Archive for the ‘Opinion’ category

Virginia: State Employees Lose Protections from Anti-LGBT Discrimination

February 19th, 2010 | Popularity: 4%
0 comments | Leave a reply

Virginia: State Employees Lose Protections from Anti-LGBT Discrimination « HRC Back Story – I’m joining in the chorus of disappointment for Virginia’s residents with the decision of their governor to reinstate discrimination for lesbian, gay, bisexual, and transgender state employees. As I have written on this blog extensively, diversity is a health issue, and in this economy especially, it doesn’t serve purpose to promote a hostile workforce, or for citizens in need to receive services from employees that work in one.

Some time ago, I used to teach a class at the University of Washington School of Medicine on diversity in the health professionals, and I reminded students that in most parts of Washington State (at the time), it was still legal to fire someone from their job for no other reason than that they were lesbian, gay, bisexual, or transgender.

This is no longer true in Washington State, however, this is a reminder that such discrimination is still legal across most of the United States, in 2010. And this is just employment.

The words of Mildred Loving, whose case, Loving v Virginia, ended racial discrimination in marriage in 1967 are appropriate here, considering that she sued the State of Virginia. Here’s what she said on the decision’s 40th Anniversary:

“Not a day goes by that I don’t think of Richard and our love, our right to marry, and how much it meant to me to have that freedom to marry the person precious to me, even if others thought he was the ‘wrong kind of person’ for me to marry. I believe all Americans, no matter their race, no matter their sex, no matter their sexual orientation, should have that same freedom to marry.”

Meanwhile, Washington, DC, is barelling toward the end of marriage discrimination, set to end in less than a month, in March, 2010, and many Virginia employers, including mine, respect the value of diversity. People are excited and happier to live in a place that supports equality. See for yourself:

Washington, DC is the #epicenter of equality, too. Come join us.

Telehealth now: Why (in some cases) it may be healthier for patients to go online intead of to their doctor

October 1st, 2009 | Popularity: 6%
1 comment

This is a longer-ish piece that was commissioned by the California Healthcare Foundation earlier this year. It never made it into publication, so through the magic of Web2.0, I’m publishing it here.

I’ve re-reviewed the data below and feel it is still accurate, with the exception that I have found newer information that indicates that the rate of “masked hypertension” discussed below may be as high as 50%, rather than the 10% quoted.

Enjoy and see what you think.

In June, 2008, I was asked by the California Healthcare Foundation to investigate the chronic conditions that might benefit from patient-centered health information technology applications in employed populations.

I assumed that we would likely target the 5% of the population that accounts for 50% of health care costs – the so-called “high concentration (of expenditures)” patients. Conditions accounting for these costs include mood disorders, diabetes, heart disease, asthma, and hypertension. High-concentration patients have several of these at the same time.

After I reviewed the data, spoke with national experts, shadowed physician visits, and spoke to patients, my colleagues at the California Healthcare Foundation and I physically stepped a group of California high-tech, employer, and health care stakeholders through to the conclusion that shocked me. It isn’t the smaller number of patients with multiple chronic conditions where the impact for patient centered health information technology is greatest. It is the enormous number of patients with one chronic condition where the greatest difference can be made. In the case of blood pressure, I believe the data points to the idea that the management of blood pressure in a doctor’s office without the use of telehealth may be unsafe. I learned that with telehealth, we have the opportunity to improve the quality, safety, and cost of a condition that affects one-third of the US population, as well as to rethink a paradigm to really put the patient at the center of care.

The opportunities to improve blood pressure control have been well characterized by the expert community interested in hypertension. In 2008, however, two significant pieces of work emerged to make the case for widespread telehealth implementation.

The first was the joint American Heart Association, American Society of Hypertension, and Preventive Cardiovascular Nurses Association Scientific Statement, “Call to Action on Use and Reimbursement for Home Blood Pressure Monitoring,” which introduced me to the work of Nancy Houston-Miller, RN, BSN, FAHA, a national expert in hypertension management and cardiac rehabilitation. The second was the publication of a multi-million-dollar randomized controlled trial of blood pressure management through a secure web portal at Group Health Cooperative in Washington State. The first piece consolodated the science and major issues around changing the way we manage blood pressure. The second piece provided definitive proof of the value of online interactions with patients in improving chronic condition management. In the study, there was a marked and significant improvement in blood pressure control when patients were coached and supported outside of the doctor’s office their community.

We know that today’s standard of care for managing blood pressure doesn’t set a very high bar for quality. The national rate of control of blood pressure (for most people, below 140 mm Hg systolic, 90 mm Hg diastolic, lower for some people such as those with diabetes) is 37%. In 2004, it was determined that the percent of patients leaving their doctor’s office with their blood pressure under control was 45%, or less than the odds of flipping a coin. Most patients with high blood pressure in the US are insured and have access to care – less than 10 % of uncontrolled hypertension is due to lack of health care use, so this is not a problem of lack of coverage. In fact, hypertension is the #1 reason for a visit to the doctor in the United States.

Within the in-person doctor visit, the numbers become even more concerning – about 20% of the time, a patient is diagnosed with high blood pressure in the office when they are really not hypertensive. This is known as “white-coat hypertension” and results in these patients being placed on medications, sometimes for life, unnecessarily.

About 10% of the time, a patient is not diagnosed with hypertension in the office when they do have high blood pressure. This is known as “masked hypertension.” According to Huston-Miller, this number may be even higher. Just as some people are thought to remember to floss their teeth a week before their dental appointment, the same happens with people and blood pressure medicine before the doctor visit. It’s therefore possible that many more patients are really not under control, with potentially devastating results.

An important issue I discovered is with the paradigm of today’s blood pressure management – the “data” needed to make decisions is localized to the doctor rather than the patient. Doctors say things like, “Come back in 2 weeks and I will check your blood pressure,” which gives the impression that the doctor’s role is to tell you, the patient, what is happening with your body. If this is how we frame the condition, is it any wonder that some patients think about medication as the kind of thing to take to make their doctor happy rather than themselves? When I put the data about errors in diagnosis, errors in treatment, and the fact that high blood pressure may account for 27% of cardiovascular disease events in women and 37% in men, I began to think that blood pressure management localized to the doctor’s office may not only be inadequate, it may be harmful.

Unfortunately, the cost for this level of quality is high – $51 billion per year in direct health care costs, and dwarfed by the indirect cost – around $300 billion per year. Why $300 billion? Studies have shown that for an individual person, the loss of productivity is not as great due to hypertension compared to other conditions. However, the number of people affected – over 65 million – takes a huge overall toll on employers, families, and patients themselves. The indirect cost is borne by all of society rather than the health care system, which may explain why health-system supported telehealth applications tend to focus on high direct-cost conditions, such as congestive heart failure.

Interestingly, the Center for Medicare and Medicaid Services and most major health plans understand the cost of misdiagnosis. They pay for a type of home-based diagnosis called because they have determined that enough patients can avoid unnecessary treatment this way. There’s even a CPT code (93784) that covers the following:

“Ambulatory blood pressure monitoring, utilizing a system such as magnetic tape and/or computer disk, for 24 hours or longer; including recording, scanning analysis, interpretation and report.”

This CPT code is rarely billed for, because the technology involved in “Ambulatory Monitoring” isn’t practical – it involves wearing an inflatable cuff on your arm for 24 hours straight.

A comparable CPT code for modern home-based monitors that are as accurate at predicting heart damage from high blood pressure with just two measurements a day could dramatically change this current state. Consumer purchased blood pressure cuffs are now able to store readings digitally and transmit them electronically for review against targets set by physicians.

Electronic transmission is important – 20% of readings written down by patients can be significanlty inaccurate. The detailed algorithm for diagnosing and treating is beyond the scope of this piece; however, one exists and few patients and physicians know about it, most likely because our system continues to emphasize the physician-visit so strongly.

The final hurdle I have considered is the one around patient engagement. This is the statment made to me so many times in the past year: “But Ted, patients really aren’t interested in monitoring their blood pressure/taking responsibility for their health.” Again, a review of the literature explodes this myth. Studies show patients actually perceive home measurement of blood pressure as the most preferred method compared to checks by their doctor, their nurse, or by themselves in the doctor’s office. Patients also have greater interest in their conditions that we give them credit for:

“It is very clear from the interview data that patients have their own ideas, and spend a lot more time thinking about their BP than is apparent in the average 10-min consultation in general practice.” (From: http://www.nature.com/jhh/journal/v17/n7/abs/1001582a.html – Rickerby, J, and J Woodward. “Patients’ experiences and opinions of home blood pressure measurement.” J Hum Hypertens 17, no. 7 (0): 495-503. )

The story of the opportunity our nation has through the use of telehealth is illustrated well in the example of blood pressure management. With a comprehensive approach to use telehealth, the use of the physician-office blood pressure check should significantly decrease, and the use of the home-based blood pressure check should significantly increase. Less patients would require medication. A change in paradigm will occur, from one of the patient asking their doctor for their blood pressure reading to one of the doctor asking the patient. In this way the talent and interest of patients and their families in managing their own health can be leveraged. With conversion of an existing CPT code that reimburses for legacy technology to one that reimburses for modern techology, physicians can be reimbursed for the congitive services they provide in coaching and guiding patients to better health.

The most important potential outcome we can achieve is the one all patients and their physicians want most – to be diagnosed correctly, managed accurately, and to leave every interaction with the health system more healthy than when they arrived.


How would you counsel this patient?

September 29th, 2009 | Popularity: 5%
0 comments | Leave a reply


This 2:45 clip from this week’s “Brothers and Sisters” dramatizes one of the most difficult experiences patients and physicians face in health care (make sure you watch the whole clip).

I was struck by the way the physician pre-counseled Calista Flockhart’s character:

  • Should she have provided information differently?
  • What should she have said if the result from the test wasn’t going to come back the same day?

With this vignette and another on 30Rock that I posted about previously, I imagine that the shows are trying to show a real view of health care, and also, for those who have experienced these situations, the hope that maybe the way things are today could be different.

This may be especially true now that we know that 7.1 % of abnormal tests in general and a percentage of abnormal imaging results may go unreported to patients.

It will be interesting to watch as this story unfolds if the character and her family are as involved in the care as they want to be. Will the pathology result be available to the patient and her family online?


Surgeons send ‘tweets’ from operating room – CNN.com

February 18th, 2009 | Popularity: 15%
1 comment

Surgeons send ‘tweets’ from operating room – CNN.com

Dr. Craig Rogers, the lead surgeon in the Henry Ford surgery, said the impetus for his Twittering was to let people know that a tumor can be removed without taking the entire kidney.

“We’re trying to use this as a way to get the word out,” Rogers said.

This is great! Now, let’s twitter people successfully managing chronic illnesses with the support of their friends and family. I’m still working on my twitterBP-bot, got a little sidetracked…..

Safeway Foodflex: Now more flexible

January 22nd, 2009 | Popularity: 27%
2 comments
foodflex1

About a month ago, I posted a review of Safeway Foodflex , which intrigued me as a novel health management tool that uses data that is far more significant than that generated in medical care – what we eat. You can read the review here.  

I noted in the review that the site was down when I wrote my post – it was confirmed for me that this is because the site was in the midst of a major overhaul to improve its usability and focus. With that in mind I wanted to revisit to see what was different. I did get a little help understanding some of the features, but I have not spoken with the team at Safeway yet. They are of course welcome to comment/add information to what I write here!

The impact of transparent sharing

As the title of the post says, there is a really nice evolution happening here. First, its important to point out that the revolutionary concept that started with the last version is carried forward here – that your grocery will provide you (me) with the data we generate with our purchases and help us (me) leverage it for our health. Think about this for a minute – how much purchasing data do we generate in our daily lives, and how transparently is that shared with us?

A note about sharing personal data

In this blog review I struggled a bit regarding whether to share screenshots from my own account. Even though it’s perfectly legal, I have a rule in my professional life that I never demo my own medical record. My rationale behind this is that it’s poor form to use my account as a demo because it may unintentionally create an expectation for other employees/leaders that their personal medical information is sharable in public forums, even though there is no such expectation – my employer vigorously protects the privacy of its members/patients information. The better course is for organizations to create demonstration systems.

In this case, I decided that since I am a customer of Safeway and not an employee, that it’s okay since I’m not creating expectations for other customers or employees of Safeway. The application of the above is that I would not expect to see a Safeway employee demo this system using their own personal data.

I have blurred out my purchase details in any event.

Goal oriented: The case of sodium

I decided to focus on my intake of sodium, because I happen to dislike a lot of it in my diet, and as you can see from the screenshots below, I was able to go to household trend for sodium, zero in on a hidden source of it (fat free salad dressing, I really had no idea), find an alternative, and then see the impact on my trend. Slick.

What an improvement over conventional medical care today – in the doctor’s office we just don’t have time to review a person’s diet history, and usually just a few screening questions are possible, like “do you salt your food?” or “do you drink whole or nonfat milk?” I could imagine a nutritionist or a physician prescribing the use of this site with a goal to get sodium below a certain amount.

I think the site does a good job of not being prescriptive since it is not run by a health system – the focus is on USDA requirements without any valuation about whether there is “too much” of any nutrient. A health system involvement could make this a bit more relevant, by tying the results to clinical goals, however.

Future expansion

The site is not currently linked to Safeway.com for ordering of food. In addition, there still isn’t linkage to product images or food labels. I understand that this is a bit similar to the challenge in health care of putting drug labels and medication images together. It’s not an easy task.

Even more possibilities through integration of community and the health system

The site is a great example of Health 1.0 (and that’s a compliment, the competition is Health 0.0), through its liberation and simple management of the data. The power of this information included in a patient’s health record could be significant.

For example, in the future people could compare food choices with other patients who identify themselves with certain chronic conditions and maybe the quality of the management. You could ask, “Show me the shopping list of people with hemoglobin A1c’s under 7.0″

Or as Susannah Fox noted in a comment on the last post, “show me the shopping list of other families managing severe food allergies,” and “allow me to send a list of products (or evan a full shopping order) to family who we are visiting in preparation for a visit.”

In interactions with the health system, in a future world, maybe there could be a print format co-designed with a health system for reporting nutrient intake, and setting goals. In a world of HIT interoperability, I’d also be interested in standards for electronically conveying nutritional information into a personal health record, and ultimately into an electronic health record for use in medical care.

And of course let’s not forget even farther ranging applications, like Twitter integration (“Mother, I noticed on your Twitterfeed that your caloric intake is down over the past 2 weeks, are you feeling okay?”) and mobility.

A PHR for Food

I think Safeway’s work in this area should be watched and supported – I can imagine so many exam room conversations that could be impacted by a good discussion of what we eat. The foundation for those discussions is information – perhaps a discussion of Food 2.0 might be worthwhile at the upcoming Health 2.0 conference…..

Images: Click on any to see larger

“What on earth is the rationale there?” : Prohibition on sharing test results with patients online in California

January 21st, 2009 | Popularity: 37%
8 comments

The question asked in the title of this post is one I have as well, so I’ve decided to ask it in this post.

It was posed by e-Patient Dave in a comment on this post illustrating the challenge of test result sharing with patients today.

He’s referring to California Health and Safety Code Section 123148 , which makes it illegal to share certain kinds of test results with patients online. It also says:

In the event that a health care professional arranges for the provision of test results by Internet posting or other electronic manner, the results shall be delivered to a patient in a reasonable time period, but only after the results have been reviewed by the health care professional.

Knowing what we know about health care, reasonable time period and “only after the results have been reviewed” may be in conflict.

I understand this law was passed in 2002, so in 2009, I’d like to ask patients and those who care for them what they know of the rationale here? If you do not live in California, is there any such legislation in your state? If this law no longer existed, can people envision what the harms (and benefits) would be?

Mike Leavitt – Link Medical Funding to Interoperable Records (including with patients?)

December 29th, 2008 | Popularity: 24%
2 comments

Mike Leavitt – Link Medical Funding to Interoperable Records – washingtonpost.com

The parenthesis in the title are mine:

Before lawmakers act, they need to think: If stimulus money supports a proliferation of systems that can’t exchange information, we will only be replacing paper-based silos of medical information with more expensive, computer-based silos that are barely more useful. Critical information will remain trapped in proprietary systems, unable to get to where it’s needed.

I would suggest that we be concerned also about the proliferation of systems that keep patients’ health information opaque to patients themselves. The new HHS Privacy Framework, in my opinion, seems to open the door to this possibility (I will quote on it in a post tomorrow) – if a stimulus money is given to a system, should the system also be interoperable with patients and their families by giving them access to it?

Safeway Foodflex: Somewhat flexible

December 10th, 2008 | Popularity: 23%
4 comments

Ted Foodflex2

After using Safeway’s Foodflex (and I think that’s the link, the site is down during this writing for scheduled maintenance. I think http://www.foodflex.com works as well) I realized that there’s an organization that has as much if not more data relevant to my health as my health system does – the grocery store.

It’s a good thing that Safeway is making this data available to consumers, I hope there are plans to support this data in achieving its potential as a powerful part of a personal health record system.

I learned about Safeway’s innovative work in health and health care from Scott Shreeve’s blog and some of the writing of Jen McCabe Gorman (more relevant links to Safeway-related work are here) so I decided to give Foodflex a try.

The sign-up was a little rocky, and my belief is that I was starting to use the site while it was having a series of outages. However, the customer service support team was very helpful, and the site appears to have stabilized since I began using it. It does take a few days to a week after signup for a nutrition report to be available after your first shopping trip.

Just like the first time seeing my own medical record on a personal health record, it was impressive to see a list of all the groceries I have purchased. The reality is this data is being collected on anyone who uses a food-club card, I think we forget that this is happening, so it is nice to get some return. The graphs are somewhat helpful, and there is an opportunity to look at alternatives to food items that I’ve purchased which have a different nutritional profile.

I think the power of this data is in the ability to self reflect on what we are actually buying – the occasional jar of peanut butter is sometimes more occasional than we think, for example. Before I get into some of the drawbacks of the site, I don’t want to underestimate this point. It’s a big deal to be presented with food choices in an automated system like this. Imagine the possibilities that could come from sharing this information with your family or other professionals that you might work with. They are big.

The challenges of Foodflex come from the navigation of the data, and the inability to do more than a few basic things with it. There is the ability to separate or remove certain food items from the calculations that do not belong to a specific person, but the controls are fairly crude. The site isn’t very AJAX-y and requires some paging around to see all of the information.

Before I would criticize the site, though, I would remember my own experience supporting patient access to their health care data – it’s not as easy as one would think, and relative to one’s peers, it’s incredibly innovative. Based on that idea, I think this is good work that should be encouraged.

And, this data should be made available as part of a personal health record (which would require a beefing up of security, since you only need to provide a phone number at a store to add data to an account).

As my colleague Paulanne Balch, MD, from Kaiser Permanente Colorado, informs me, the #1 thing a patient wants to know after a a doctor visit is, “What should I eat?” Our food record is as important and maybe more important than our biomedical record. In the future, an API could be made available for this data to be securely delivered to applications that could assist patients with specific dietary needs or goals. Just as with the personal health record, availability of data is a great first step. And the beginning of a revolution of rising expectations, which is good.

With thanks to Safeway for their innovation and for demonstrating the possibilities of this part of our health record. By the way, I did contact the very nice customer service folks and offered to talk to a program manager about the product and its plans, but did not get a response. If anyone out there wants to comment, or show me more in depth parts of the program, feel free to contact me or post in the comments, I’m available…..


moleskinerie: MOLESKINE QUALITY CONTROL

December 4th, 2008 | Popularity: 19%
2 comments

Emphasis added to the last sentence. Participation makes things better.

moleskinerie: MOLESKINE QUALITY CONTROL

“QUALITY CONTROL N° 6484

Every notebook is handmade and it has been carefully checked for quality. If, despite our best efforts, we have overlooked a defect of any kind, please let us know. Send an e-mail to: info@modoemodo.com, and include a digital photo that shows the problem you found, the quality control number (that identifies the notebook in your hands) shown here, along with the model name and your mailing address. We will send you a new notebook.
Together, we can prevent mistakes in the future. Thank you.

Running a hospital: Tipping point? (for trasparent health care orgs)

December 3rd, 2008 | Popularity: 21%
0 comments | Leave a reply

This is a thoughtful post from Paul Levy of the Running a Hospital Blog (and, of the Chief Executive’s office of Beth Israel Deaconess Medical Center) about achieving transparency among major health care institutions:

Running a hospital: Tipping point?

The post came because I was ribbing him a bit because of his quick mastery of the Twitter learning curve, and it goes beyond that to provide a bit of reflection.

I think I now take for granted that the BIDMC organization (through its reporting as well as through Paul and John Halamka’s blogs) is more transparent to its community. For example, I assume that if I want to download a strategic plan for a large Information Technology operation in health care, it will be available on John’s blog. I don’t know of another I.T. organization that I can download strategic plans to learn from. That’s differentiating for me, and I’ll go so far as to say that it’s probably differentiating for patients, too. I still believe that patients don’t expect us to be perfect, but they do expect us to learn from our mistakes quickly.