Archive for October 14th, 2008

Revisiting Health Social Networking and Communities with http://www.inspire.com/brian

October 14th, 2008 | Popularity: 31%
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I got to revisit this topic with the person behind (or in front of the easy-to-remember) URL, Brian Loew, the CEO of Inspire.com.

I visited this the first time in May, 2008, when Brian and VP for Partnerships Amir Lewkowicz and I went for a short walk to talk about Inspire.

And I have to take a short break here to celebrate having a blog, that allows someone like me to remember when they last looked at something…

Back to the story, Brian offered me the opportunity to walk somewhere to meet him and go for a walking meeting while in Washington (well, I offered the walk to him). Again, twist my arm. And I’m glad I did. It has been a (short) while since I have been looking at the state of online communities for health. This could be because the last bit of excitement around these occurred around Health 2.0 this spring.

What hasn’t changed for me though, is the interest in supporting social networking in the empowerment/engagement of patients managing their health, so I was grateful for the update. Inspire.com has redesigned their site, and moved away from organization that is by health condition and more person-focused with the idea that someone will have multiple health interests depending on themselves and their families.

As I mentioned previously, Inspire has an interest in supporting clinical trials, and serves as an intermediary between consumer/patient organizations and pharmaceutical manufacturers looking to recruit interested patients who opt-in to trials in a privacy protected way.

What I am especially interested in the work I am doing the presence of a platform that could serve a diversity of health interests depending on the focus of, say, an employer group, a provider group, or a patient group. I have found a small hypertension community on Inspire, and joined it. It nicely allows me to indicate that I am there as a health professional/interested person rather than a patient with hypertension (at least not one, yet).

Near the end of our walk, Brian asked me an interesting question as we talked about how much patients think of their conditions throughout the day. He asked, “What would you think if you knew that I had a chronic condition?” My answer – that I would have a lot of respect for that person and pay close attention to their experience. I want to learn as much about people and the ways they encounter their health outside medical centers. I think other health care providers do, too, and I hope health communities can help teach as much as they learn.

Now Reading: 25 Percent of Large Medical Groups Use Data from Patients to Improve Care

October 14th, 2008 | Popularity: 34%
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Only 10 percent reported that most of their physicians would strongly agree with statement that the group regularly incorporates feedback from patients in improving care and developing new services.

This is among the largest medical groups, the ones with the greatest infrastructure.

This figure comes from the attached article, published in Health Affairs , which is a survey of a sample of the largest medical groups in the United States (those with 20 or more physicians), with the exclusion of Independent Practice Associations (due to theoretically less infrastructure present), and via self-report of the CEO’s/Presidents/Medical Director. In other words, this is best case.

With regard to online access:

Thirty percent of medical groups use group visits for patients with chronic illnesses at a majority of their practice sites (data not shown). A similar proportion reported that most of their physicians communicate with patients via e-mail “occasionally,” although only 1 percent reported that physicians use e-mail with patients daily. Nine percent said that a majority of their patients could access some part of the group’s EMR online.

Unfortunately, the performance of the medical groups surveyed lessens as the size of the group does. I thought it might be possible that smaller practices in this group might employ greater efforts to incorporate patient feedback. That could still be the case, since groups with less than 20 physicians are not included here (and those are the overwhelming majority of places where Americans receive their ambulatory medical care).

What about measuring “Medical Home-ness”?

Although some argue that “ medical-homeness” is better evaluated from the patient’s perspective than from the physician’s, others balk at all attempts to measure aspects of the PCMH as overly reductionist. Regardless, the demand for clinical practice “ transparency” remains a reality of the current policy environment, and success of the model will depend in part on continued multistakeholder involvement in the development of standardized, comprehensive assessment tools.

How, in a Health 2.0 world, could we combine the significant expertise of NCQA and lighter weight solutions to support patient involvement in the measurement of medical home-ness? Would this approach also guide medical groups to select the right infrastructure improvement projects for themselves and implement them quickly? This fits in nicely with the LEAN concept of “seeing the impact of what you do,” by getting smaller bits of feedback soon, combined with more comprehensive feedback over time.

Maybe a parallel iPhone Medical Home measurement application will surface …. see what you think.