e-patients: New York Times Health Section
04 Oct
Posted by Ted Eytan as Updates
Tags: e-patients , new york times , patient voice
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e-patients: New York Times Health Section
Read the comments and watch how patients lean and teach each other about how they can thrive in our health care system, and how we can perform better for them. This is a revolution.
I’m not disfigured from it but I learned my lesson: do not tolerate professionals who think we shouldn’t be privy to our medical data, much less the chance that we might have something to contribute. But we do.
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3 Responses
Susannah Fox
October 4th, 2008 at 9:14 am
1Thanks, Ted, the comments are amazing. I worked with Christine Gray to create a separate post to expand what she wrote and add links to reference material:
Response to Tara Parker-Pope’s “You’re Sick. Now What?”
http://www.e-patients.net/archives/2008/10/response_to_tar.html
Gilles Frydman
October 5th, 2008 at 3:39 pm
2Christine, myself and a couple of other patients have tried over the last 6 months to find a medical institution willing to work with us to create a program to help pediatric oncologists to better their communication style. For example by learning to better listen to what the parents have to say about their child disease or quality of care. We haven’t been successful so far! But maybe the time is coming when such a program will become a reality. There is so much to learn from these smart parents and someone should really use their willingness to share very hard experiences.
ICMCC Newspage » Blog Archive » e-patients: New York Times Health Section
October 6th, 2008 at 2:38 am
3[...] in our health care system, and how we can perform better for them. This is a revolution.” Article Ted Eytan MD, 4 October [...]
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