This is a blog post written by my community colleague Jess Jacobs (@Jess_Jacobs).
When I saw her at TEDMED and she told me about the patient experience around the diagnosis of here syncopal spells, I think I suggested she write a blog post. I’m not sure – I think I said that if these non-patient-centered approaches to care happen to everyone and no one says anything about them, they will continue.
So she wrote this blog post telling her story.
She did a beautiful job documenting things through photos ( one of my favorite things ) and in her story shows the difference between “data” and “facts”. “Data” are things like “X% of hospitals are using electronic health records,” or “100% of the time, patients should be able to access their medical records.” “Facts” are what happens at that highest level of the health system, where the patient receives services.
Read Jess’ story to see if you can see the difference between data and facts. We’re bummed because the facts don’t match the data.
Who knows, maybe the system that created this experience will go on stage at TEDMED and tell the audience that if the patient they disappointed is out there that they’re sorry, too.