Comments on: My Definition of Health 2.0 : The Transition to Personal, Participatory Health Care http://www.tedeytan.com/2008/05/02/889 e-Health. Patient empowerment. Washington, DC. Thu, 18 Mar 2010 18:02:58 +0000 http://wordpress.org/?v=abc hourly 1 By: miriam johnston http://www.tedeytan.com/2008/05/02/889/comment-page-1#comment-3749 miriam johnston Sat, 18 Apr 2009 00:50:54 +0000 http://www.tedeytan.com/?p=889#comment-3749 fascinating conversation! i'm coming at this from a slightly different angle - i'm a physiotherapist (physical therapist in the US) who works with children with developmental delay/disability. in this field there are emerging concepts of "family partnership" whereby the relationship between the family and health/service providers is just as or even more important for achieving outcomes than the actual program/service provided (Hilton Davis in the UK is the main influence in this area). in terms of providing care we are beginning to talk about forming a "Team Around the Child" where the family (or primary caregivers) are considered a vital part of the "team" that plan and provide therapy and other care alongside all other medical/ therapy clinicians involved in the ongoing service provision to and for that child. the concept of "transdisciplinary" practice is quite contentious, but at its core it does not mean that there is a generic health/therapy service provider who does and knows everything. instead, it is a recognition that the physiotherapist's expertise is different from the speech and language pathologist's, which is in turn different from the family's expertise (yes, families, "patients", clients..all have expertise on their own health and developmental care needs and goals!) - so when all of that different but complementary expertise is combined together into a functional team there can be better outcomes from every perspective. the healthcare system here in australia may still be a long way from establishing an embracing new technology such as needed for transitioning to Health 2.0 but the shift towards valuing "personal participatory health care" is slowly occurring at many levels....keep on opening up this dialogue and challenging the ways of the past so we can improve the future! fascinating conversation! i’m coming at this from a slightly different angle – i’m a physiotherapist (physical therapist in the US) who works with children with developmental delay/disability. in this field there are emerging concepts of “family partnership” whereby the relationship between the family and health/service providers is just as or even more important for achieving outcomes than the actual program/service provided (Hilton Davis in the UK is the main influence in this area). in terms of providing care we are beginning to talk about forming a “Team Around the Child” where the family (or primary caregivers) are considered a vital part of the “team” that plan and provide therapy and other care alongside all other medical/ therapy clinicians involved in the ongoing service provision to and for that child. the concept of “transdisciplinary” practice is quite contentious, but at its core it does not mean that there is a generic health/therapy service provider who does and knows everything. instead, it is a recognition that the physiotherapist’s expertise is different from the speech and language pathologist’s, which is in turn different from the family’s expertise (yes, families, “patients”, clients..all have expertise on their own health and developmental care needs and goals!) – so when all of that different but complementary expertise is combined together into a functional team there can be better outcomes from every perspective.
the healthcare system here in australia may still be a long way from establishing an embracing new technology such as needed for transitioning to Health 2.0 but the shift towards valuing “personal participatory health care” is slowly occurring at many levels….keep on opening up this dialogue and challenging the ways of the past so we can improve the future!

]]> By: infoMedMD http://www.tedeytan.com/2008/05/02/889/comment-page-1#comment-1248 infoMedMD Mon, 02 Jun 2008 18:24:00 +0000 http://www.tedeytan.com/?p=889#comment-1248 Healthcare sites have been slower to evolve into Web 2.0 applications since nothing can really replace the personal aspect of a doctor's visit. There are however a number of great Health 2.0 websites that are arming the patient with medical information before visiting their doctor. infoMedMD is a new web 2.0 application (based in Boston) which uses computer logic to intelligently decipher your medical symptoms into valuable medical information. Healthcare sites have been slower to evolve into Web 2.0 applications since nothing can really replace the personal aspect of a doctor’s visit. There are however a number of great Health 2.0 websites that are arming the patient with medical information before visiting their doctor. infoMedMD is a new web 2.0 application (based in Boston) which uses computer logic to intelligently decipher your medical symptoms into valuable medical information.

]]> By: Lodewijk Bos http://www.tedeytan.com/2008/05/02/889/comment-page-1#comment-1040 Lodewijk Bos Wed, 14 May 2008 16:28:09 +0000 http://www.tedeytan.com/?p=889#comment-1040 Ted, it is very difficult to have a clear view of patient engagement in Europe, as every country has its own system and tradition, both in patient-doctor relationship and in the role of the various stakeholders (like insurers). Ted, it is very difficult to have a clear view of patient engagement in Europe, as every country has its own system and tradition, both in patient-doctor relationship and in the role of the various stakeholders (like insurers).

]]> By: Lodewijk Bos http://www.tedeytan.com/2008/05/02/889/comment-page-1#comment-1039 Lodewijk Bos Wed, 14 May 2008 16:18:34 +0000 http://www.tedeytan.com/?p=889#comment-1039 you're right, I added "through the use of ICT" (<a HREF="http://blog.icmcc.org/?p=2254" rel="nofollow">link</a>) as it is not just the web, but also homecare and other digital devices. you’re right, I added “through the use of ICT” (link) as it is not just the web, but also homecare and other digital devices.

]]> By: ICMCC Blog » Blog Archive » Health 2.0: Definition http://www.tedeytan.com/2008/05/02/889/comment-page-1#comment-1038 ICMCC Blog » Blog Archive » Health 2.0: Definition Wed, 14 May 2008 16:17:22 +0000 http://www.tedeytan.com/?p=889#comment-1038 [...] of Health Informatics and Web Services and at a sabbatical at the PCHIT, published a definition of Health 2.0, saying that it is “the transition to personal, participatory health care“. Maybe you [...] [...] of Health Informatics and Web Services and at a sabbatical at the PCHIT, published a definition of Health 2.0, saying that it is “the transition to personal, participatory health care“. Maybe you [...]

]]> By: e-Patient Dave http://www.tedeytan.com/2008/05/02/889/comment-page-1#comment-1036 e-Patient Dave Wed, 14 May 2008 11:17:28 +0000 http://www.tedeytan.com/?p=889#comment-1036 Great to see you here, Matthew. > a little too general to be helpful One bloggee's ceiling is another bloggee's floor. :) For those who've been immersed in the conversation for ages, that definition might seem primitive, not deeply articulated. But we're just beginning to spread the word beyond the early adopters, and in my experience those who've never heard of it need a first-level description that lets them see "Huh, I guess that makes sense, but I'd never thought of it. Interesting." That's tied in to the reality that most laypeople don't even know what Web 2.0 is. Lodwijk's definition is excellent, but still leaves out the role of the Web, which I think is inescapably central to Health 2.0. Something like: "... is the combination of new Web tools, health information, and patient awareness, enabling the citizen..." Great to see you here, Matthew.

> a little too general to be helpful

One bloggee’s ceiling is another bloggee’s floor. :) For those who’ve been immersed in the conversation for ages, that definition might seem primitive, not deeply articulated.

But we’re just beginning to spread the word beyond the early adopters, and in my experience those who’ve never heard of it need a first-level description that lets them see “Huh, I guess that makes sense, but I’d never thought of it. Interesting.”

That’s tied in to the reality that most laypeople don’t even know what Web 2.0 is.

Lodwijk’s definition is excellent, but still leaves out the role of the Web, which I think is inescapably central to Health 2.0. Something like: “… is the combination of new Web tools, health information, and patient awareness, enabling the citizen…”

]]> By: Ted Eytan http://www.tedeytan.com/2008/05/02/889/comment-page-1#comment-1035 Ted Eytan Wed, 14 May 2008 10:45:11 +0000 http://www.tedeytan.com/?p=889#comment-1035 Matthew, Well...let me ask you then, as the Health 2.0 convener - when you walk into a room and someone asks, "What is Health 2.0 (and why should I care about it?)?" What do you say? This coast will look forward to your presence, Ted Matthew,

Well…let me ask you then, as the Health 2.0 convener – when you walk into a room and someone asks, “What is Health 2.0 (and why should I care about it?)?” What do you say?

This coast will look forward to your presence,

Ted

]]> By: Matthew Holt http://www.tedeytan.com/2008/05/02/889/comment-page-1#comment-1033 Matthew Holt Wed, 14 May 2008 05:13:07 +0000 http://www.tedeytan.com/?p=889#comment-1033 Ted, I think that definition is a little too general to be helpful. But then again it allows us to call virtually any advance in participation Health 2.0, so perhaps I should encourage it! In any event, very glad to have you join the definition-istas! (See you in Dc next month) Ted, I think that definition is a little too general to be helpful. But then again it allows us to call virtually any advance in participation Health 2.0, so perhaps I should encourage it!

In any event, very glad to have you join the definition-istas! (See you in Dc next month)

]]> By: Ted Eytan http://www.tedeytan.com/2008/05/02/889/comment-page-1#comment-1030 Ted Eytan Mon, 12 May 2008 11:33:37 +0000 http://www.tedeytan.com/?p=889#comment-1030 Lodewijk - Thank you. Very improved! I noticed the concept of citizen - I had not considered health systems outside of the United States in my thinking, as both you and Jen McCabe have, and I really don't know what the level of engagement of patients is outside of the US. Care to comment on that - is it the same, more, less? Much appreciated, Ted Lodewijk – Thank you. Very improved! I noticed the concept of citizen – I had not considered health systems outside of the United States in my thinking, as both you and Jen McCabe have, and I really don’t know what the level of engagement of patients is outside of the US. Care to comment on that – is it the same, more, less? Much appreciated,

Ted

]]> By: Lodewijk Bos http://www.tedeytan.com/2008/05/02/889/comment-page-1#comment-1022 Lodewijk Bos Mon, 12 May 2008 06:17:04 +0000 http://www.tedeytan.com/?p=889#comment-1022 Ted, <a href="http://blog.icmcc.org/?p=2254" rel="nofollow">I gave it a try</a>. Lodewijk Ted,

I gave it a try.

Lodewijk

]]> By: Ted Eytan http://www.tedeytan.com/2008/05/02/889/comment-page-1#comment-1007 Ted Eytan Fri, 09 May 2008 12:54:10 +0000 http://www.tedeytan.com/?p=889#comment-1007 Lodewijk, I see the concern, which is also stated by people like Don Berwick in the book "Overtreated." When I say "participation" I mean it more as democratization of a one-sided leadership paradigm, i.e. away from the length of your labcoat leadership credentials. You could take a look at <a href="http://del.icio.us/tedeytan/Genie" rel="nofollow">this video of Genie industries</a> about how they do continuous improvement. What would hospitals be like if they implemented error-proofing techniques as a result of every customer suggestion? This is along the lines of what Dennis Quaid said, "<a HREF="http://www.thehealthcareblog.com/the_health_care_blog/2008/03/dennis-quaid-ta.html" rel="nofollow">Public Accountability Spurs Innovation."</A> See what you think and please suggest an improvement to the definition based on your thinking! Ted Lodewijk, I see the concern, which is also stated by people like Don Berwick in the book “Overtreated.”

When I say “participation” I mean it more as democratization of a one-sided leadership paradigm, i.e. away from the length of your labcoat leadership credentials.

You could take a look at this video of Genie industries about how they do continuous improvement. What would hospitals be like if they implemented error-proofing techniques as a result of every customer suggestion?

This is along the lines of what Dennis Quaid said, “Public Accountability Spurs Innovation.”

See what you think and please suggest an improvement to the definition based on your thinking!

Ted

]]> By: Lodewijk Bos http://www.tedeytan.com/2008/05/02/889/comment-page-1#comment-1006 Lodewijk Bos Fri, 09 May 2008 11:39:46 +0000 http://www.tedeytan.com/?p=889#comment-1006 I might understand the use of the word "transition", as participatory healthcare is much more than being able to see what the medics do. However, what I miss is the fact that participatory means that the patient will have to assume his own responsibility and that the system will have to accept this paradigm shift. I might understand the use of the word “transition”, as participatory healthcare is much more than being able to see what the medics do.
However, what I miss is the fact that participatory means that the patient will have to assume his own responsibility and that the system will have to accept this paradigm shift.

]]> By: Ted Eytan http://www.tedeytan.com/2008/05/02/889/comment-page-1#comment-979 Ted Eytan Wed, 07 May 2008 19:12:24 +0000 http://www.tedeytan.com/?p=889#comment-979 Deborah, And thank you for responding! I admit, when I modeled this on the Economist's definition, my laser light attention was on the word "participation," which I am glad you also appreciate. I didn't pay as much attention to the other words. I think Dave also thought there could be some improvement as well. What would you change it to - feel free to comment back, let's make this better. With much respect for your experience at ACOR and thanks for taking the time, Ted Deborah,

And thank you for responding! I admit, when I modeled this on the Economist’s definition, my laser light attention was on the word “participation,” which I am glad you also appreciate.

I didn’t pay as much attention to the other words. I think Dave also thought there could be some improvement as well.

What would you change it to – feel free to comment back, let’s make this better. With much respect for your experience at ACOR and thanks for taking the time,

Ted

]]> By: Deborah Bell http://www.tedeytan.com/2008/05/02/889/comment-page-1#comment-978 Deborah Bell Wed, 07 May 2008 17:52:42 +0000 http://www.tedeytan.com/?p=889#comment-978 I saw this referenced on e-patients.net and thought I'd respond... I am a little concerned about the concept of "transition" - how do we define when we have transitioned? Other than that, at last, participation... I've been an ACOR listmember and listowner for 12 and 10 years respectively. Had I known then what I know now... Doctors have to learn to relate to the concept of participation. Too many are stuck in the past and are threatened by patient involvement. Perhaps that's too harsh a term - maybe "concerned about" patient involvement. It takes more time. The whole healthcare model we have in the USA today is based on expedience of healthcare, not quality. I'm hoping this changes soon. Interesting to note that GenX doctors are coming in with a different mindset! I hope that's actually true all over. I saw this referenced on e-patients.net and thought I’d respond… I am a little concerned about the concept of “transition” – how do we define when we have transitioned? Other than that, at last, participation… I’ve been an ACOR listmember and listowner for 12 and 10 years respectively. Had I known then what I know now…

Doctors have to learn to relate to the concept of participation. Too many are stuck in the past and are threatened by patient involvement. Perhaps that’s too harsh a term – maybe “concerned about” patient involvement. It takes more time. The whole healthcare model we have in the USA today is based on expedience of healthcare, not quality. I’m hoping this changes soon.

Interesting to note that GenX doctors are coming in with a different mindset! I hope that’s actually true all over.

]]> By: e-Patient Dave http://www.tedeytan.com/2008/05/02/889/comment-page-1#comment-971 e-Patient Dave Tue, 06 May 2008 12:52:59 +0000 http://www.tedeytan.com/?p=889#comment-971 Um, I meant in Boston. Um, I meant in Boston.

]]> By: e-Patient Dave http://www.tedeytan.com/2008/05/02/889/comment-page-1#comment-970 e-Patient Dave Tue, 06 May 2008 12:51:37 +0000 http://www.tedeytan.com/?p=889#comment-970 When's the presentation? I had dinner with a bunch of the e-patient crew in dinner last night, before Susannah Fox gives a talk (starting right about now). Lots of percolation going on. Wish you could have been there. When’s the presentation?

I had dinner with a bunch of the e-patient crew in dinner last night, before Susannah Fox gives a talk (starting right about now). Lots of percolation going on. Wish you could have been there.

]]> By: Ted Eytan http://www.tedeytan.com/2008/05/02/889/comment-page-1#comment-969 Ted Eytan Tue, 06 May 2008 12:11:31 +0000 http://www.tedeytan.com/?p=889#comment-969 Dave, well I like it, or anything that's a few words in length and therefore easy to remember :) I needed to come up with something because I'm giving a presentation that's tying Web 2.0 and Health 2.0 together. Necessity is the mother of invention. Improvements and other dissemination welcome, Ted Dave, well I like it, or anything that’s a few words in length and therefore easy to remember :)

I needed to come up with something because I’m giving a presentation that’s tying Web 2.0 and Health 2.0 together. Necessity is the mother of invention. Improvements and other dissemination welcome,

Ted

]]> By: e-Patient Dave http://www.tedeytan.com/2008/05/02/889/comment-page-1#comment-963 e-Patient Dave Sat, 03 May 2008 16:49:25 +0000 http://www.tedeytan.com/?p=889#comment-963 This is as good a definition of Health 2.0 as I've ever seen. It's concise and right on the mark. The lab coat length parallel is great, too. (I thought I was going blind because I was looking for the comments on this post and not finding any. Holy cow, there aren't any! This is important stuff, people - we're creating and defining the new world here!) This is as good a definition of Health 2.0 as I’ve ever seen. It’s concise and right on the mark. The lab coat length parallel is great, too.

(I thought I was going blind because I was looking for the comments on this post and not finding any. Holy cow, there aren’t any! This is important stuff, people – we’re creating and defining the new world here!)

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