Comments on: Advisory Group Adjust: Deven McGraw, National Partnership for Women and Families http://www.tedeytan.com/2007/11/14/509 e-Health. Patient empowerment. Washington, DC. Tue, 06 Jan 2009 02:11:14 +0000 http://wordpress.org/?v=2.7 hourly 1 By: Ted Eytan http://www.tedeytan.com/2007/11/14/509/comment-page-1#comment-719 Ted Eytan Wed, 14 Nov 2007 14:36:16 +0000 http://www.tedeytan.com/2007/11/14/509#comment-719 Agreed - and I forgot to include the link to your summary of this part of the discussion, where you summarized some of the steps we will take to involve consumers in the work: <a href="http://www.pchit.org/2007/11/01/63/" rel="nofollow">Involving consumers in PCHIT work</a> Agreed - and I forgot to include the link to your summary of this part of the discussion, where you summarized some of the steps we will take to involve consumers in the work:

Involving consumers in PCHIT work

]]> By: Josh Seidman http://www.tedeytan.com/2007/11/14/509/comment-page-1#comment-718 Josh Seidman Wed, 14 Nov 2007 14:26:10 +0000 http://www.tedeytan.com/2007/11/14/509#comment-718 To build on Ted's "Adjust," part of what I got from Deven's comments was for us to think more specifically about strategies for engaging consumers themselves in the solution development process. We need to make sure that our shadowing goes outside the traditional care delivery setting (more on this in a blog post later today). We need to find ways to gain insights from consumers directly, while ensuring that we do it all with complete respect for the privacy and confidentiality. Part of this challenge (and certainly part of the work of Deven and the National Partnership) is creatively thinking about how to empower consumer organizations to get more involved proactively in EHR/PHR adoption. Many consumer organizations have done important work on privacy and security, but we also need to encourage them to engage in PCHIT-oriented efforts more holistically. --Josh To build on Ted’s “Adjust,” part of what I got from Deven’s comments was for us to think more specifically about strategies for engaging consumers themselves in the solution development process. We need to make sure that our shadowing goes outside the traditional care delivery setting (more on this in a blog post later today). We need to find ways to gain insights from consumers directly, while ensuring that we do it all with complete respect for the privacy and confidentiality.

Part of this challenge (and certainly part of the work of Deven and the National Partnership) is creatively thinking about how to empower consumer organizations to get more involved proactively in EHR/PHR adoption. Many consumer organizations have done important work on privacy and security, but we also need to encourage them to engage in PCHIT-oriented efforts more holistically.

–Josh

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