, “Our practice has been fully electronic since 2004,” I got a sense of excitement from the staff present.

What next?
» Read more: La Clinica de La Raza, EHRs and PHRs

“Isn’t she the cutest? She’s my patient, too”: La Clinica de La Raza, Oakland, California

December 10th, 2007 | Popularity: 7%
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These were the words of Bina Patel, MD, who introduced the new baby of one of her female patients to me in an exam room. To another family physician, these words are magical, and the way that Bina smiled when she said them was an instant reminder to me of why family medicine is so special. We live to take care of whole families and their communities, and a lot of pride comes from being able to be there for all of them.

This is part 1. Part 2 will be posted tomorrow, in the interest of readability.

From La Clínica’s Web site:

La Clínica has played an important role in the East Bay by offering low-cost quality health care services for multilingual and multicultural populations at 23 locations in three counties: Alameda, Contra Costa, and Solano counties, with many of our patients served in the City of Oakland. La Clínica’s comprehensive services include: pediatrics, family medicine, women’s health care, mental health services, dental and vision care, and health education. We offer these services regardless of people’s ability to pay or insurance coverage.

To most effectively serve the diverse community of the East Bay, La Clínica hires health practitioners who fluently speak Spanish, English, Chinese, as well as Hindi, Arabic, and Amharic. We also make a concerted effort to recruit doctors, nurses, health educators and other providers who come from the same cultures as our patients.

The commitment to supporting the community with providers that reflect its own culture was very evident when I was invited for a visit. What was also evident when I entered the facility was the amount of care that was being provided – a lot. There was what I would say was a level of activity I had not encountered at Kaiser Permanente or John Muir Health – a “buzz.” It was reflected all the way into provider workspaces, which are shared.

On the day I attended, there was a bit of what I called a “cake explosion,” with the staff celebrating a colleague’s birthday. I had to include pictures here, and especially one of the slice plated on a fraction of a plate – this organization is concerned with affordability all the way down to their celebrations! Kidding aside, the way the staff celebrated each other on the day I visited was impressive.

Pictures: Click on any to see full size

The practices

» Read more: “Isn’t she the cutest? She’s my patient, too”: La Clinica de La Raza, Oakland, California

Presentation: Blogs in Health Care; Council of Accountable Physician Practices

December 6th, 2007 | Popularity: 22%
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Eytan-Chcf Web2 2007-2

PDF: Web 2.0 for Planning, Communication and Change Management, Ted Eytan, MD

California Healthcare Foundation

Given at California Healthcare Foundation’s new headquarters, Oakland, CA

It was a busy week in California, starting with a visit to the California Healthcare Foundation’s new headquarters in Oakland, California. I was honored to lead a discussion on the use of “Web 2.0″ (mostly focusing on blogs) in health care. This blog itself is an experiment, partially funded by the Foundation. I think the basic message is “If you don’t, they will,” and “being transparent and accountable as a health system can inspire confidence.”

I first gave this presentation with Andy Wiesenthal, MD, who leads the Kaiser Permanente HealthConnect project, at a User Group meeting for Epic Systems clients, later within my own health system, Group Health Cooperative, and now this public version.

I am a bit of an evangelist now of using Web 2.0 in Healthcare, and consider myself “very available” when it comes to the opportunity to give this presentation to other audiences. It’s been a great journey, as you can see in the slides.

We had a nice discussion about the value of blogging and transparency in different environments. The presentation is meant to be informational, without any particular recommendation for the philanthrophy community. Of interest, though, was a question posed about how to move to Web 2.0 in a large organization. My answer was, “Slowly” and “not to shock the system.”

What was really great was that Holly Potter, the Director of Communication for the HealthConnect project was in attendance, and her response was, “It would be nice to have the luxury of being that deliberate. We don’t have that option anymore.” Holly’s team supports a project that touches millions of lives. She related her experience as the person accountable for ensuring that the communities that are touched by this project have the most accurate information about it, all the time. It was very powerful to have Holly present in the discussion, in my opinion.

Council of Accountable Physician Practices (CAPP)

Speaking of accountability, I was also fortunate to meet Nancy Taylor, the Executive Director of CAPP, which is an affiliate of the American Medical Group Association. The medical group I belong to, Group Health Permanente, is a member of CAPP, and these are the medical groups that are working to promote a health care system that is “more accountable to patients, consumers, and purchasers.”

I actually didn’t know about CAPP before I started this work, but as I look at the roster, it’s a who’s who of innovators in the personal health record / patient-centered care world.

This is not to say, though, that CAPP groups are the only ones innovating. As I discussed previously on this blog, there is a lot going on in smaller practices supported by the American College of Physicians and the American Academy of Family Physicians. At the same time, this consortium represents another nice touchpoint for those who ask, “Who can I talk to about implementing patient centered health information technology?”

Of course, in the shadow of the talk I had just given, I thought about which of these medical groups have blogs where they are communicating their work to the public. I don’t know the answer to that question (and if any of them are reading this, please post your comments here about that). I hope at some point to interact more with the Council and maybe discuss the opportunity to be even more transparent using Web 2.0 technology

I am wrapping up my time in California, with just a few more posts to go, and I wanted to again thank the California Healthcare Foundation and The Council of Accountable Physician Practices for their support of patient centered health information technology.

Pictures and Quotes: Kaiser Permanente Oakland Medical Center

December 5th, 2007 | Popularity: 13%
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I am adding images from Josh’s and my visit to Kaiser Permanente Oakland Medical Center in this post, plus a few quotes from Victor and his Medical Assistant, Monica.

I’ve just got these two things and it (the system) prioritizes them nicely – Victor Silvestre, MD

Victor said this as he pointed to the home screen of the electronic health record, HealthConnect. On the left were his day’s visits, on the right was his electronic In Basket, which included patient secure e-mail, right within his workflow.

I loved this quote because it echoes perfectly what my medical partner David McCulloch, MD, Medical Director of Clinical Improvement and Education, says about the patient view of health care:


Patientviewidealhealthcare

Instead of many many things we need to give to patients, it’s just two things, illustrated above and in Victor’s quote.

I used to check for patient e-mail’s exactly 4 times per week. Now I do it millions of times a day – Victor Silvestre, MD

In this quote, he was referring to the impact of integrating secure e-mail into his workflow, as part of the EHR he uses to care for patients every day. The “millions of times” was in jest of course, but the idea is that as he touches the system many times a day to support patients who come to visit him in person, he can also simultaneously touch patients who are not in front of him, and blend that into his support of a whole population seamlessly.

It’s better than all…..this (waving a paper chart) – Monica, Medical Assistant

This was the answer when I asked what Monica thought of the EHR she’s using in practice with her care team. What I was that the staff was eager to use the new technology to do more for patients, and in several instances, to support physicians in using it better. That’s the nice thing about patient-centered health information technology – everyone gets to help everyone use it better for people.

Images: click on any to see larger. I’m including a bonus of myself and Ed Cohen, MD, who’s the Physician Lead for kp.org for The Permanente Medical Group and who helped arrange today’s visit in the interest of sharing knowledge.

“I want my doctors to meet me half way” : Lifelong Medical Care, Part I

December 2nd, 2007 | Popularity: 7%
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Berkeley Primary Care

Lifelong Medical Care, Berkeley Primary Care, Berkeley, California

These were the words of a young man who stayed for a few minutes after his primary care visit at Downtown Berkeley Primary Care, to talk to me about his care experience. In fact, this was a new experience for me, too, because it was the first time that a physician whom I was shadowing asked me to do more than observe the visit. Pete Lovett, MD, is the Associate Medical Director of the Berkeley Primary Care Clinic and my guide during the visit.

A little background, first, and a good illustration of why there is more to an organization than their Web site. I am going to break this description into 2 posts for readability.

I was connected to Lifelong Medical via the California Healthcare Foundation, which has a strong interest in supporting the safety net medical providers in the communities it serves. On lifelongmedical.org, it says, “LifeLong is known as the primary “safety net” provider of medical services to the uninsured and those with complex health needs in Berkeley, North Oakland, Albany and Emeryville. In 2004, LifeLong provided approximately 101,000 primary care visits to over 17,000 people, nearly half of whom were uninsured.” I knew prior to visiting that LifeLong does most of its charting on paper, and does not have an online personal health record for its patients. My presumption then, was that I would be here as a comparison for other safety net medical centers I am working with on the East Coast, many of whom I am working with because they have full EHRs or who are in the process of getting them.

Pete is a family physician trained in the National Health Service in the United Kingdom, with experience as Family Practice Faculty at University of California, San Francisco. As a physician in the NHS, he has experience with paperless practices, and in fact told me that his work in the United States has meant a return to less developed ways of moving information around. It turns out that LifeLong Medical does have experience with an EHR that it uses exclusively for its HIV patients.

» Read more: “I want my doctors to meet me half way” : Lifelong Medical Care, Part I

PCHIT in California; Kaiser Permanente HealthConnect Online Leadership Meeting

November 29th, 2007 | Popularity: 38%
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IMG_0369.JPG

Kate Christensen, MD, Medical Director, kp.org, with Paulanne Balch, MD, Physician Lead for HealthConnect Online, Colorado Region

Greetings from Oakland, where I have been graciously invited to attend a get together of Kaiser Permanente’s clinical and business leadership for HealthConnect Online, which serves the personal health record connected to the electronic health record, HealthConnect, and accessible through kp.org.

I will say that even in the absence of the PCHIT work, I would want to be here. Why? Because I have always thought that the most innovative staff within Kaiser Permanente support the HealthConnect project, and the most innovative of that group support HealthConnect Online.

This was the first such meeting with every Kaiser Permanente region now fully live with the PHR, with Ohio up now for 30 days. And from my perspective, the news is good. As each region of the system discussed their current and future plans for the PHR, commentary focused on value of each feature for the members. I really liked what Gail Sands, Director of Innovative Projects for the Ohio region said: “This is the patient’s chart. They should know what’s inside.”

Strides in Transparency

» Read more: PCHIT in California; Kaiser Permanente HealthConnect Online Leadership Meeting

kp.org relaunched with My Heath Manager today

November 7th, 2007 | Popularity: 20%
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This is a link to Kaiser Permanente’s press release about the relaunch of the site with My Health Manager. As the release states, the personal health record is continuing to be a large focus of Kaiser Permanente’s work in health information technology. All of Kaiser Permanente’s regions are now operating a personal health record as of this year now that Ohio is online.

Of interest, they are also going through and replacing “your” references to “my” references around the site. For the PCHIT initiative, we are following the progress of Kaiser Permanente as a benchmark organization, and they are a sponsoring partner.

One of my to-do’s is to schedule an in depth tour of kp.org. I am a user (and builder!) of Group Health’s PHR, which is based on similar technology. I know from my own physician and patient experience that more interaction like this is the right step forward for the people we serve.

Kaiser Permanente Puts Personal Health Record Front and Center

The new kp.org

November 1st, 2007 | Popularity: 19%
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Part of the support for PCHIT comes from Kaiser Permanente, which operates the kp.org portal for its patients. Part of what we’ll do is to demonstrate the work that organizations are doing alongside kp.org, which has 1,558,651 signed up for secure features, as of second quarter, 2007. I think that makes this one of the largest, if not the largest in the world.

Kaiser Permanente has posted a flash video of the new kp.org for external audiences which will include “My Health Manager.” Take a look – what do you think?

I hope to be shadowing in a Kaiser Permanente facility soon to observe how physicians and staff leverage kp.org in practice. The mid-Atlantic Region is pioneering online booking of medical appointments right now.