1st Edition: WellCentrix Podcast | Conversation with @MightyCasey, @TrenorWilliams, and Myself

Aug 24 2010

@MightyCasey , a patient advocate, principle at WellCentrix, and media savvy podcaster, recently interviewed Trenor Williams, MD ( @trenorwilliams ) and myself about health information technology, health information exchange, and my favorite topic, patient access. Click on the link above to listen. Trenor and the team at Washington, DC’s Clinovations ( @clinovations ) are coordinating much of the work of the DC Regional Extension Center, so it will be exciting to see the impact of our government’s support of health information technology unfold and progress the state of the art in front of our very eyes.

When you see the tagline of WellCentrix, 1st Edition: WellCentrix Podcast | Liberating doctors from factory medicine, you’ll understand that it’s a bit provocative. Since Casey explained it to me, I understand that it doesn’t refer to a model or structure of care, it refers to a feeling that physicians have, which can exist in any type of care environment. As she explained it to me, she is working to help physicians see their potential to engage and work with patients to help them achive optimal health.

One note about me and my podcastingness – the thing I love about social media is that I get to attach a postscript to anything I do involving the media, and I also get to do a little self-critique. I think you’ll notice that I am a little energized about the topic in the podcast. I appreciate Casey’s excellent moderation talent, and I also do really well with grounded, enthusiastic partners, like Dr. Williams. See what you think.

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Campaign for Better Care Forum : Patient Voices, my Interview

Aug 18 2010

Campaign for Better Care Forum : Patient Voices –  This is a link to the videos of the patients who spoke recently at the Campaign for Better Care Forum, in Washington, DC. One of the best parts of the morning was walking around before the panel started, with @ReginaHolliday , in search of the panelists, to introduce ourselves and provide encouragement.

Watching Regina connect with them was really great – there was a kind of “I have some of the same experience as you” moment as well as a , “there are other people like me” moment. Is it fair to say that it’s the same feeling you get when you meet someone from your home country when you are traveling abroad?

I enjoyed all of the panelists’ presentations, whose videos are posted at the link above. I think about Joann Donnellan’s comments, near the end in the Q&A in the first video , where she talks about how, “all of a sudden,” all the resources she did not have access to, became accessible, when she herself fell in her caregiving role and needed 10 stiches above her eye. You can hear the entire audience burst out in laughter at that moment, which says a lot about the burden we still allow people to face in providing care…

I was grabbed for a few minutes to give an on-the-spot interview, and that’s posted here.

 

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Elevate Your Health Colorado (and the social media engagement of the physicians who practice there)

Aug 18 2010

@SteveKrizman , from Kasier Permanente Colorado, wrote to let me know about Elevate Your Health Colorado , at http://www.elevateyourhealthco.com , because he knew (correctly) that I would be interested in @KPColorado ‘s work in bringing its physicians online in a social media kind of way.

This involvement of physicians in social media has more of a group feel, compared to the approach of @seattlemamadoc , who I interviewed here recently.  So for example, you can read the latest blog post of one of my favorite pediatricians, @MarkGroshek here , and it’s co-mingled with other content (video, blogs) from his medical group colleagues in the Colorado Permanente Medical Group.

I think both approaches are great – they are allowing physicians to express themselves and help their patients and their communities at the same time and doing it in an environment where they are getting trained and coaching along the way. This increases the likelihood over time that the medical profession will understand how to use this tool to help patients everywhere.

As I have said previously, it took the profession 80 years to adopt the telephone, 10 years to adopt electronic mail (at least in our medical group), it’s probable that adopting social media will happen more quickly through these efforts.

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HealthCamp San Diego (!)

Aug 12 2010

HealthCamp San Diego.

As the introduction says:

After nearly two years in the incubator, the inaugural session of HealthCamp San Diego has been confirmed, and will be held on September 7th, 2010.

This is thanks to the hard work of people like @dermdoc and @2healthguru , with help and support from the energetic @daniellecass , who has brought in sponsorship by Kaiser Permanente.

I am a huge fan of healthcamp because it teaches a different way of innovating in groups – the tension of “we need to prepare a slide deck” is like one of those things that was made up a long time ago, and has a place and time, but not all the time.

I can’t go to this one because I’ll be celebrating advice nursing (and advise nurses, who deserve to be celebrated) around the same time. I encourage anyone near the vicinity (or far away) to go, though. With a nod to our leadership, @ekivemark (origniator of the #epicenter brand), and the slick URL, http://healthca.mp for everything you wanted to know about healthcamp(s).

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Texts and tweets help an M.D. connect with her patients | Article | Homepage articles

Aug 10 2010

Texts and tweets help an M.D. connect with her patients | Article | Homepage articles

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“The More We Can Change the World” – Blog-ter-view with Wendy Sue Swanson MD about physicians and social media

Aug 10 2010

Wendy Sue Swanson, MD bills herself as ” a mom, a pediatrician ” who writes her insights about keeping kids healthy on the very (should I say “wildly”?) successful Seattle Mama Doc blog and Twitterfeed ( @seattlemamadoc ), out of Seattle Children’s Hospital.

I got to meet her in June (hooray!) and she agreed to answer a few questions about her experience in the interest of educating others.

Because she’s a very busy pediatrician, we going to do this over a few days in smaller bits, you can see that original post plus the interchange in the comments here.

Like lots of things in this medium, this was an experiment, we hope it unfolded well, and adds understanding about the role  and potential role of physicians in new media.

First Question:

Wendy, when did you discover social media and how did you discover it?

Ted,

I discovered social media on a Saturday. I wasn’t in clinic or at the hospital; I was home, reconnecting with a friend from residency who was visiting from out of town. She is a pediatric gastroenterologist now, a fellow at CHOP at the time. I was pregnant. We were online looking up info about pregnancy when she said, “You need to be on Facebook. Now. It’s exactly who you are.” She has a sister, who was a Harvard undergrad at the time, and had introduced her to power of connecting and communicating using social networking tools.

Up to that point, I’d known very few people on Facebook except for our nanny and my teenage niece.

I logged on and set up an account. Instantly, I reconnected. Medical education had annexed me into a life of isolationism that I was unaccustomed to. Prior to my training, I felt connected and a part of my friends’ lives throughout the US. But after med school and residency, I hadn’t seen many friends. I’d missed reunions, weddings, and a funeral due to the rigorous work schedule. There had been a big shift in my social life.

On Facebook, I found the lost voices I’d been missing. I was able to capture and collect bits of the person I was prior to becoming a doctor.

I felt more whole.

I also learned I was less of an extrovert than I had previously thought. I read far more than I wrote. Social media and social networks were places and spaces to be quiet. While on bed rest with my second son, Facebook kept me company, providing a community that arrived effortlessly in my lap. Updates were an efficient way to inform friends about my pregnancy. When I was missing the interactions and contributions I made with patients, family, and friends, I opened my laptop. Social media nurtured me to the time of my son’s delivery.

Then last summer (2009), I joined Twitter. I witnessed and listened. Over a few months’ time, I recognized the potential for incredible change. I realized Twitter was a tool ready and able to improve the lives of children. During the H1N1 outbreak, I followed daily Twitter feed for updates on the evolving epidemic and treatment recommendations. Twitter improved the quality of care I provided. And thus, I started to spend more time on line.

In November of 2009, my career in social media began in earnest. I started a blog. Now I use Facebook, Twitter, LinkedIn, and my blog to connect, communicate, learn, engage, and empower families to use science in making decisions. I learn and emote. I laugh. And I now tweet nearly every day. But I listen, much more.

So you went from “physician spectator” to “physician creator” of social media content in November, 2009. Given everything else you were doing as a physician to support patients and families already, what were you hoping to accomplish through this medium?

It’s simply, really: I want to realign families with science. I don’t want fear-based messages to dilute current evidence and science that helps us care for children. There is vast amount of news that uses fear as a lure. I aim to use data and science to employ us all in preventing illness and injury.

I want parenthood to feel freeing, not fearful; I want to chronicle my life as a mother and physician. As data and new recommendations unfold, I share my perspective and take so that parents receive an unfiltered, uncensored opinion.

I want to help improve the way media reports on pediatric health issues. I want to bridge the growing divide between patient and doctor. And, I want to have fun. Affecting change, while guiding parents outside of the pediatric office, is a great fit for my family, my patients, and me.

Now I want to ask about the realities, for those who wonder what might happen next if they decide to do this…

Tell me/us about:

- The most delightful/exceeded your expectations aspect of your social media efforts? Feel free to think of an example where you said to youself, “wow, I am accomplishing what I hoped to.”

- The least-met-your expectations/wish it could have gone better aspect of your social media efforts? Feel free to use an example as well.

Ted, I have been surprised by the connections I’ve made on Twitter. I have met and communicate/learn from a cadre of physicians, nurses, patients, and parents I would not otherwise know. Twitter has therefore opened and expanded my world. I also use it to search for opinion and can easily survey the landscape on particular topics. I wrote a post about new initiatives and prevention efforts in childhood obesity one day utilizing Twitter to search and witness what others were saying about Michelle Obama’s “Let’s Move” campaign. During the few hours I worked on the post, I learned a ton about what the world was thinking. It aided in my creation of the post I was writing and in creating an effective angle. Many I follow on Twitter direct me to good content on a daily basis. I am indebted to them all for help in understanding what and how to write about to improve the lives of children.

The most delightful success for me has been due to one particular post I wrote about keeping children rear-facing in car seats until age 2. It has circulated all over the Internet and been viewed tens of thousands of times. But it’s not the “popularity” or the numbers that please me, it is the fact that having had this large distribution, I know I may contribute to saving the life of a child. If I do that, even once, the blog is worth it. This post helps me believe it’s possible.

Most frustrating part of working in social media is the way that my time on these sites detracts from my quality of life. There is a constant buzz, a near 24-hr cycle, to Twitter, blogging, and other social media networks. The blog, the comments, the pingbacks, the tweets are always there. There is always more to read or more to distribute. Unrelenting streams of information and thought…Because of that I have lost time to witness thoughts and the world in a way I did previously.

My other gripe is that the more time and effort I put into social media, the more I feel I need to do. It’s quick-sand-like power draws me in and distracts me from carving out any personal time. Between my practice, my media work, freelance writing, and parenting two young boys, I am left with little free time. I really miss that. And am working on ways to improve the balance. I’m not asking for help, rather explaining how this work has changed my life. Of course, I could compartmentalize my work better. But currently when I do, I am left feeling I’ve missed important, essential details that allow me to be effective and comprehensive. That sense of missing things jails me into working more…

Wendy, you honestly answered the question about “how do you fit this in?” which like a lot of things in medicine is challenging…

I wanted to close the interview with an important question for people who read this interview -

What kind of health care do you provide and what are your clinical interests?

and two philosophical questions -

How do you think doctors can best contribute to social media?

and

How do you think social media can best contribute to doctors?

I’m a part-time community pediatrician; I take care of children from birth to age 20, in an outpatient clinic. Simply stated, I’m a primary care doctor.

The majority of my practice is young children (infants ,toddlers and early school age) with the remainder being mostly adolescent girls. I take care of many children who were premature at birth or who are surviving/thriving with chronic illness. I have diagnosed HIV in patients and I see “real” medicine all the time. The majority of what I do in clinic is well-child care, diagnosing acute illness, advocating for complex patients, and teaching (children & families) about health. I learn and see new things every week. My experience being a middle school teacher helps me immensely every single day. The two most important things I do:

a) I write the orders and get parental consent to give vaccinations.

b) I ask adolescents tough questions.

As you know, clinic work is extremely rewarding (albeit exhausting). I think about and care about my patients; it is an utter privilege to provide care for them, too.

In regards to your philosophical questions:

1. Doctors can contribute to social media by simply joining networks, following on Twitter, or starting a blog. Lending opinion, transparently sharing expertise, and disseminating science will change the social media landscape. I believe, through social media, physicians can improve the health of communities. I trust there will be data to prove this very soon.

With such limited time in the exam room, social media offers up an easy platform to quickly share experience, tell stories, and give advice to many patients and people simultaneously. It is efficient. The more willing and engaged a physician is with social media, the more expertise they impart. Consequently the more they can change the world. No doubt about it.

2. Social media gives and gives and gives. Physicians can use it to keep up to date. And understand diverse (divergent?) perspectives. Social media provides a stream of information, update, and opinion that can both educate docs in real time and keep them abreast of research, expertise, and resources. Physicians can network, connect, and work more effectively in the fight against global illness and suffering. For example, today I have been watching a radiation oncologist visit Uganda on Twitter. Her updates, blog posts, and photos have transformed my lens on the world today.

Social media allows me to be informed by many different people within minutes. Quietly hearing thoughts and simply linking and clicking, I improve my fund of knowledge. A tremendous amount of learning occurs with a 1 hour commitment to Twitter, Facebook, or a healthcare blog. It’s disorienting really, yet then wholly orienting, all at the same time.

Thanks, Ted. That was a fun Blog-ter-view. My first!

 

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Commentary on Ashoka Changemakers’ Patients | Choices | Empowerment (please join!)

Aug 09 2010

The following post was written to start off my week as expert commentator on Ashoka Changemakers Patients | Choices | Empowerment Competition . I was asked (via Twitter!) to participate, and have always been a fan of this work, plus with those three words as the title….

The post is also a refresh for me of the “why” I am interested in in what I am interested in.

The original is posted here, and a copy is below. Please head over and either enter the competition, or mentor those who have. More ideas are better.

“I really hate you sometimes.” – Albert Finney

“You love me.” – Julia Roberts

I saw Erin Brockovich for the first time this week, on the recommendation of Regina Holliday ( @ReginaHolliday , reginaholliday.blogspot.com), Washington DC’s “mural activist” for patient empowerment, and it tells the story of the value of leadership and change that can come from anywhere in society.

Actually, when I was asked to introduce myself to a group of innovators at Health 2.0 in 2008 using only three words, they were: “Change. The. Profession.”

There have been many times in my career when other doctors have asked me, “what will it take for health care to be more like what we want it to be?”

If doctors are asking each other this question, it means that more partners are necessary in this journey, and the best candidates are the people who see the impact of what health care does (or doesn’t do): the patients, their families, their communities.

In 2008, I didn’t know where or how I could collaborate with this group; in 2010, with the explosion of social media and greater awareness of the promise of health information technology, these connections are being made. All of us can now bring the reality of the patient experience forward and solve problems at the level of the patient. Even the largest health care organizations, including the National Health Service, are having this awareness, in my opinion: http://www.tedeytan.com/2010/08/03/5918

With this in mind, I reviewed the “Patient Empowerment” Discovery Framework.  Besides respecting the work of several of the innovators listed, I recommend looking at the grid on page 13 (linked here).

Key points:

There is space/opportunity for people in and out of the care professions to change the way people interact in health care;

and

Ideas can be simple or complex. (We didn’t realize in 2009 that a mural on a gas station wall could be so powerful.)

In the coming week I am going to read current entries to the competition and add some commentary along these lines. I also welcome questions from entrants and potential entrants about the potential of their ideas.

I’ll answer questions in an “expert” commentator/advisory role. The “expert” is in quotes, because even though I have gone to medical school, I have not yet had stage 4 metastatic renal carcinoma or cared for someone who has.

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Photo Friday: Love Always Wins

Aug 07 2010

These are selected photographs taken in Washington,DC, from 1963 to 2010. The last one is of School Superintendent Michelle Rhee.


What does this have to do with health care?

We can remember the power of the bond between person and family is among the strongest that exists. Attempting to break that bond in the delivery of care, whether it is separating patients from their families physically, or through denying access to helpful information, is a bad idea. And why do we want to do that anyway? We don’t. Because love always wins. Congratulations, California.

Some more beautiful photos of people in love from around the world can be found here.

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Data visualization, obesity and hunger rates

Aug 04 2010

I am a fan of the data visualization, and this one was recently created by local DC design firm JESS3.

Note that DC is a bit of a paradox in that it is one of the least obese “states” in the union and has an above average poverty and nutritional assistance rate.

This analysis, from the Martin Prosperity Institute in Toronto, may shed a little light on this, by adding in variables such as gender, race/ethnicity, as well as some newer determinants of community health and happiness such as “creative class,” “gay index,” and human capital indices.

With thanks to DC Resident and experienced media consultant Simon Owens for the heads up. Value of community, power of #epicenter.

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The Crucial Skill for Tomorrow’s Leaders

Aug 04 2010

The Crucial Skill for Tomorrow’s Leaders.

Nice Ideacast from Harvard Business review, which sparked my interest re: the need to embrace social media (the first speaker, Angel Cabrera, and the need to be “mindful” by Dr. Ellen Langer, which speaks to listening and observing.

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